EVENTS
13th EFA Conference: Future of Patient Organisations 12-13 June 2009, Rome, Italy - Presentations
Opening session: Future of patient organisations, N Bedlington
Joint session with the WHO Global Alliance agaist Respiratory Diseases GARD: GARD and patient organisations
EFA: Initiatives in European countries, M Salapatas
International COPD Coalition ICC initiatives in developing countries, Y Mohammad
Session 1: Asthma is still challenging!
What constitutes a successful patient organisation? J Versnel
News from the Global Allergy and Asthma European Network of Excellence GA²LEN, T Zuberbier
The Brussels Declaration: Change is needed in asthma management, R Horne
Helping Asthma Real Patients: the HARP project, D Price and R Horne
Co-ordination action on indoor air quality and health effects EnVie project, M Jantunen
Minimal written information programme. A requirement for asthma patient education to improve asthma management in Italy, G Salerni
Phenotype handprints to identify severe asthma conditions, the U-BIOPRED project, P Sterk
www.KnowYourAirforHealth.eu HEAL & EFA project, G Erskine
Session 2: Current work in allergy and how this leads to future relevance of patient organisations
Burning issues in allergy: identify the right content to deal with for patient organisations to be relevant in solving problems for allergic peers, under the condition of a changing environment, G Endregard
EFA working group on food allergy, S Palkonen
Prevalence, cost and basis of food allergy in Europe, the EuroPrevall project, R van Ree
EU food labelling directive proposal and allergy, S van Rokeghem
The Voice of patients: allergic rhinitis is not a trivial disease survey, E Valovirta & S Palkonen
Allergology recognised as a medical speciality in Europe: current status, R G van Wijk
Finnish allergy programme 2008-2018: current status & patient involvement, T Haahtela
Session 3: Concluding session
Strategic alliances and value of partnerships with health care professionals, policy makers, other NGOs and industry for modern patient organisations, O Spranger
The New EFA project: EFA beoynd the borders of Europe, M Salapatas
Winding up of the Conference: description of a modern patient organisation, O Rybnicek
Invitation to the 14th EFA Conference 2010 & film on Vilnius, L Buzermaniene
EVENTS
Joint International COPD Coalition ICC-EFA First Conference of COPD Patients: Global Mandate for COPD Care 14 June, Rome, Italy
The Conference defined and ratified the Global Mandate for COPD Patient Care and the COPD Patient Bill of Rights. COPD patient organisations, health ministry representatives, COPD experts and leaders of their allied groups charted the global plan to improve COPD patients' quality of life and care worlwide.
Click to view the PROGRAMME and further information.
Additional information
EFA CONFERENCE
More than one dozen modern projects on allergy and asthma with EFA involvement and best practice examples were screened by top speakers. By doing so, the Conferencewill highlighted the conditions needed to manage future challenges of national and international allergy and asthma patient organisations. The presentations also updated on EFA activities on allergy and asthma during the last 12 months and provided a preview of the coming activities.
This year's Conference was unique as it was run simultaneously with the Global Alliance Against Respiratory Diseases (GARD) Assembly and was followed by the 1st COPD Patient World Conference (see below), all in Rome. As part of the Conference, all participants had the opportunity to join global leaders on respiratory diseases at the GARD Assembly for their session on ‘Patient needs’.