Author Archive of David

EFA event on EU innovative research

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EFA’s EU Project Event

Click here for the draft programme. EFA is pleased to confirm a public event on June 17th entitled “Does innovative research for allergy and respiratory disease in the European Union benefit patients?” The examples of AirPROM, EARIP, MeDALL and U-BIOPRED will present four ongoing EU funded projects where patients are actively participating and should stand to benefit from their outputs. The representatives and patient representatives from each

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EU patient empowerment

This month EFA features activities surrounding patient EU patient empowerment. It features EFA’s presentation of patient involvement within the EU project U-BIOPRED at a conference on patient empowerment and health literacy, the publication of EFA’s event report on its EMA workshop and an invitation for patients to join EUPATI. EFA presents U-BIOPRED as model for patient involvement in clinical trials at the 2014 Careum Conference and participates

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EFA in meetings

This month EFA President spoke about asthma at IMI staff meeting, EFA met with the US COPD Coalition on collaboration as well as European Disability Forum. Other meetings are highlighted in other sections of this ezine.   EFA president tells about asthma at IMI event The Innovative Medicines Initiative (IMI) invited EFA’s Breda Flood, as a patient and Scott Wagers, who is among others involved with the IMI funded research project U-BIOPRED,

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EFA Member News

News from EFA’s members this month includes worrying details of legislative changes in Belgium which could negatively impact EFA’s members in the country and an update from EFA’s members working on national allergy and asthma programmes in their countries.   Prévention des Allergies: Meeting with EFA in Brussels highlights concerning changes for the representation of Belgian patients with allergy, asthma and COPD On March 13th, Suzanne

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Europe for Patients at EP Elections

The European Parliament elections are approaching. In less than two months European citizens will be called to vote on their future representatives in Europe. EFA continues its efforts to share EFA Manifesto within stakeholders and policy-makers and to get as much support as possible to improve the health and well-being for future generations of people with allergy, asthma and COPD and prevention.   EFA Manifesto is for Healthier Europe. What else?

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EU Policy update

In March, the Tobacco Products Directive was finally adopted by the Council and ended a process started more than 1 year ago to protect Europeans’ health. The new health programme for the period up to 2020 was published and the institutions started to discuss the new air quality package proposed at the end of last year by the Commission.   Medical devices under the spotlight   EU Policy Advisor Roberta Savli took part in the 7th Patients-MedTech

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Photos from World COPD Day 2013

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Minimum Standards of Care for COPD Patients in Europe

EFA is excited to release its second book concerning COPD in Europe, the EFA Book on Minimum Standards of Care for COPD patients in Europe, which was produced as a result of the EFA COPD Project. The book began as an effort by EFA's COPD Working Group members, who assembled a list of common gaps in COPD patient care in their countries. Enough overlap was seen that in the spring and summer of 2013, 16 countries with EFA members and partners were surveyed

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EFA Member News

EFA’s Alignment Meeting with the Maltese Asthma Society On the 28th of September, EFA’s President Breda Flood along with Executive Officer Susanna Palkonen and Membership & Programme Officer David Brennan had the opportunity to meet with the representatives of the Maltese Asthma Society (MAS) in St Julian’s, Malta. Since EFA does not have a member in Malta yet, this meeting served to present both organizations’ goals and objectives in

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EFA Meet and Greet the EU Event

EFA “Meet and Greet the European Union Institutions 2013” Training On 15th and 16th of October, EFA office in Brussels organised the 4th edition of the Meet and Greet the European Union Institutions training. This year’s training was attended by thirteen members from ten countries. The objective of the training is to introduce the European Union – its history, decision making process and health related issues in particular – to EFA members.

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EFA in Meetings

EFA was invited to allergologists’ brainstorming and guidelines committee meetings Our partner, European Academy of Allergology and Clinical Immunology is getting up to speed on involving patient representatives in their planning and activities. EFA President Breda Flood and Susanna Palkonen attended an intensive brain-storming and team building meeting of the EAACI Executive Committee in Malta 27th of September. The following day Susanna presented

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