Author Archive of Isabel

Press Release: EP Interest Group on Allergy and Asthma

Launch of new European Parliament Interest Group on Allergy and Asthma Brussels, 25 March, 2015 – Members of the European Parliament (MEPs), patients, doctors have joined forces in an Interest Group to take actions on allergy and asthma in Europe that will be launched on March 25 at the European Parliament. Under the leadership of MEP Sirpa Pietikäinen (Finland, EPP), the Interest Group on Allergy and Asthma will strive to give a clearer policy

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Press Release: Beware of Allergy campaign

FOOD ALLERGY: a burden carried by more than 17 million of Europeans In Europe, 1 out of every 20 children has one or more food allergies In the last decade, the cases of food allergies have doubled and the number of hospitalisations caused by severe allergic reactions has increased 7-fold More awareness and education is needed to improve management of food allergies and anaphylaxis With more than 17 million of Europeans suffering from allergies1,

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Press Release: International Women’s Day

Take action to decrease the burden of asthma in women   Brussels, 8 March 2015, INTERNATIONAL WOMEN’S DAY – In the European Union women live on average five years longer than men (1) but report having lower satisfaction with their health status.  The quality of life and wellbeing women experience as they age is not always satisfactory. Chronic diseases are responsible for a large part of illness, disability and mortality in the EU, accounting

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Chronic diseases in Europe (February 2015)

February has been an enriching month in the fight against chronic diseases prevalence and burden in Europe: two main events have been organised in The Hague and Brussels with the support of the European Commission and a book on “Assessing chronic disease management in European health systems” was published by the European Observatory on Health Systems and Policies. European is ageing resulting in an increase in chronic diseases: today 80% of

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EFA Members News (February 2015)

Patient-led initiatives not only bring meaningful results for patients, but also broader support. In February, EFA Dutch Member Longfonds was awarded with a significant donation to fund their e-nose project; Italian Federasma e Allergie developed an app for asthma patients; Swedish Astma och Allergi Föndurbet created a travel food allergy, Allergy UK prepares for its annual conference and EFA was delighted to visit the British Lung Foundation. EFA

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EU Projects update (February 2015)

EFA’s role in EU funded research projects is to provide the patients persepective to the research process and to ensure that patietns are updated on the latest project news and developments. In February, we have contributed to different stages of the research and dissemination activities of MyAirCoach, U-BIOPRED, MeDALL and EARIP. MyAirCoach update On February 12, the European Commission published the first news on myAirCoach (Analysis, modelling

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New air quality guidelines (February 2015)

Air quality is an increasingly worrying topic both at EU and global level. The World Health Organisation prepares a resolution that takes stock of air pollution’s harm to human health, the European Union presents the guidelines for better Indoor Air Quality in schools (result of the SINPHONIE project) and the air quality community will discuss about pollen in an EU conference in March, key issues for people with allergy and respiratory diseases.

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EU Policy update (February 2015)

In February the European Patients’ Forum (EPF) issued a position on patients’ discrimination across Europe and launched a consultation on cross-border health. In addition, the Norwegian Government expressed its willingness to introduce plain packaging for tobacco products. EPF position on discrimination in healthcare The European Patients Forum (EPF) has issued a Position Paper on Discrimination in Healthcare. The paper presents various forms

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EFA in Events (February 2015)

February was full of inspiring events, like a field visit to Finland to see how e-health supporting care is implemented and the courageous patients that took part at the rare diseases event in Brussels. We participated the first meeting of the eTricks Ethics Board and in the discussions to form an EU Disease Prevention coalition. Smartcare for older people and people with multiple chronic diseases The User Advisory Board – patients, nurses, health

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EFA Networking Day 2015

Starting in 2011, EFA began to integrate an optional event, called the Networking Day following the AGM, to provide EFA members with the opportunity to get to know each other better and collaborate more often. In 2015 the Networking Day will take place on 19 May, in Málaga, Spain, one day after the AGM 2015 Málaga.  The Networking Day 2013 aims at providing the basis for sharing best practices, projects and ideas among members, planning future

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EFA Annual General Meeting 2015

Each year the EFA organizes an Annual General Meeting in a city corresponding to an EFA member organisation, who volunteers to assist in hosting the event. AGM Málaga 2015 for EFA Members and Patient Group Observers The next AGM will take place in Spain and will be co-hosted by the Spanish Federation of  Respiratory Diseases Associations (FENAER) in Málaga, Spain and will take place on the 18th May 2015. All EFA members are invited to participate,

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EFA Projects update (January 2015)

Our contribution on allergy action at national level was presented to the Italian Ministry of Health by a delegation formed by patients, doctors, and researchers and our work to enable air travel with medical oxygen for COPD patients continued through a meeting with the German authorities. Allergy Awareness Project – Meeting the Italian Health Ministry On December 19, EFA Member FederASMA e ALLERGIE Onlus met in Rome with the Italian Ministry

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EFA eZine Archive