Author Archive of Jan

EFA Events

Baltic Alignment Meeting in Vilnius On 15 February, the Lithuanian capital of Vilnius will be hosting EFA’s meeting with patient associations of Baltic countries representing patients with allergy, asthma and COPD. The objective is to establish or renew relationship between EFA and these organisations from Estonia, Latvia and Lithuania. The EFA will be represented by Board Member Lina Buzermaniene, David Brennan and Jan Meissner. The agenda will

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EU Project Update

EARIP Consortium Meets and defines steps towards European Asthma Research and Innovation Partnership On January 21st, EFA Executive Officer Susanna Palkonen along with EFA Programme and Membership Manager David Brennan attended a meeting in London at the Asthma UK headquarters with other consortium members of the European Asthma Research and Innovation Partnership (EARIP). At the meeting, each Work Package (WP) presented its current progress and

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EFA in 2014

Dear Friends, Colleagues and Supporters of EFA, I am happy to inform that this year EFA is receiving an operational grant from the European Commission Health Programme, covering 60% of our core activities as an organisation. We are very grateful and take it as a recognition that it is important to represent people with allergy, asthma and COPD at the European level, and the participation of national patient groups in EU policy making. At the same

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EU Policy Intern

EFA European Federation of Allergy and Airways Diseases Patients’ Associations  is looking for an EU Policy Intern (m/f) To start in March 2013   EFA is the network of European patients’ organisations that represents people with allergy, asthma and chronic obstructive pulmonary disease (COPD) at European level. EFA is dedicated in making Europe a place where people with these diseases have the right to best quality of care and safe environment,

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EFA Projects Intern

EFA European Federation of Allergy and Airways Diseases Patients’ Associations is looking for an EFA Projects Intern (m/f) To start in March 2014   EFA is the network of European patients’ organisations that represents people with allergy, asthma and chronic obstructive pulmonary disease (COPD) at European level. EFA is dedicated in making Europe a place where people with these diseases have the right to best quality of care and safe environment,

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Joint EAACI – EFA Press Release on EP Written Declaration

177 Members of the European Parliament call for coordinated European action on allergies 24.1.2014 Brussels, Belgium Three months ago, 11 Members of the European Parliament (MEPs) proposed a draft Written Declaration1  on recognising the burden of allergic disease, calling upon the Commission and Member States to recognise the burden of allergic disease and develop policy tools to combat this illness. At the end of the consultation period, the Declaration

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EARIP

European Asthma Research and Innovation Partnership (EARIP) is a project funded by the 7th Framework Programme (FP7). Europe has around 30 million people suffering from asthma, whose treatment costs about €20 bn annually. Productivity lost through poor asthma control in Europe is estimated to be €9.8 bn per year. Since European countries are among those which are most affected by prevalence of asthma in adults, this project aims to reduce

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Dr. Valovirta on Finnish Asthma and Allergy Programmes

Dr. Erkka Valovirta (EFA Honorary Member and Medical Adviser) speaking about the Finnish Asthma Programme 1994 - 2004 and the Finnish Allergy Programme 2008 - 2018. For more information, please visit http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2104683/ & http://www.who.int/gard/countries/Allergy%202008-2018%20Program.pdf

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Member News

FENAER’s Activities in December On Thursday the 5th of December, FENAER participated in a meeting along with other members of the Spanish Patients Forum to advise on the consequences of budget cuts brought by the government of Mariano Rajoy in Spain and how it could affect patients with chronic diseases. It was agreed the measures are provoking “many sick people” to abandon their treatments as they can no longer cover their costs. For example,

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EU Policy Updates

EU Ministers of Health discussing patients’ safety and health  On December 10, in the framework of the Employment, Social Policy, Health and Consumer Affairs (EPSCO) configuration of the Council of the EU, the Health Ministers of the 28 European Union Member States reviewed the state of play in on-going legislative dossiers, namely the package on Medical Devices and In Vitro Diagnostic Medical Devices, the negotiations between the co-legislators

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EFA in Meetings

Innovation in Life Sciences and Health – Vilnius Innovation Forum On 5th December, EFA Board Member Lina Buzermaniene attended Vilnius Innovation Forum, where she participated in the session dedicated to Innovation in Life sciences and Health. Lina, as a Member of Ethics Board of the IMI U-BIOPRED project, contributed with a short presentation as the patient representative to the panel discussion on Public private collaborations for a stronger

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EU Air Package Proposed

On December 18, the European Commission adopted the much expected EU air package. The review of the EU air strategy began in early 2011 and was expected to be published earlier this year, which was identified by the European Commissioner for Environment, Janez Potočnik, as the EU Year of Air. The constant delays in proposing the measures pushed several Members of the European Parliament (MEPs) from across the political spectrum to urge the Commission

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