eNews

EFA Patients took the floor at the ERS Congress 2014

Among the 22,000 delegates that assisted to the latest European Respiratory Society Congress (ERS) that took place from 6 to 10 September in Munich, 28 European and national patients’ organisations participated, represented by 44 individuals, many of them were patient representatives from the EFA network. As in past editions, the ERS proved to be a perfect occasion to share patients’ views with other international organisations, healthcare professionals

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EU Policy update – September 2014

Fundamental changes in the new European Commissioners College In September the new European Commissioners’ team was designated by the new President of the Commission, the Luxembourgish Jean Claude Junker. Before the new Commissioners’ College start sworking from 1st of November, the designated candidates will go through the European Parliament’s hearings and approval procedure. The new Commission present essential changes of interest for EFA’s

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EFA Member news – September 2014

EFA met with the German Allergy and Asthma Association On September the 10th, EFA met with representatives of the German Allergy and Asthma Association - Deutscher Allergie- und Asthmabund e.V. (DAAB) to share current activities and explore potential collaboration in the future. The organization is the eldest European patient organization focused on allergy and asthma, already existing since 1897 and has developed a wide collection of successes over

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EU Projects update – September 2014

EARIP in action More than 20 partners’ representatives gathered during the ERS Congress to present Work Packages evolution of European Asthma Research Innovation Partnership (EARIP) and several workshops held by EARIP on fundamental issues in asthma care, such as diagnosis and self-management tools. EFA’s Susanna Palkonen presented in the partners meeting on the status of the literature review on national asthma programmes, which has been drafted

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EFA in events – September 2014

EMA Patients’ and Consumers’ Working Party In the last Patients’ and Consumers’ Working Party meeting that took place in London on September 16, EFA, represented by Lina Buzermaniene, was pleased to witness that the European Medicines Agency (EMA) will  involve patients into the Committee for Medicinal Products for Human Use (CHMP) work after several formal requests from patient organisations. For the time being, patients involvement into

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Press Release: Better food labelling is key to save lives

Better food labelling is key to save lives from food allergy reactions in Europe EU measures on food labelling will improve allergen information but challenges remain Brussels, 2nd October 2014 –Ahead of the entry into force of the new EU food information to consumers regulation, key representatives from the EU institutions, national food safety and health authorities, healthcare practitioners, food industry and patients met at the European Parliament

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New European Parliament supports EFA Manifesto

In October 2013, EFA and its Members launched a Manifesto for the European Parliament elections, that reached many and moblised more than 1,000 people from 29 different countries to publicly support EFA’s policy asks. More than 40 candidates to the elections visited the dedicated website (http://manifesto.efanet.org/) signed and 24 were actually elected. EFA wishes to warmly thank all signatories that supported our EFA Manifesto to improve health

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EU Policy update – June 2014

Environment Council discussions on air quality legislation The debates on the clean air package are ongoing. As a background, the European Commission proposed a new package on air quality, in December 2013, including: (1)   a new clean air programme for Europe aimed to ensure that existing standards of air quality are met in the short term, and new objectives are set for the period up to 2030; (2)   a revised National Emission Ceilings Directive

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EFA is growing: AGM 2014

EFA’s Annual General Meeting and Networking Day in Brussels EFA’s 2014 Annual General Meeting (AGM) took place on the 16th of June in Brussels next to the European Parliament at the Radisson Blu EU hotel. This year’s AGM welcomed three new members to EFA from Croatia, Ireland and Latvia. In addition to these new members, EFA also welcomes back Asthma UK. The members joining EFA in 2014 increase our representation to a total of 38 members in

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EFA’s Strategic Planning Session 2014

During the afternoon of June 16th, we held Strategic Planning Workshop with members to kick-start the process for developing EFA Strategic Plan 2015-2020. Members considered EFA’s strengths, weaknesses, opportunities and threats (SWOT), ideal added value of EFA to their organization and developed in three breakout groups EFA’s broad strategic goals and key actions for these goals (1) Access to good quality care, (2) Safe environment and (3) Participation:

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EFA in meetings – June 2014

2014 EAACI Annual Congress On 7-11 June, EFA was actively involved in the European Academy of Allergy and Clinical Immunology (EAACI) Annual Congress celebrated in Copenhagen. EFA’s vice president Christine Rolland presented the patients’ perspective from an ethical dimension. Enabling patients’ involvement throughout the research process is vital to better understand the impact of research and treatments protocols on their quality of life

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EFA Members’ News – June 2014

Allergy awareness campaign in Copenhagen To engage public interest prior to the EAACI Congress, Astma-Allergi Danmark launched the campaign “Trapped by Allergy”, where two individuals were trapped in a box placed in front of the Danish Parliament in Copenhagen. The ‘prisoners’ attracted attention and handed out flyers to passers-by with information on allergy. EAACI made a presentation of the campaign. [caption id="attachment_5407" align="aligncenter"

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