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Press Release: EU Air Quality policy withdrawal

Patients and doctors urge to put EU air quality policy back on the agenda Brussels, 17th December 2014 – The European Commission presented yesterday at the European Parliament plenary in Strasbourg, its 2015 working plan. The new plan withdraws the proposal for the revision of the National Emission Ceilings Directive, a key EU legislative file aimed at regulating air quality by setting maximum emission levels for six main pollutants - PM, SO2,

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World COPD Day 2014

"Air travel for patients requiring oxygen should be facilitated, not hindered", says EFA President Breda Flood More than 3.5 million people need medical oxygen in Europe and many are advised by their doctors to move to regions with temperate climates that will ease the symptoms of their disease. However the free movement of people around the EU Member States is a nightmare for severe respiratory patients. EFA has documented that air travelling with

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EU Policy update (November 2014)

European Commission structural changes affecting public health The new European Commission has started its work as from the 1st November launching the final decision on the organisation of responsibilities of the Members of the Commission. According to this decision, the Directorate General Health and Consumers (SANCO) will be led by the Health and Food Safety Commissioner, Vytenis Andriukaitis, who will be responsible for relations with: The Community

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EFA in Events (November 2014)

Meetings with the European Medicines Agency On the 25th November, the European Medicines Agency (EMA) organised a training session for patients and consumers involved in EMA activities. EFA was represented by Junior EU Policy Officer Jelena Malinina and EFA Member and President of the Association of Parents of Asthmatic Children of Zagreb Silvio Šanko. The training provided a comprehensive overview of the EMA activities, patients’ involvement

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EFA Members news (November 2014)

As part of our Membership strategy, in October and November we met with potential members in Hungary, associations representing people with allergy and respiratory diseases in the United Kingdom, and had the opportunity to discuss patient representation in Turkey. The purpose of these meetings is two-fold: expand EFA’s representativeness an thereby the allergy, asthma and COPD patient voice at the European level and aligning at the national level

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Capacity Building Project update

Meeting with RESPIRA, Portuguese EFA Member On November 15, EFA representatives travelled to Lisbon to meet with 14 members of EFA’s member organisation RESPIRA, including recently appointed EFA Board Member Isabel Saraiva. RESPIRA is the national Portuguese Association of people with Chronic Obstructive Pulmonary Disease (COPD) and other Chronic Respiratory Diseases that is run by 10 volunteers. This young organization, founded in 2007, aims

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EU Air Quality at stake

 Latest developments on the Clean Air Package negotiations While the process of preparation of the European Commission work plan for 2015 is taken place now, EFA, together with its long-standing partners Health and Environment Alliance (HEAL) and the European Respiratory Society (ERS), has addressed a public health letter to the President of the Commission Juncker, to the First Vice-President Timmermans and to the Commissioners for Health, Andriukaitis,

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EFA Patients took the floor at the ERS Congress 2014

Among the 22,000 delegates that assisted to the latest European Respiratory Society Congress (ERS) that took place from 6 to 10 September in Munich, 28 European and national patients’ organisations participated, represented by 44 individuals, many of them were patient representatives from the EFA network. As in past editions, the ERS proved to be a perfect occasion to share patients’ views with other international organisations, healthcare professionals

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EU Policy update – September 2014

Fundamental changes in the new European Commissioners College In September the new European Commissioners’ team was designated by the new President of the Commission, the Luxembourgish Jean Claude Junker. Before the new Commissioners’ College start sworking from 1st of November, the designated candidates will go through the European Parliament’s hearings and approval procedure. The new Commission present essential changes of interest for EFA’s

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EFA Member news – September 2014

EFA met with the German Allergy and Asthma Association On September the 10th, EFA met with representatives of the German Allergy and Asthma Association - Deutscher Allergie- und Asthmabund e.V. (DAAB) to share current activities and explore potential collaboration in the future. The organization is the eldest European patient organization focused on allergy and asthma, already existing since 1897 and has developed a wide collection of successes over

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EU Projects update – September 2014

EARIP in action More than 20 partners’ representatives gathered during the ERS Congress to present Work Packages evolution of European Asthma Research Innovation Partnership (EARIP) and several workshops held by EARIP on fundamental issues in asthma care, such as diagnosis and self-management tools. EFA’s Susanna Palkonen presented in the partners meeting on the status of the literature review on national asthma programmes, which has been drafted

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EFA in events – September 2014

EMA Patients’ and Consumers’ Working Party In the last Patients’ and Consumers’ Working Party meeting that took place in London on September 16, EFA, represented by Lina Buzermaniene, was pleased to witness that the European Medicines Agency (EMA) will  involve patients into the Committee for Medicinal Products for Human Use (CHMP) work after several formal requests from patient organisations. For the time being, patients involvement into

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