eNews

EU projects update

  EFA attends the 2014 AirPROM Annual Meeting in Barcelona   The annual meeting for Airway Disease Predicting Outcomes through Patient Specific Computational Modelling (AirPROM) took place on April 24-25th with EFA staff members Susanna Palkonen, David Brennan and Marina Schmitz in attendance. The project, which began in 2011, seeks to create digital and physical models of airway systems of people with asthma and chronic obstructive pulmonary

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EFA in meetings

  European Conference on Tobacco or Health   As announced in March, EFA was present in the sixth European Conference on Tobacco or Health in Istanbul (March 25-29). Jointly organised by the Turkish Association for Cancer Research and Control and the National Coalition on Tobacco or Health under the auspices of the Association of European Cancer Leagues (ECL), the congress gathered more than 400 tobacco control advocates, policy makers,

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The Third Health Programme (2014-2020)

The European Union launches a multiannual health framework with a 30% budget increase The European Parliament and the Council have recently adopted the Third Health Programme for the period 2014-2020. The Programme, presented in Brussels on April 11, will be the main tool to support the implementation of EU legislation on health and will finance projects and not-for-profit organisations aimed at enhancing health in Europe. Built on the experience

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EFA’s EU Innovative Research Projects event

EFA held a public event on June 17th entitled “Does innovative research for allergy and respiratory disease in the European Union benefit patients?” The examples of AirPROM, EARIP, MeDALL and U-BIOPRED presented four ongoing EU funded projects where patients are actively participating and should stand to benefit from their outputs. The representatives and patient representatives from each of these EU projects had the opportunity to present the

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EU patient empowerment

This month EFA features activities surrounding patient EU patient empowerment. It features EFA’s presentation of patient involvement within the EU project U-BIOPRED at a conference on patient empowerment and health literacy, the publication of EFA’s event report on its EMA workshop and an invitation for patients to join EUPATI. EFA presents U-BIOPRED as model for patient involvement in clinical trials at the 2014 Careum Conference and participates

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EFA in meetings

This month EFA President spoke about asthma at IMI staff meeting, EFA met with the US COPD Coalition on collaboration as well as European Disability Forum. Other meetings are highlighted in other sections of this ezine.   EFA president tells about asthma at IMI event The Innovative Medicines Initiative (IMI) invited EFA’s Breda Flood, as a patient and Scott Wagers, who is among others involved with the IMI funded research project U-BIOPRED,

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EFA Member News

News from EFA’s members this month includes worrying details of legislative changes in Belgium which could negatively impact EFA’s members in the country and an update from EFA’s members working on national allergy and asthma programmes in their countries.   Prévention des Allergies: Meeting with EFA in Brussels highlights concerning changes for the representation of Belgian patients with allergy, asthma and COPD On March 13th, Suzanne

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Europe for Patients at EP Elections

The European Parliament elections are approaching. In less than two months European citizens will be called to vote on their future representatives in Europe. EFA continues its efforts to share EFA Manifesto within stakeholders and policy-makers and to get as much support as possible to improve the health and well-being for future generations of people with allergy, asthma and COPD and prevention.   EFA Manifesto is for Healthier Europe. What else?

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EU Policy update

In March, the Tobacco Products Directive was finally adopted by the Council and ended a process started more than 1 year ago to protect Europeans’ health. The new health programme for the period up to 2020 was published and the institutions started to discuss the new air quality package proposed at the end of last year by the Commission.   Medical devices under the spotlight   EU Policy Advisor Roberta Savli took part in the 7th Patients-MedTech

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Tobacco Products Directive

Last word of the European Parliament on the tobacco products directive On February, 26 the plenary of the European Parliament (EP) voted on the text of the revised directive on the manufacture, presentation and sale of tobacco and related products. The Members of the European Parliament (MEPs) accepted the compromise reached last December by the rapporteur of the directive in the European Parliament, Mrs McAvan MEP, with the then Lithuanian Presidency

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EFA Manifesto for EP Elections

The European Parliament elections are fastly approaching and through this information channel, we call on all the readers of our Newsletter to take a piece of responsibility into their hands and contact the current Members of the European Parliament (MEPs) and future candidates to present EFA’s Manifesto to help to ensure that the needs and concerns of people with allergy, asthma and COPD are put on the top of the political agenda. EFA, in collaboration

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EFA Training on EMA

EFA training for patient experts on allergy, asthma and COPD on getting involved with the European Medicines Agency (EMA) As we informed you in the last issue of our eZine, EFA planned to host on 18th of February the first edition of what we hope to be annual event for patient experts on allergy, asthma and COPD on getting involved with the European Medicines Agency (EMA). 15 patient experts from 11 European countries were present in the beautiful

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