eNews

EU Asthma Projects

EFA Partners in the New Project (EARIP) that Kicks off in September 2013 An exciting new European Asthma Research and Innovation Partnership (EARIP), led by Asthma UK and funded by the EU Research Programme FP7, has EFA excited after its successful kick off meeting in Barcelona on Monday, September 9th which brought together consortium members for the first time to discuss the project and its aims. EARIP seeks to lay foundations for a coordinated

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EFA Members News

Cecilia masters her asthma The Spanish association FENAER is preparing an English edition of the story "Cecilia masters her asthma". This story is written for boys and girls with asthma, as well as for their parents and caregivers. It teaches a simple breathing and relaxation technique via a children’s story; in order to make learning this technique easier. The book is accompanied by a CD that includes a recording of the story; in order to make

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EU Policy Updates

Adoption of a strong Tobacco Products Directive in danger! The European Parliament rescheduled the debate and the vote on the Tobacco Products Directive which should have taken place in September 2013. After several Members of the European Parliament (MEPs) complained that they did not have enough time to go through the report and German MEPs declared they had to focus on German national elections, the tobacco agenda was moved to the October session

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Meet & Greet the EU Institutions

EFA Members will Meet & Greet the European Institutions in October! Twelve EFA members will have the opportunity to come to Brussels in October 2013, meet MEPs from their countries and learn more about decision making processes at the European level. With the "Meet & Greet" training, EFA lets its members to dig deeper into the legislative process and understand better current issues in the area of health. EFA secretariat in Brussels has been

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Vote on TPD postponed

The vote on the Tobacco Products Directive was rescheduled for 8 October. EFA, together with other health campaigners, is deeply concerned about the delay tactics of the tobacco industry and what a delay of the Directive would mean for public health in Europe. Check out the joint statement of SFP, ASH, Cancer Research UK, EHN and ERS - here.

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EU Policy Updates

The ENVI Committee protected health of EU citizens, not interests of the tobacco industry The ENVI Committee, the leading Committee responsible for the Tobacco Products Directive at the European Parliament, stood up to the strong tobacco lobby and sided with European citizens. In July, the members of the ENVI Committee endorsed amendments introducing the pictorial warnings covering 75% of the cigarette’s pack (both front and back), a ban on menthol

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Priorities of EU Presidency

Tobacco Products Directive, Clinical Trials and Medical Devices - those are the key legislative dossiers Lithuania aims at making progress in during their Presidency of the Council of the European Union. As Lithuanian Ministers of Health and Environment stressed out to Members of the ENVI Committee of the European Parliament, Lithuania wants to follow in the previous Presidency’s efforts and move forward with important legislation before the upcoming

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EFA Member News

ASI Welcomes Minister for Health’s Commitment to Tobacco-Free Ireland by 2025 The Asthma Society of Ireland has welcomed the Minister for Health and Children James Reilly TD’s commitment to a tobacco free Ireland by 2025. Ireland has the fourth highest prevalence of asthma worldwide and 470,000 people in Ireland suffer with the condition, meaning everyone in Ireland knows someone who has asthma. Put another way, asthma affects one in ten Irish

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EFA in Meetingshttp://www.efanet.org/efa-in-meetings-9/

The GAAPP board elections - the new president is a patient! EFA presented the Allergy Awareness Project at GARD EFA attends the EPF’s Young patients’ seminar ‘EMPATHY’ EFA at Workshop on Food Allergies in Milan   The GAAPP board elections – the new president is a patient! On June 22 2013 the Global Allergy and Asthma Patient Platform (GAAPP), of which EFA is a member, Board elections took place during the EAACI-WAO Congress in Milan.

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EFA Projects Round-Up

EFA’s survey on minimum standards for COPD care in Europe completed This year, EFA conducted a survey to evaluate the minimal standards of care for COPD patients in Europe as viewed by the patients themselves. EFA members and other patient organisations in different European countries were asked to complete a questionnaire concerning the disease in their country. On the basis of information collated EFA is now preparing its publication on Minimal

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COPD as a Priority Disease

COPD finally declared a priority disease by WHO Chronic Obstructive Pulmonary Disease (COPD) was for the first time listed as one of the priorities in the latest World Health Organisation’s (WHO) "Priority Medicines Update Report for Europe and the World". EFA welcomes this decision as it is a big step forward in getting more political recognition and attention to a disease which affects 44 million people in Europe and is expected to become the

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EPF’s clarifications to the Guardian’s article on CTrials data

Brussels, 22 July 2013 – The European Patients’ Forum (EPF) would like to provide some clarifications regarding the article released today on The Guardian’s website and entitled “Big pharma mobilising patients in battle over drugs trials data”. We denounce the accusation that “an army of patients groups” are being “mobilised by Pharma to lobby against plans to force companies to publish secret documents on drugs trials”. On the

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