eNews

EFA Projects Round-up

EFA COPD Project – Minimum Standards for COPD Care for Europe! In May, EFA office finalised the new questionnaire outlining the guidelines for minimum standardisation of care for COPD patients in Europe. The questionnaire was sent to all EFA members representing COPD patients who are kindly asked to complete the survey for final evaluation. Our partners ERS, Almirall, Boehringer Ingelheim, Chiesi and Novartis can support EFA members on national

Read More
The Tobacco Debate is Heating Up!

Amendments to the proposed Tobacco Product Directive tabled More than 1360 amendments to the new Tobacco Product Directive, which is currently being discussed at the European Parliament, were tabled in May 2013. EFA is going to have a look at all of them and advocate for those which will help to put people off smoking and relieve the burden for patients already suffering from respiratory diseases. Amendments were discussed on May 30 at the ENVI Committee

Read More
EU Policy Updates

Tobacco Product Directive On May 30 the ENVI Committee discussed amendments to the proposed Tobacco Product Directive, which is currently being discussed at the European Parliament. More than 1360 amendments were tabled and EFA is going to have a look at all of them and advocate for those which will help to put people off smoking and relieve the burden for patients already suffering from respiratory diseases. The proposal was also discussed at the

Read More
EFA in Meetings

Impact of the economic crisis on EU citizens’ access to medicines Can EU citizens afford their medicines? That was the main topic of a full-day event organised by the European Public Health Alliance (EPHA) at the European Parliament on May 16. The conference hosted by MEP Alejandro Cercas “Can EU citizens afford their medicines? The economic crisis and access to medicines in Europe” attracted several stakeholders, policy-makers and patients’

Read More
Expertise in Allergy At Risk!

EFA hands over its Allergy Alert Paper On the World Asthma Day of May 7, 2013 the European Federation of Allergy and Airways Diseases Patient’s Associations (EFA) handed over an Allergy Alert Paper to the European Commission and the ENVI Committee of the European Parliament. This paper prepared together with the European Academy of Allergology and Clinical Immunology (EAACI), the European Union of Medical Specialists (UEMS) and Allergic Rhinitis

Read More
New free allergy track app launched

Allergy Track is a new mobile app which helps people suffering from allergy to stay on track with their allergic and respiratory symptoms during critical periods and helps measuring the impact of their allergy. It has been developed by Stallergenes with input from the European Federation of Allergy and Airways Diseases Patients Associations (EFA) in a non-profit way. This mobile app follows the evolution of allergic disease and enables patients to:

Read More
Policy updates

The 7th Environmental Action Programme In April the ENVI committee of the European Parliament adopted amendments to the 7th Environmental Action Programme. According to the committee the EU should develop a strategy for indoor air quality and respect WHO indoor and outdoor air quality guidelines. EFA advocated for and welcomes this decision. A common comprehensive and urgent response is needed based on the recognition that outdoor and indoor air

Read More
EFA in meetings

EFA participated in the EUPATI 2013 Conference in Rome On the 19th of April patients' advocates, academia and other stakeholders met at the EUPATI 2013 Conference (European Patients Academy on Therapeutic Innovation) focused on real world healthcare hot topics. At the meeting EFA was represented by Board Member Lina Buzermaniene. EUPATI projects aims at building patients' learning platform in research and development (R&D). It is providing tools

Read More
New symbol for medicines

New website for medicines under additional monitoring launched The European Medicines Agency (EMA) has introduced a new webpage related to medicines under additional monitoring. Patients and healthcare professionals can always check whether a certain medicine is subject to additional control on the Agency's website which will be reviewed and updated every month. Medicines under additional monitoring will have a black inverted triangle displayed in

Read More
EFA Projects round-up

EFA Oxygen Harmonisation Project In the last two months EFA sent more than 50 questions in different European languages to the European Aviation safety Agency (EASA) regarding the use of oxygen on planes. EASA is now willing to help EFA to address this issue. However, since the organisation deals mainly with safety issues, EFA will have to address the European Commission responsible for rights of passengers. In the meantime, EFA continues collecting

Read More
Member news

EFA “Meet and Greet the European Union Institutions 2013” Training  This year’s “Meet and Greet the European Union Institutions” training combines basic and advanced training to participants. All members that are willing to participate should fill in the registration form by June, 10th 2013. We will confirm your participation by then as we only have 12 places available that will be allocated on the first came, first served basis taking

Read More
Pollen monitoring in the EU NOW

Real-time information on allergenic pollen in the EU is not covered by EU legislation It is estimated that more than 24 % adults (80 million) and up to 40 % children in Europe are suffering from various allergies triggered and aggravated in large measure by airborne allergenic pollens. However, in contrast to air pollutants, there is no obligation to monitor the pollen situation in the European Union and the European Commission has no intention to

Read More

EFA eZine Archive