News

EU Projects update (February 2015)

EFA’s role in EU funded research projects is to provide the patients persepective to the research process and to ensure that patietns are updated on the latest project news and developments. In February, we have contributed to different stages of the research and dissemination activities of MyAirCoach, U-BIOPRED, MeDALL and EARIP. MyAirCoach update On February 12, the European Commission published the first news on myAirCoach (Analysis, modelling

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New air quality guidelines (February 2015)

Air quality is an increasingly worrying topic both at EU and global level. The World Health Organisation prepares a resolution that takes stock of air pollution’s harm to human health, the European Union presents the guidelines for better Indoor Air Quality in schools (result of the SINPHONIE project) and the air quality community will discuss about pollen in an EU conference in March, key issues for people with allergy and respiratory diseases.

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EU Policy update (February 2015)

In February the European Patients’ Forum (EPF) issued a position on patients’ discrimination across Europe and launched a consultation on cross-border health. In addition, the Norwegian Government expressed its willingness to introduce plain packaging for tobacco products. EPF position on discrimination in healthcare The European Patients Forum (EPF) has issued a Position Paper on Discrimination in Healthcare. The paper presents various forms

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EFA in Events (February 2015)

February was full of inspiring events, like a field visit to Finland to see how e-health supporting care is implemented and the courageous patients that took part at the rare diseases event in Brussels. We participated the first meeting of the eTricks Ethics Board and in the discussions to form an EU Disease Prevention coalition. Smartcare for older people and people with multiple chronic diseases The User Advisory Board – patients, nurses, health

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EFA Projects update (January 2015)

Our contribution on allergy action at national level was presented to the Italian Ministry of Health by a delegation formed by patients, doctors, and researchers and our work to enable air travel with medical oxygen for COPD patients continued through a meeting with the German authorities. Allergy Awareness Project – Meeting the Italian Health Ministry On December 19, EFA Member FederASMA e ALLERGIE Onlus met in Rome with the Italian Ministry

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MyAirCoach update

MyAirCoach kick-off meeting: the quest for an asthma and COPD self-management tool In January, the Centre for Research and Technology Hellas, the project coordinator, hosted the kick-off meeting of MyAirCoach project in Thessaloniki, Greece. The project, funded by EU Programme Horizon 2020, brings together 12 research centres, academia, patient organisations and innovative SMEs from all over Europe, including EFA and Asthma UK. The meeting was an

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m-Health consultation

Mobile health applications are quickly evolving topic that needs attention regarding patient privacy, security and safety legislation while giving an interesting opportunity to support self-management and daily life with allergy, asthma and COPD. The EU and public health community are developing the future EU policies to regulate mobile health. Limited patient input in to the EC consultation on Mobile Health In July 2014, we took part in the European

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EU Policy update (January 2015)

2015 has started with new leadership to boost patients' access to healthcare, Latvia taking over the Presidency of the European Union and a freshly approved European Commission Work Programme. In this article you will find Latvia’s plans in the field of health, what happened with the clean air legislation in Europe, and the best strategies to stop non-communicable diseases, reduce tobacco consumption and medical devices materials are safe to use.

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EFA in Events (January 2015)

Apart from the fantastic launch of a Parliament Interest Group on Access to Healthcare, January was full of opportunities to link up patients with other communities through a training for primary care doctors in Italy, a symposium on allergy with educational professionals in France, or our endorsement to the European Respiratory Society campaign launch in Brussels. Training for primary care doctors on patients’ needs [caption id="attachment_6501"

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EFA Members news (January 2015)

Patients took the floor in national televisions in January. Allergy UK closely worked with BBC to feature the anxiety of parents of little allergic children and Bulgarian ABBA shown the patients discomfort with the Government plans on reimbursement reduction for COPD treatments.   The Finnish Allergy and Asthma Association launches a fundraising campaign Elderly people living with asthma are at the heart of the latest fundraising campaign of

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Highlights 2014

This year has been of special important for EFA, not only our membership grew with three new members from Croatia, Ireland and Latvia, but also we welcomed new faces in our team. 2014 has been a year of significant developments at the European arena. The biggest change is related to the election of the new European Parliament and the new European Commission for the term 2014-2019. To ensure the needs and asks of asthma, allergy and COPD patients

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e-Cigarettes policy guide

As the Tobacco Products Directive will be soon implemented at national level, EFA and ENSP we have developed a guide for EU Member States with recommendations on the regulation of electronic cigarettes in their countries. Do not miss it! Earlier this year, the European Union adopted the new directive on the manufacture, presentation and sale of tobacco products (2014/40/EU). Article 20 of this directive regulates electronic cigarettes in the European

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