News

EFA/ECC event to mark the 2013 World COPD Day

European Federation of Allergy and Airways Diseases Patients Associations and the The European COPD Coalition   Under the auspices of the The EU Lithuanian presidency   Invite you to celebrate:   World COPD Day 2013:   What role for diseases and patients in shaping Horizon 2020?   A COPD case study of patient involvement   World COPD Day: it’s not too late…. Or is it?   Residence Palace, Brussels Thursday 28 November 2013     8.30

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EAACI and EFA Joint Statement on EP Written Declaration on allergies

EAACI and EFA Joint Statement: Written Declaration by the European Parliament on allergies Europe’s Leading Patient and Academic Groups urge the EU to Tackle Burden of Allergic Disease Proposed European Parliament Written Declaration calls for coordinated European action 23.10.2013 Brussels, Belgium - Allergic diseases affect over 150 million Europeans, of whom some are affected by severe, debilitating diseases, but these are neglected as a public

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Media Alert: EFA Manifesto for the EP election 2014

Patients with allergy and respiratory diseases ask to vote for health and prevention in EP elections 2014! European Federation of Allergy and Airways Diseases Patients’ Associations (EFA), has today launched its Manifesto for 2014 European Parliament Elections. Aim of the Manifesto is to call on the Members of Parliament to commit themselves to three priority areas which are sub-divided into fourteen actions to improve health and quality of life

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Tobacco Products Directive vote in European Parliament

EFA Policy Officer reporting from Strasbourg Strasbourg 8 October 2013 - The European Parliament plenary voted today on the proposal for a directive on the manufacture, presentation and sale of tobacco and related products. The Parliament voted in favour of the Commission’s proposal and, especially, gave the mandate to the Rapporteur, the Member of the European Parliament Linda McAvan (UK, S&D) to negotiate with the Council of the European

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EFA in Meetings

HEAL AGM – Getting Better Health Through a Healthier Environment On September 25 and 26, HEAL (Health and Environment Alliance), an umbrella organisation representing NGOs working in the field of health and environment, has organised its annual general assembly and celebrated its 10th anniversary with an event at the European Parliament. The event, “New horizons for better health and environment-friendly lives”, was co-hosted by four leading

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Enabling Air Travel with Oxygen in Europe

EFA Booklet:  Stop discrimination against patients on board aircrafts! For patients requiring oxygen on board planes, an ordinary flight can turn into a nightmare. The rules and prices regarding the use of oxygen on flights vary considerably between airlines in Europe, often leading to confusion for travellers. These common practices of certain European airlines make travelling by plane stressful, challenging or even prohibitively expensive for

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EU Asthma Projects

EFA Partners in the New Project (EARIP) that Kicks off in September 2013 An exciting new European Asthma Research and Innovation Partnership (EARIP), led by Asthma UK and funded by the EU Research Programme FP7, has EFA excited after its successful kick off meeting in Barcelona on Monday, September 9th which brought together consortium members for the first time to discuss the project and its aims. EARIP seeks to lay foundations for a coordinated

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EFA Members News

Cecilia masters her asthma The Spanish association FENAER is preparing an English edition of the story "Cecilia masters her asthma". This story is written for boys and girls with asthma, as well as for their parents and caregivers. It teaches a simple breathing and relaxation technique via a children’s story; in order to make learning this technique easier. The book is accompanied by a CD that includes a recording of the story; in order to make

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EU Policy Updates

Adoption of a strong Tobacco Products Directive in danger! The European Parliament rescheduled the debate and the vote on the Tobacco Products Directive which should have taken place in September 2013. After several Members of the European Parliament (MEPs) complained that they did not have enough time to go through the report and German MEPs declared they had to focus on German national elections, the tobacco agenda was moved to the October session

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Meet & Greet the EU Institutions

EFA Members will Meet & Greet the European Institutions in October! Twelve EFA members will have the opportunity to come to Brussels in October 2013, meet MEPs from their countries and learn more about decision making processes at the European level. With the "Meet & Greet" training, EFA lets its members to dig deeper into the legislative process and understand better current issues in the area of health. EFA secretariat in Brussels has been

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Save the Date

EFA and the European COPD Coalition are preparing a conference on the subject: “What role for diseases and patients in shaping Horizon 2020? – A COPD case study of patient involvement”. The event takes place on the 28 November 2013, 8.30 – 16.00, at the Residence Palace – Brussels. The conference marks the 2013 World COPD Day and under the patronage of the EU Lithuanian presidency. Part of the conference will be a free spirometry test.

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PRESS RELEASE: Discrimination against patients on aircraft!

Fancy going from Paris to Marseilles by plane? As an healthy passenger, you would pay 100 Euro. If you require oxygen on board the plane, the cost of the ticket can go up to 700 Euro! When you are a patient with a severe respiratory disease, even booking an ordinary flight can turn into a nightmare. The rules and prices regarding the use of oxygen on flights vary considerably between airlines in Europe, often leading to confusion for travellers,

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