News

EFA Projects Intern

EFA European Federation of Allergy and Airways Diseases Patients’ Associations is looking for an EFA Projects Intern (m/f) To start in March 2014   EFA is the network of European patients’ organisations that represents people with allergy, asthma and chronic obstructive pulmonary disease (COPD) at European level. EFA is dedicated in making Europe a place where people with these diseases have the right to best quality of care and safe environment,

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Joint EAACI – EFA Press Release on EP Written Declaration

177 Members of the European Parliament call for coordinated European action on allergies 24.1.2014 Brussels, Belgium Three months ago, 11 Members of the European Parliament (MEPs) proposed a draft Written Declaration1  on recognising the burden of allergic disease, calling upon the Commission and Member States to recognise the burden of allergic disease and develop policy tools to combat this illness. At the end of the consultation period, the Declaration

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Member News

FENAER’s Activities in December On Thursday the 5th of December, FENAER participated in a meeting along with other members of the Spanish Patients Forum to advise on the consequences of budget cuts brought by the government of Mariano Rajoy in Spain and how it could affect patients with chronic diseases. It was agreed the measures are provoking “many sick people” to abandon their treatments as they can no longer cover their costs. For example,

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EU Policy Updates

EU Ministers of Health discussing patients’ safety and health  On December 10, in the framework of the Employment, Social Policy, Health and Consumer Affairs (EPSCO) configuration of the Council of the EU, the Health Ministers of the 28 European Union Member States reviewed the state of play in on-going legislative dossiers, namely the package on Medical Devices and In Vitro Diagnostic Medical Devices, the negotiations between the co-legislators

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EFA in Meetings

Innovation in Life Sciences and Health – Vilnius Innovation Forum On 5th December, EFA Board Member Lina Buzermaniene attended Vilnius Innovation Forum, where she participated in the session dedicated to Innovation in Life sciences and Health. Lina, as a Member of Ethics Board of the IMI U-BIOPRED project, contributed with a short presentation as the patient representative to the panel discussion on Public private collaborations for a stronger

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EU Air Package Proposed

On December 18, the European Commission adopted the much expected EU air package. The review of the EU air strategy began in early 2011 and was expected to be published earlier this year, which was identified by the European Commissioner for Environment, Janez Potočnik, as the EU Year of Air. The constant delays in proposing the measures pushed several Members of the European Parliament (MEPs) from across the political spectrum to urge the Commission

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TPD Coming to a Conclusion

One year exact has passed since the Commission’s proposal for a new Tobacco Products Directive, necessary to update a 12-year old legislation, to close legal gaps, to be in line with the World Health Organisation (WHO) Framework Convention on Tobacco Control (FCTC) and especially to protect public health. We have been advocating during this time for the protection of patients with allergy, asthma and COPD and more in general for public health considerations

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EFA-ECC Event Report

Report from our joint event with the ECC “What role for diseases and patients in shaping Horizon 2020? A COPD case study of patient involvement” As promised in the last issue of our eZine, this month we bring you the full report from the event we organized in collaboration with European COPD Coalition (ECC) on 28th November, 2013. The conference successfully met its objectives to discuss the newly adopted EU Framework Programme for Research and

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Report from the EFA-ECC event on COPD

On the 28th of November 2013, the European COPD Coalition (ECC) and the European Federation of Allergy and Airways Diseases Patients’ Associations (EFA) celebrated World Chronic Obstructive Pulmonary Disease (COPD) Day 2013 together at a public event entitled "What role for diseases and patients in shaping Horizon 2020? A COPD case study of patient involvement” offering a diverse range of discussions focusing on the implications of “Horizon

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Tobacco Products Directive: green light of the Member States

One year exact has passed since the Commission’s proposal for a new Tobacco Products Directive, necessary to update a 12-year old legislation, to close legal gaps, to be in line with the World Health Organisation Framework Convention on Tobacco Control and especially to protect public health. We have been advocating during this time for the protection of patients with allergy, asthma and COPD and more in general for public health considerations

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Press Release: EFA’s new book on Minimum Standards of COPD care

Standards of Care for COPD patients are not equal in Europe EFA reveals the state of play and releases Minimum Standards of Care to enable active patients participating in society COPD is a serious lung disease and will become the third leading cause of death by 2020, but how do patient associations view the care and preventative actions in Europe? EFA conducted a survey in 16 countries in Europe through its member associations on care as well as

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Standards for COPD Care Now

EFA Releases its Book on COPD in Europe Seeking Minimum Standards of Care At the EFA-ECC World Chronic Obstructive Pulmonary Disease (COPD) Day Event in Brussels on November 28th, the EFA Book on Minimal Standards of Care for COPD Patients in Europe was released. The publication, which is EFA’s second book on COPD, highlights necessary steps for establishing minimum standards of care for COPD patients across Europe, which would outline best practices

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EFA eZine Archive