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[EFA Press Briefing at EADV] European Report Launch: Itching for Life

 Registration is closed for this event
Atopic eczema is one of the most common non-communicable inflammatory skin diseases, affecting 1-3% adults in the EU who suffer chronic or relapsing itching. Eczema can drive patients crazy, but what does it really mean, daily? EFA launches the results from the biggest-ever study documenting the impact severe atopic eczema has in our lives in Czech Republic, Denmark, France, Italy, Germany, Netherlands, Spain, Sweden and United Kingdom. A survey to 1,189 patients, on what matters to patients in Europe. We used validated Quality of Life (QoL) and economic impact questionnaires and included a new questionnaire developed by EFA to measure the emotional consequences severe atopic eczema has for adult patients. The report Itching for Life-Quality of Life and costs for people with severe atopic eczema in Europe encapsulates the results of EFA ground-breaking survey and will be at the heart of the 1st European Atopic Eczema Awareness Day, marked the next day, September 14th.

PRESS BRIEFING: European report launch

Itching for Life – Quality of Life and costs for people with severe atopic eczema in Europe

PDF PROGRAMME


13th September 2018, 15h15-16h15

Room 243, 2nd floor, Palais des Congrès de Paris

2 Place de la Porte Maillot, 75017 Paris, France

Pre-registration: www.efanet.org/resources/events 

Hot beverages and pastries will be served

15h15

Introduction and context

Isabel Proaño, EFA Director of Policy and Communications

15h20

Presentation of key findings of Itching for Life - Quality of Life and costs of people with severe atopic eczema in Europe

Susanna Palkonen, EFA Director

15h30

Round table: Recommendations from atopic eczema patients

Bernd Arents, Patient Advisor for the Itching for Life survey and atopic eczema patient, Member of the Dutch Atopic Eczema Association

Marjolaine Hering, Atopic eczema patient and Member of the French Eczema Association

Lurdes Basolí, Photojournalist of the Atopical Lives photo exhibition (booth 299)

15h45

Questions from the floor

Attendees

16h00

Break out for interviews

On demand


Following events on the same theme (pre-registration desired: www.efanet.org/resources/events)

16h15

Atopical Lives exhibition tour

Booth 299, 2nd floor

17h00

Meet-the-Expert Event: “Atopic eczema: the silent suffering of patients”

Room 243, 2nd floor and live streamed for registered participants

The report will be available on September 13th in Czech, Danish, Dutch, English French, German, Italian, Spanish, Swedish at www.efanet.org. The report will be distributed onsite in English and French.

The European Federation of Allergy and Airways Diseases Patients’ Associations (EFA) is a network of 43 allergy, asthma and COPD patients’ organisations in 25 European countries and it works for European patients with allergy, asthma and chronic obstructive pulmonary disease (COPD) to live uncompromised lives, have the right and access to the best quality care and a safe environment.

For more information contact EFA Director of Policy and Communications:           

Isabel.Proano@efanet.org / +32 (0) 2 227 2712 / +32 484 939 559

 

When
13th September, 2018 3:15 PM through  4:15 PM
Location
Palais des Congrès de Paris
2 Place de la Porte Maillot
Room 243, second floor
Paris, 75017
France
Contact
Phone: +32 (0)2 227 2712