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Patients are driving the future of Severe Asthma research through ERS SHARP
SHARP is a Clinical Research Collaboration promoted by the European Respiratory Society. It stands for Severe Heterogeneous Asthma Research Collaboration, Patient centred and it aims to facilitate stu ...

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Take the survey: does your lung disease affect family planning and pregnancy?
The European Respiratory Society (ERS) and the Thoracic Society of Australia and New Zealand (TSANZ) are looking for information to understand how people with a lung condition are currently cared for  ...

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IMPARAS: Risk analysis for allergenicity of new food proteins
On the 22nd of February, EFA Director of Policy and Strategy Roberta Savli and EFA Vice-President Erna Botjes participated in a workshop organised by Imparas, a COST action of the European U ...

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New guidelines to establish diets in children with food allergy
Food allergy is becoming increasingly common in infants and young children. Managing this disease can be a great challenge due to the patients’ young age. Researchers have been looking at how to devel ...

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The challenges for effective data sharing and reuse at eTRIKS un-conference workshop
Data collected for research contains information about diseases and treatments and their impact on patients’ life. The reuse of data would allow additional research with better outcomes for the patien ...

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myAirCoach Advisory Patient Forum lay summary on m-health
A new study from myAirCoach asking patients and healthcare professionals about their preferences and the utility of mobile health tools, confirms m-health potential for easier asthma control. It is  ...

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EFA at Human Brain Project Advisory Board
The Human Brain Project is a H2020 FET Flagship Project which strives to accelerate the fields of neuroscience, computing and brain-related medicine. This acceleration will be achieved by a strategi ...

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EFA selected as a European Commission HTA stakeholder and new EFA Task Force
We are delighted about the European Commission confirmation that EFA is a suitable stakeholder to become member of the Health Technology Assessment pool network.  The HTA Stakeholder Pool will be ...

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COPD MOVE, we are looking for COPD patient ambassadors
During 2017 we will promote physical exercise to improve the quality of life of patients living with COPD. The first videos have already been realised by our friends and patient advocates Günther Hirs ...

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myAirCoach will be featured at CeBIT
myAirCoach consortium will meet in Brussels for the second year technical review with the European Commission that will be held on the 7th of March. The meeting represents an opportunity to assess t ...

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MyAirCoach will be tested in 2017
In November 2016, we met in Manchester with our partners of the Horizon 2020 project myAirCoach to track the status quo in all work-packages, the main results achieved in 2016 and to plan the third an ...

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More research into earlier diagnosis – Our response to H2020 consultation
During the summer, EFA had the chance to provide feedback on the development of the work programme 2018-2020 of Horizon 2020 (the European Union’s Research and Innovation Framework Programme) in respo ...

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New treatment to reduce asthma severity – Promising AirPROM study
The University of Leicester has led a ground-breaking study, funded by Novartis Pharmaceuticals, National Institute for Health Research (NIHR) and EU-funded project AirPROM, on a new drug that may in  ...

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U-BIOPRED's role on patient involvement
The Innovative Medicines Initiative (IMI) has published an interview with Professor Peter Sterk, coordinator of U-BIOPRED, one of the first projects launched by the IMI in 2009. According to Sterk,  ...

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European Commission warns about health impact of e-cigarettes
Tobacco remains the most significant cause of premature death in the EU, responsible for almost 700,000 deaths every year. The EU Tobacco Products Directive introduced new provisions regarding health  ...

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AirPROM brings a promising scanning tool for respiratory patients
EFA organised the final event of AirPROM, an EU funded project that during five years has pulled out the best knowledge of lung research in Europe to come up with a virtual model of the human lungs. E ...

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Our asthma in young patients news
In May, we had the opportunity to promote the results of our Health Literacy, Young Patients with Asthma and Adherence to Treatment report, among healthcare professionals, as we were invited by the In ...

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World Asthma Day - Young patients have something to say about asthma
Adolescent patients with asthma encounter difficulties in following their medication but the reasons are unclear; HEY YA! HEalth Literacy, Young Patients with Asthma and Adherence to treatment: EFA Re ...

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Horizon 2020 Success Story – MeDALL project brings new insights into allergy
The MeDALL project ended in May with a public event organized by EFA at the European Parliament. During its 5 years of implementation MeDALL partners investigated the mechanisms of allergy from early  ...

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