• COPD Move
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    Putting you at the centre of all decisions affecting your health

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    30% of the European population lives with allergies, asthma and COPD

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    Because breathing is taken for granted, we work for better recognition of chronic respiratory diseases

EU Health Commissioner invited us to present our views on HTA
On May 15th we were amongst the 8 patient, consumer and public health associations invited by the EU Commissioner on Health and Food Safety Vytenis Andriukaitis to present our views on the proposed ...

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We presented our Atopic Eczema Score of Emotional Consequences at EAACI Congress
Every year we are active participants in the most important gathering from the allergologists community, the annual European Academy of Allergy and Clinical Immunology (EAACI) Congress celebrated i ...

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Suggestions from EMA Digital Health topic group
As official members of the European Medicines Agency Patients’ and Consumers’ Working Party (PCWP), we are also very active in several of the agency’s topic groups to ensure that the regulatory work d ...

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Medical Technology and Health Workshop EPF-MedTech on HTA
*EPF Credits* On Thursday 24th May we participated in a workshop on Health Technology Assessment (HTA) and Medical Technologies organized by MedTech and the European Patients Forum (EPF). HTA i ...

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Do you know how community care can improve patients' access to care?
This 25th May, we took part in a workshop organized by MedTech and the European Patients Forum (EPF) to explore how community care can ensure equal and broad access to medical technologies for patient ...

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Check the air quality in your city! WHO publishes the biggest ambient air pollution database
This May 2018, the World Health Organisation has updated the ambient air quality database, which now covers 4,300 cities in 108 countries. These data are the world’s most comprehensive database on amb ...

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MyAirCoach presented at HIMSS Europe and Health 2.0 conference
Technology nowadays allows patients to be surrounded with actionable data and knowledge. Sensors and trackers represent the core of the latest innovations to bring a support to us for living a heal ...

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Good diagnosis Or How to live well with severe asthma
The National Conference of the Romanian Society of Clinical Allergology and Immunology took place in Sinaia between the 17th and the 19th of May. As part of the conference, EFA Director Susanna Pal ...

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Chronic disease alliance calls for EU’s attention and money on health
On May 16th EFA Isabel Proaño participated in the official launch of the European Chronic Disease Alliance manifesto, called “Europe’s health deserves the EU’s attention: Investing in chronic disease  ...

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How to use your inhaler?
EFA Member the Spanish Foundation of Allergic and Airways Diseases Patients’ Association (FENAER), launched in May a playful explanatory video for children to learn to use their inhaler properly. It i ...

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Italian patients celebrate the Food Allergy Awareness Week
  EFA Member Food Allergy Italia participated in the Food Allergy Awareness Week celebrated in May. Patient associations mobilise people online from the 13th to the 19th of May to show  ...

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EFA leaders meeting on personalised medicine, data protection and sharing, real world evidence
The next morning day, Tuesday 17th, we welcomed six guest speakers who are the top experts on their specialty in a session that explored the future of personalised medicine and clinical data sharing.  ...

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Europe aims to have a 1 million genomics database by 2022
Health sometimes is not only linked to health ministries but to trade. Last 10th April, the European Commission Single Market directorate, celebrated the European Digital Day adopting several initiati ...

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Our vision for the EU is healthier
Last 19th of April, EFA together with other 14 organisations published a joint statement on the future of health in the EU, ahead of the Employment, Social Policy, Health and Consumer Affairs Council  ...

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We presented the preliminary results of the biggest-ever atopic eczema survey for patients in Utrecht
Atopic Eczema is a very common inflammatory skin disease for which the predominant symptom is ITCHING. It is often underestimated but the signs and symptoms have a huge impact on patients’ lives. Thos ...

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Patients are driving the future of Severe Asthma research through ERS SHARP
SHARP is a Clinical Research Collaboration promoted by the European Respiratory Society. It stands for Severe Heterogeneous Asthma Research Collaboration, Patient centred and it aims to facilitate stu ...

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PRESS RELEASE: World Asthma Day 2018
Life is possible for patients with severe asthma Provided that they have accurate diagnosis Brussels, 1st May 2018 – WORLD ASTHMA DAY – Today European asthma patients are joining voices under the  ...

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EU Summit on airways diseases, air pollution and mobile health
Digital tools are already part of our daily life, whether they are mobile applications or connected machines. In health, digital tools can play a key role in allowing guided self-management, leading t ...

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EFA supports the European Association of Hospital Pharmacists statement
Last month EFA supported the European Statements of Hospital Pharmacy, the joint objectives formulated by the European Association of Hospital Pharmacists (EAHP) following a 18-month review process. W ...

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Asthma Society of Ireland phone line helped 70% of those under 50 to avoid missing school or work as a result of their asthma
EFA Member the Asthma Society of Ireland FREE Adviceline service has showed extensive positive impacts for service users. The recent partnership research showed that 70% of service users aged 50 years ...

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Latest research - COPD

The European Respiratory Society (ERS) and the Thoracic Society of Australia and New Zealand (TSANZ) are looking for information to understand how people with a lung condition are currently cared for  ...

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During 2017 we will promote physical exercise to improve the quality of life of patients living with COPD. The first videos have already been realised by our friends and patient advocates Günther Hirs ...

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