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    Putting you at the centre of all decisions affecting your health

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    30% of the European population lives with allergies, asthma and COPD

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    Because breathing is taken for granted, we work for better recognition of chronic respiratory diseases

HTA Stakeholder Forum discusses patients quality of life and involvement
On April 11th, EFA participated in the European Network for Health Technology Assessment (EunetHTA) annual stakeholder forum in Amsterdam. The meeting brought together speakers and participants from v ...

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Delivering patient value discussed at EU Parliament
To mark the 13th European Patients’ Rights Day, EFA attended the conference on ‘Delivering patient value throughout the healthcare system’ organised in the European Parliament by the Active Citizenshi ...

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EFA at Land Baden-Württemberg event on personalised medicine
Personalised medicine is both a big opportunity for patients but also a necessity for many people living with a chronic diseases whose severity does not respond to widespread treatments. On March 21st ...

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Stichting Voedselallergie: Broadcast on food safety in hospitals
A survey co-organised by EFA Member Stichting Voedselallergie (Dutch Food Allergies Foundation) shows that hospitals are not always taking care of food allergies of their patients. EFA Board memb ...

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Save the Date: FENAER’s first online congress for respiratory patients
EFA Spanish Member Federacion Española de Asociaciones de pacientes alergicos y con Enfermedades Respiratorias (FENAER) will hold its first online Congress next 8th of June. The Satellite event for pe ...

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European Parliament Interest Group on Allergy and Asthma launches a Blueprint
On 20th March, the European Parliament Interest Group on Allergy and Asthma, co-run by EFA and EAACI, organised at the European Parliament a Breakfast Policy Meeting on a renewed EU policy agenda on a ...

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European Parliament supports the adoption of an Indoor Air Quality Performance Certificate
On March 13th, the European Parliament plenary adopted the motion for a resolution ‘Clean Air for All: A Europe that Protects’, an initiative put forward by seven Members of the European Parliament &n ...

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EFA continues to be the only patient organisation working with European Chemicals Agency
The European Chemicals Agency (ECHA) organised its annual Accredited Stakeholder Workshop on 21 March 2019 in Brussels to mainly discuss ECHA’s Strategic Plan 2019-2023 with official stakeholders, lik ...

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New COPD development prediction: the ALEC Project
Although COPD has long been viewed as a predominantly smoking-related disease, there is increasing awareness that lifestyle and the environment contribute to the development of the disease already fro ...

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European Commission Manual for patients: Patients’ rights to accessing healthcare
The European Commission Directorate General for Health and Food Safety (DG SANTE) has published a manual for patients regarding their rights to access healthcare in any EU/EEA country different from t ...

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Rare diseases: A new platform to support better diagnosis and treatment
In light of the Rare Disease Day in February, the European Commission has launched a new online knowledge-sharing platform to support better diagnosis and treatment for more than 30 million Europeans  ...

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EFA calls for a European Air Quality strategy at the European Health Parliament
EFA was invited to bring the perspective of allergy and airways diseases patients to a debate on environment and human health at the 3rd Plenary of the European Health Parliament, an advocacy forum co ...

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EU digital prescriptions system kicks off in Finland and Estonia
We welcome the initiative giving patients the possibility to use digital prescriptions: prescriptions issued by a doctor at home can be issued when going to a pharmacist in another EU member state.  ...

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Environmental agency calls for action to protect Europeans from air pollution and noise
Better alignment of social and environment policies and improved local action is necessary to tackle environmental justice issues. These are the results of a report issued by the European Environment  ...

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New EFA publication: the impact of Atopic Eczema on daily life
Atopic eczema is one of the most common non-communicable inflammatory diseases. Still, its impact on patients’ lives is often underestimated and ignored. In 2018, we studied the impact severe atopic e ...

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Quaterly Summary from EFA Working Groups
In December 2018 and January 2019 we organised follow-up calls with EFA Working Groups to discuss hot topics and share national experiences important for allergy and airways diseases patients. Food  ...

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Asthma Society of Ireland launches social media campaigns on asthma and winter
EFA Member the Asthma Society Ireland has had a quite busy start into 2019. In January, they were running two campaigns simultaneously, Operation Asthma and Winter Wellness. Operation Asthma aims to ...

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Many obstacles remain to the involvement of patients in the ongoing EU HTA environment
On January 16th, EFA attended the annual meeting of the Health Technology Assessment Network Stakeholder Pool, hosted by the European Commission. During the meeting, participants discussed about how t ...

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The Council of the European Union adopts recommendations on vaccination
The absence of vaccination has the potential to significantly increase the possibility of virus-transmitted diseases such as pneumonia and influenza, which can be life threatening for people living wi ...

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EFA 2018 Capacity Building Webinars
In 2018 we provided our membership with a novelty in our Capacity Building program, a series of webinars in English where they could develop their knowledge. Starting from the basics, in the trainin ...

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Latest research - COPD

The European Respiratory Society (ERS) and the Thoracic Society of Australia and New Zealand (TSANZ) are looking for information to understand how people with a lung condition are currently cared for  ...

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During 2017 we will promote physical exercise to improve the quality of life of patients living with COPD. The first videos have already been realised by our friends and patient advocates Günther Hirs ...

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