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Patient Materials section

We are collecting patient education materials from our membership all over Europe.

This activity is framed under EFA's Patient Education Working Group, integrated by European patient experts advocates in health literacy, patient rights and ehealth.

The existing materials gatehered through the Working Group will be classified in this section to promote their use and dissemination among patients, practicioners and companies.

For more information please contact isabel.proano@efanet.org   

EFA at the Patient Access Partnership conference on the Future of Health
On 11 and 12 July, EFA was proud to contribute to the high-level conference of Patient Access Partnership (PACT) on ‘The Future of Health: Advancing the UN 2030 Sustainable Development Agenda in Europ ...

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Save the Date: World Atopic Eczema Day 14th September
On September 14th, EFA together with Global Skin we are marking the 2nd World Atopic Eczema Day with the theme BENEATH THE SURFACE to raise awareness and understanding of this allergic skin disease. A ...

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EFA response to EMA consultation on allergen product development in low-sized populations
The European Medicines Agency (EMA) launched a public consultation on the basis of a concept paper for a ‘Guideline for allergen products development in moderate to low-sized study populations’. The ...

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EFA response to WHO invitation for public comment: Global Action Plan for Healthy Lives and Well-being
EFA provided input in the call for comments organised by the World Health Organisation (WHO), regarding strengthening collaboration among multilateral health organisations to accelerate country progre ...

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EFSA publishes guidance on the use of threshold of toxicological concern approach in food safety assessment
The European Food Safety Authority (EFSA) carried out a public consultation to receive input from the scientific community and all interested parties on the guidance on the use of the Threshold of Tox ...

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EFA at EFPIA Annual Conference
EFA Director Susanna Palkonen attended the annual networking event of the European Federation of Pharmaceutical Industries Associations (EFPIA). The event was hosted by the Finnish EU Presidency. Ec ...

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EPSCO Council adopts tougher rules for Persistent Organic Pollutants (POPs)
On 13th June, the Council adopted stricter rules on the so-called Persistent Organic Pollutants (POPs), a list of chemical substances which are dangerous for both the human health and the environment. ...

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United Nations: Tobacco Control as Human Rights and Ministerial meeting on sustainable development
In light of the 41st session of the United Nations (UN) Human Rights Council which took place from June 14th to July 12th in Geneva, Switzerland, the Secretariat of the World Health Organisation (WHO) ...

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First electronic health records of patients exchanged between EU countries
From late June, first health records of patients are exchanged in the EU thanks to the cross-border electronic health services. As of now, doctors in Luxembourg will be able to receive digital patient ...

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Catering staff knows too little about food allergies
A new study on restaurant staff reveals low levels of food allergy knowledge and negative attitudes about serving people with food allergies. The study carried out in Germany conducted structured face ...

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Being prepared for holidays and festivals with allergy, asthma and eczema
Summer is for holidays. To make them as relaxing as possible, EFA members Allergy UK and Asthma-Allergy Denmark have collected tips on how to prepare for holidays and travelling with allergies, asthma ...

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SAVE THE DATE: World Atopic Eczema Day 14th September
On September 14th, EFA together with Global Skin we are marking the 2nd World Atopic Eczema Day with the theme BENEATH THE SURFACE to raise awareness and understanding of this allergic skin disease. A ...

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We spoke about adrenaline auto-injectors at the 2019 EAACI 2019 Congress
EFA participated in the European Academy of Allergy and Clinical Immunology (EAACI) Congress, celebrated in Lisbon from 1st to 5th June. The Congress is the biggest world allergy forum in the world, a ...

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EFA response to EFSA consultation on the appropriate age for food diversification on babies
The European Food Safety Authority (EFSA) launched in April a public consultation on the appropriate age for the introduction of complementary feeding into an infants’ diet. EFA welcomed the initiativ ...

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EFA response to EMA consultation on information on lactose
The European Medicines Agency (EMA) launched a public consultation that discussed the ‘Information for the package leaflet regarding lactose used as an excipient in medicinal products for human use’.  ...

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Push for an EU strategic framework to prevent non-communicable diseases
The European Chronic Disease Alliance (ECDA), the European Public Health Alliance (EPHA) and the Non-communicable Disease Alliance (NCD) have   developed the paper “Towards an EU-Strategic F ...

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EFA at the EU Green Week 2019
The implementation of environmental legislation was also the main topic of this year’s EU Green Week, which took place in several cities across Europe between 13 and 17 May. EFA participated in three  ...

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Finnish EU Presidency Programme: Health insights
From 1st of July onwards, Finland will lead the European Council’s work for six months. The Scandinavian country plans to focus on the Economy of Wellbeing – an umbrella topic that encompasses policie ...

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EFA atopic eczema scientific publications
Our study ITCHING FOR LIFE – Quality of Life and costs for people with severe atopic eczema in Europe continues to be to date the largest survey conducted in Europe on quality of life, with 1,189 seve ...

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Apply to participate in the IMI pool of patient experts
The Innovative Medicine Initiative (IMI) is a public-private partnership between the European Union and the European pharmaceutical industry. It is working to improve health by speeding up the develop ...

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