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    Putting you at the centre of all decisions affecting your health

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    30% of the European population lives with allergies, asthma and COPD

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    Because breathing is taken for granted, we work for better recognition of chronic respiratory diseases

Treat the person, not the disease – Outcomes of the Personalised Medicine Conference
Personalised medicine is seen as part of a wider shift from disease-centred to person-centred healthcare, from one-size-fits-all, to individualized treatment and prevention. “To realise this shift, pa ...

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Take part in the Commission public consultations for patient-friendly clinical trials
In the month of June, the European Commission has launched four new public consultations on clinical trials. The consultations are on risk proportionate approaches, on the summary of the clinical tria ...

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More investment for prevention – Conclusions of European Health Parliament
On the 29th June, we participated in the European Health Parliament (EHP) closing session to bring the perspective of allergy, asthma and COPD patients. The European Health Parliament is a platform, ...

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How to use allergy medication
Material: This series of videos presents the different spacers and peak flow meters (PFM) and shows how to use them correctly. There are guidelines to help patients and healthcare professionals.& ...

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AirPROM brings a promising scanning tool for respiratory patients
EFA organised the final event of AirPROM, an EU funded project that during five years has pulled out the best knowledge of lung research in Europe to come up with a virtual model of the human lungs. E ...

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EU adopts new rules for medical devices – Patients will have better information on devices
On the 25th of May 2016, the Netherlands Presidency of the Council of the European Union and representatives of the European Parliament agreed new rules for evaluation and market access of medical dev ...

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EFA delivered the patient perspective at the Medicines for Europe launch
For patients the value of medicines is all about how it works for their particular condition and that their benefit and safety balance fits with the individual goals for treatment, ideally discussed a ...

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EFA asthma patient leaders launch the Málaga-London Declaration (EARIP)
EFA together with our membership, and under the leadership of Asthma UK, have launched the Malaga-London declaration, a document drafted within the European Asthma Research and Innovation Partnership  ...

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Guide for parents of children and young people with asthma, with self-management advice
Material: A guide for parents of children and young people with asthma, with self-management advice Original name: Lasten ja nuorten astma and Astma hos barn och unga Author: The Organis ...

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World Asthma Day - Young patients have something to say about asthma
Adolescent patients with asthma encounter difficulties in following their medication but the reasons are unclear; HEY YA! HEalth Literacy, Young Patients with Asthma and Adherence to treatment: EFA Re ...

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PRESS RELEASE: Young patients with asthma need more investment in technology and health literacy
Young patients with asthma need more investment in technology and health literacy Brussels, 28 April, 2016 – BEFORE WORLD ASTHMA DAY. Asthma is the most common chronic disease in childhood. Today, 3 ...

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Patients’ views on the Medical Devices Regulation
On the 22nd of February, Senior EU Policy Advisor Roberta Savli met with the assistant of Mrs Wilmot MEP (rapporteur of the medical devices regulation in the European Parliament) together with the Eur ...

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Patient Toolbox launched by EUPATI
On Wednesday 27th of January the European Patient's Academy on Therapeuric Innovation (EUPATI) launched it's new Educational Toolbox. The online toolbox contains patient-friendly, ready-to-use  ...

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Product Recall: Allergy Immunotherapy Products (APSIs)
On 2nd December the French Health Authority, l’Agence Nationale de Sécurité du Médicament et des produits de santé (ANSM), announced its decision to temporarily suspend all medicinal products produced ...

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New webpage on medication errors from EMA
In accordance with EU pharmacovigilance legislation, patients have the opportunity not only to report any side effects of medicines, but also on any medication errors they experience. If you are a p ...

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EMA updates on the publication of clinical data and risk minimisation measures
On return from the summer break we participated in the European Medicines Agency (EMA) joint meeting between Patients and Consumers (PCWP) and Healthcare Professional Organisations (HCPWP). At the m ...

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IMI GetReal COPD case study
On the 9th of September, the Chair of the EFA COPD Working Group, Michael Wilken, represented COPD patients’ views on the IMI GetReal COPD case study workshop held in Frankfurt, Germany. Launched in ...

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Patients - Industry Dialogue
On the 22nd of September, the 10th Patients-MedTech Dialogue was held in Brussels.  The event was jointly organised by the European Patients' Forum (EPF) and MedTech Europe. Patients and ind ...

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EU pharmaceutical regulation celebrates 50 years
2015 marks the 50th anniversary of the adoption of the first law on the authorisation of pharmaceuticals at EU level.  This law set the basis for some of the key principles that are still valid t ...

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EU pharmacovigilance is still too complex
The new pharmacovigilance legislation, which came into effect in July 2012, was the biggest change to the regulation of human medicines in the European Union since 1995. On the 15th Septembe ...

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