- Survey on the use of lay language summaries in paediatric clinical trials
- The European Forum of Good Clinical Practices (EFGCP) in collaboration with the European Federation of Pharmaceutical Industries and Association (EFPIA) are working together to understand what is the ...
- European Atopic Eczema Day
- Last September 14th the atopic eczema patient community belonging to EFA’s Members marked the first ever European Atopic Eczema Awareness Day to inform and bring attention to this allergic disease ...
- EU-UK patient group meets the European Commission to discuss Brexit
- In July, our Director Susanna Palkonen chaired a meeting on behalf of the European Patients’ Forum and coordinated by the Association of Medical Research Charities UK (AMRC) to meet the Brexit taskfor ...
- Myaircoach in MedTech week
- For the 4th time, national associations and companies active on medical devices organised from 4-8 June activities across Europe to promote the value of life-changing technologies. This year MedTech ...
- IMI and its 10 years of medical innovation, the example of U-BIOPRED
- On June 27th we were 400 participants to celebrate an outstanding achievement on medical research. In the last ten years, the Innovative Medicine Initiative has done more than 100 European projects an ...
- EU Health Commissioner invited us to present our views on HTA
- On May 15th we were amongst the 8 patient, consumer and public health associations invited by the EU Commissioner on Health and Food Safety Vytenis Andriukaitis to present our views on the proposed ...
- MyAirCoach presented at HIMSS Europe and Health 2.0 conference
- Technology nowadays allows patients to be surrounded with actionable data and knowledge. Sensors and trackers represent the core of the latest innovations to bring a support to us for living a heal ...
- Good diagnosis Or How to live well with severe asthma
- The National Conference of the Romanian Society of Clinical Allergology and Immunology took place in Sinaia between the 17th and the 19th of May. As part of the conference, EFA Director Susanna Pal ...
- Some patients with asthma are affected… SEVERELY!
- In March we travelled to the UK and kicked-off our new project “Severely, Asthma!”, a video series that explores the different issues impacting the life of severe asthma patients. Severe asthma is sub ...
- EFA Patients at BBMRI-ERIC Stakeholder Forum
- EFA's Roberta Savli participated on the 25th of January in the Stakeholder Forum meeting of the BBMRI-ERIC. The meeting served to identify the priorities of action and to organize and agree on the wor ...
- Simplified clinical trials results to inform patients – Our response to the EC consultation
- In August we sent our comments to the European Commission open consultation on the summary of results of clinical trials for laypersons. This consultation follows the new clinical trials regulation ...
- European Medicines Agency celebrates 10 years of collaboration with patients
- Our continuous input into the information, evaluation and safety and development policies of medicines in Europe is an achievement that we celebrate, especially after the renewal of EFA membership to ...
- Take part in the Commission public consultations for patient-friendly clinical trials
- In the month of June, the European Commission has launched four new public consultations on clinical trials. The consultations are on risk proportionate approaches, on the summary of the clinical tria ...
- AirPROM brings a promising scanning tool for respiratory patients
- EFA organised the final event of AirPROM, an EU funded project that during five years has pulled out the best knowledge of lung research in Europe to come up with a virtual model of the human lungs. E ...
- EFA asthma patient leaders launch the Málaga-London Declaration (EARIP)
- EFA together with our membership, and under the leadership of Asthma UK, have launched the Malaga-London declaration, a document drafted within the European Asthma Research and Innovation Partnership ...
- Patient Toolbox launched by EUPATI
- On Wednesday 27th of January the European Patient's Academy on Therapeuric Innovation (EUPATI) launched it's new Educational Toolbox. The online toolbox contains patient-friendly, ready-to-use ...
- IMI GetReal COPD case study
- On the 9th of September, the Chair of the EFA COPD Working Group, Michael Wilken, represented COPD patients’ views on the IMI GetReal COPD case study workshop held in Frankfurt, Germany. Launched in ...
- Medicines initiative opens the way for more patient involvement
- IMI (Innovative Medicines Initiative) is Europe's largest public-private initiative seeking to speed up the development of better and safer medicines for patients. This year’s IMI forum counted on m ...
- Two days to reflect on tobacco consequences to our health
- Two days to reflect on tobacco consequences to our children’s health On the 26th of May, our partner organisation European Network for Smoking and Tobacco Prevention (ENSP) organised a special event ...
- EU Policy update (April 2015)
- Launch of Interest Group on Allergy and Asthma: EFA/EAACI REPORT The European Parliament Interest Group on Allergy and Asthma was launched on the 25th of March. The event was co-hosted by the Inte ...