• Medicine 1

    When patients are involved, medical research results become meaningful solutions

  • Medicine 2

    We provide patient input to the latest research for chronic diseases

  • Medicine 3

    Improving patient knowledge and involvement in clinical trials

EU Health Commissioner invited us to present our views on HTA
On May 15th we were amongst the 8 patient, consumer and public health associations invited by the EU Commissioner on Health and Food Safety Vytenis Andriukaitis to present our views on the proposed ...

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MyAirCoach presented at HIMSS Europe and Health 2.0 conference
Technology nowadays allows patients to be surrounded with actionable data and knowledge. Sensors and trackers represent the core of the latest innovations to bring a support to us for living a heal ...

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Good diagnosis Or How to live well with severe asthma
The National Conference of the Romanian Society of Clinical Allergology and Immunology took place in Sinaia between the 17th and the 19th of May. As part of the conference, EFA Director Susanna Pal ...

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Some patients with asthma are affected… SEVERELY!
In March we travelled to the UK and kicked-off our new project “Severely, Asthma!”, a video series that explores the different issues impacting the life of severe asthma patients. Severe asthma is sub ...

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EFA Patients at BBMRI-ERIC Stakeholder Forum
EFA's Roberta Savli participated on the 25th of January in the Stakeholder Forum meeting of the BBMRI-ERIC. The meeting served to identify the priorities of action and to organize and agree on the wor ...

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Simplified clinical trials results to inform patients – Our response to the EC consultation
In August we sent our comments to the European Commission open consultation on the summary of results of clinical trials for laypersons. This consultation follows the new clinical trials regulation  ...

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European Medicines Agency celebrates 10 years of collaboration with patients
Our continuous input into the information, evaluation and safety and development policies of medicines in Europe is an achievement that we celebrate, especially after the renewal of EFA membership to  ...

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Take part in the Commission public consultations for patient-friendly clinical trials
In the month of June, the European Commission has launched four new public consultations on clinical trials. The consultations are on risk proportionate approaches, on the summary of the clinical tria ...

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AirPROM brings a promising scanning tool for respiratory patients
EFA organised the final event of AirPROM, an EU funded project that during five years has pulled out the best knowledge of lung research in Europe to come up with a virtual model of the human lungs. E ...

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EFA asthma patient leaders launch the Málaga-London Declaration (EARIP)
EFA together with our membership, and under the leadership of Asthma UK, have launched the Malaga-London declaration, a document drafted within the European Asthma Research and Innovation Partnership  ...

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Patient Toolbox launched by EUPATI
On Wednesday 27th of January the European Patient's Academy on Therapeuric Innovation (EUPATI) launched it's new Educational Toolbox. The online toolbox contains patient-friendly, ready-to-use  ...

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IMI GetReal COPD case study
On the 9th of September, the Chair of the EFA COPD Working Group, Michael Wilken, represented COPD patients’ views on the IMI GetReal COPD case study workshop held in Frankfurt, Germany. Launched in ...

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Medicines initiative opens the way for more patient involvement
IMI (Innovative Medicines Initiative) is Europe's largest public-private initiative seeking to speed up the development of better and safer medicines for patients. This year’s IMI forum counted on m ...

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Two days to reflect on tobacco consequences to our health
Two days to reflect on tobacco consequences to our children’s health On the 26th of May, our partner organisation European Network for Smoking and Tobacco Prevention (ENSP) organised a special event ...

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EU Policy update (April 2015)
Launch of Interest Group on Allergy and Asthma: EFA/EAACI REPORT The European Parliament Interest Group on Allergy and Asthma was launched on the 25th of March. The event was co-hosted by the Inte ...

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EFA in Meetings (April 2015)
In April we had the pleasure to participate in a training on Health Technology Assessment (HTA) to increase patient involvement in development of medicines and medical devices. We also travelled to Sw ...

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EU Policy update (March 2015)
March was full of novelties! WHO published a report on the access to new medicines in Europe and the EEA published the State of the Environment linking environmental policies to our health. The Commis ...

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EFA in events (March 2015)
Much new evidence of interest for allergy, asthma and COPD patients was published in March. We attended the launch of the EMA 20th years anniversary, the Roadmap for sustainable care, the EEA State of ...

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Clinical trials for asthma, allergy and COPD
Clinical trials are research conducted in humans to prove the effects of one or more investigational medicinal products. All investigational medicinal products should go through clinical trial. All me ...

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EU Policy update (Summer 2014)
New leaders of the European Institutions We left you before the summer break with updates on the composition of the new European Parliament coming out from the elections of May 2014. As from July, i ...

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What's new - Clinical trials

In March we travelled to the UK and kicked-off our new project “Severely, Asthma!”, a video series that explores the different issues impacting the life of severe asthma patients. Severe asthma is sub ...

Read more...

EFA's Roberta Savli participated on the 25th of January in the Stakeholder Forum meeting of the BBMRI-ERIC. The meeting served to identify the priorities of action and to organize and agree on the wor ...

Read more...

Latest research - Clinical trials

EFA organised the final event of AirPROM, an EU funded project that during five years has pulled out the best knowledge of lung research in Europe to come up with a virtual model of the human lungs. E ...

Read more...

On the 9th of September, the Chair of the EFA COPD Working Group, Michael Wilken, represented COPD patients’ views on the IMI GetReal COPD case study workshop held in Frankfurt, Germany. Launched in ...

Read more...

Key Facts

4,000 clinical trials
are authorised each year in the European Economic Area (EEA)

61% of clinical trials
are sponsored by the pharmaceutical industry

39% of clinical trials
are sponsored by non-commercial sponsors, mainly academia