• Medicine 1

    When patients are involved, medical research results become meaningful solutions

  • Medicine 2

    We provide patient input to the latest research for chronic diseases

  • Medicine 3

    Improving patient knowledge and involvement in clinical trials

SAVE THE DATE! The European Parliament Interest Group’s event on the barriers to research in chronic NCDs in Europe
Next 9th October 2018, the European Parliament Interest Group on Allergy and Asthma, is organising an event entitled “How to overcome the barriers to research in chronic NCDs in Europe? The case of al ...

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Should the EU revise the EU Ambient Air Quality Directives? Patients say YES!
The European Commission launched in May-July a process to gather information on the impact and added value of the EU Ambient Air Quality Directives from stakeholders. It is what has been fancily calle ...

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The 7th Environment Action Programme evaluated by allergy and respiratory patients
The European Commission launched a public consultation to evaluate the 7th Environment Action Programme (7th EAP), which is the strategic document that guides EU policy to reduce pollution in the air, ...

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Is the role of patients neglected in the prevention of Chronic Respiratory Disease? Our presentation at GARD
EFA Board Member, Hubert Nettel, had the honour to present in the opening of the 12th Global Alliance against Chronic Respiratory Diseases (GARD) General Meeting entitled “The Natural Step to Respirat ...

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HTA proposal approved by the European Parliament health committee leaves out some patients expectations
The proposal for a regulation on Health Technology Assessment (HTA) has been high on the agenda of the European Parliament during the last months. The Committee on the Environment, Public Health and F ...

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EU-UK patient group meets the European Commission to discuss Brexit
In July, our Director Susanna Palkonen chaired a meeting on behalf of the European Patients’ Forum and coordinated by the Association of Medical Research Charities UK (AMRC) to meet the Brexit taskfor ...

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We are members of the Digital Health group at EPF
The European Patients Forum (EPF) has recently launched a working group to guide and support its strategy on digital health with the aim of positioning the patient community as a driver of innovation  ...

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Health Technology Assessment (HTA) in the spotlight in the European Parliament
In July, the European Parliament committee for Internal Market and Consumer Protection (IMCO) adopted its opinion on a report done by the Environment, Public Health and Food Safety Committee (ENVI) ...

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You too can Define your Asthma! A worldwide campaign
The Global Allergy and Asthma Patient Platform (GAAPP) of which we are Board Member has launched “Define Your  Asthma”, an educational campaign to “provide knowledge, confidence and impetus for a ...

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We want a future cooperation on HTA with patients at the center
On the 5thof June, we attended “What future for EU cooperation on HTA?” organised by the European Parliament Interest Group on Access to HealthCare, in cooperation with the Patient Access Partnership  ...

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Happy Anniversary Public Health!
EFA congratulates 25 years old European Public Health Alliance EPHA with the message that prevention is better than cure! We took part in their celebration of the journey and impact that EPHA has ha ...

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EFA at ERS Presidential Summit
The president of the European Respiratory Society (ERS) Mina Gaga hosted in her home country a summit to "redesign the future of healthcare in respiratory diseases". EFA was represented by Susanna  ...

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ENSP International Conference on Tobacco Control: new tobacco products, new evidence, need for stricter regulations
On the 14-16thJune, EFA Isabel Proaño participated at the European Network for Smoking and Tobacco Prevention (ENSP) International Conference on Tobacco Control hosted in Madrid. As partners of the  ...

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Myaircoach in MedTech week
For the 4th time, national associations and companies active on medical devices organised from 4-8 June activities across Europe to promote the value of life-changing technologies. This year MedTech ...

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IMI and its 10 years of medical innovation, the example of U-BIOPRED
On June 27th we were 400 participants to celebrate an outstanding achievement on medical research. In the last ten years, the Innovative Medicine Initiative has done more than 100 European projects an ...

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EU Health Commissioner invited us to present our views on HTA
On May 15th we were amongst the 8 patient, consumer and public health associations invited by the EU Commissioner on Health and Food Safety Vytenis Andriukaitis to present our views on the proposed ...

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We presented our Atopic Eczema Score of Emotional Consequences at the EAACI Congress
Every year we are active participants in the most important gathering from the allergologists community, the annual European Academy of Allergy and Clinical Immunology (EAACI) Congress celebrated i ...

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Suggestions from EMA Digital Health topic group
As official members of the European Medicines Agency Patients’ and Consumers’ Working Party (PCWP), we are also very active in several of the agency’s topic groups to ensure that the regulatory work d ...

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Medical Technology and Health Workshop EPF-MedTech on HTA
*EPF Credits* On Thursday 24th May we participated in a workshop on Health Technology Assessment (HTA) and Medical Technologies organized by MedTech and the European Patients Forum (EPF). HTA i ...

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Do you know how community care can improve patients' access to care?
This 25th May, we took part in a workshop organized by MedTech and the European Patients Forum (EPF) to explore how community care can ensure equal and broad access to medical technologies for patient ...

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What's new - Clinical trials

In July, our Director Susanna Palkonen chaired a meeting on behalf of the European Patients’ Forum and coordinated by the Association of Medical Research Charities UK (AMRC) to meet the Brexit taskfor ...

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For the 4th time, national associations and companies active on medical devices organised from 4-8 June activities across Europe to promote the value of life-changing technologies. This year MedTech ...

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Latest research - Clinical trials

EFA organised the final event of AirPROM, an EU funded project that during five years has pulled out the best knowledge of lung research in Europe to come up with a virtual model of the human lungs. E ...

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On the 9th of September, the Chair of the EFA COPD Working Group, Michael Wilken, represented COPD patients’ views on the IMI GetReal COPD case study workshop held in Frankfurt, Germany. Launched in ...

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Key Facts

4,000 clinical trials
are authorised each year in the European Economic Area (EEA)

61% of clinical trials
are sponsored by the pharmaceutical industry

39% of clinical trials
are sponsored by non-commercial sponsors, mainly academia