• Medicine 1

    When patients are involved, medical research results become meaningful solutions

  • Medicine 2

    We provide patient input to the latest research for chronic diseases

  • Medicine 3

    Improving patient knowledge and involvement in clinical trials

EU Health Commissioner invited us to present our views on HTA
On May 15th we were amongst the 8 patient, consumer and public health associations invited by the EU Commissioner on Health and Food Safety Vytenis Andriukaitis to present our views on the proposed ...

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We presented our Atopic Eczema Score of Emotional Consequences at EAACI Congress
Every year we are active participants in the most important gathering from the allergologists community, the annual European Academy of Allergy and Clinical Immunology (EAACI) Congress celebrated i ...

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Suggestions from EMA Digital Health topic group
As official members of the European Medicines Agency Patients’ and Consumers’ Working Party (PCWP), we are also very active in several of the agency’s topic groups to ensure that the regulatory work d ...

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Medical Technology and Health Workshop EPF-MedTech on HTA
*EPF Credits* On Thursday 24th May we participated in a workshop on Health Technology Assessment (HTA) and Medical Technologies organized by MedTech and the European Patients Forum (EPF). HTA i ...

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Do you know how community care can improve patients' access to care?
This 25th May, we took part in a workshop organized by MedTech and the European Patients Forum (EPF) to explore how community care can ensure equal and broad access to medical technologies for patient ...

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Check the air quality in your city! WHO publishes the biggest ambient air pollution database
This May 2018, the World Health Organisation has updated the ambient air quality database, which now covers 4,300 cities in 108 countries. These data are the world’s most comprehensive database on amb ...

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MyAirCoach presented at HIMSS Europe and Health 2.0 conference
Technology nowadays allows patients to be surrounded with actionable data and knowledge. Sensors and trackers represent the core of the latest innovations to bring a support to us for living a heal ...

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Good diagnosis Or How to live well with severe asthma
The National Conference of the Romanian Society of Clinical Allergology and Immunology took place in Sinaia between the 17th and the 19th of May. As part of the conference, EFA Director Susanna Pal ...

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Chronic disease alliance calls for EU’s attention and money on health
On May 16th EFA Isabel Proaño participated in the official launch of the European Chronic Disease Alliance manifesto, called “Europe’s health deserves the EU’s attention: Investing in chronic disease  ...

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How to use your inhaler?
EFA Member the Spanish Foundation of Allergic and Airways Diseases Patients’ Association (FENAER), launched in May a playful explanatory video for children to learn to use their inhaler properly. It i ...

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The Manifesto on Influenza Vaccination at the core of the vaccination week
Last 24th of April, EFA, together with the six other organisations, launched the European Union Manifesto on Influenza Vaccination. The Manifesto, which was launched online in March, is now open for s ...

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ERS severe asthma satellite
EFA’s president Mikaela Odemyr (Stockholm) and Susanna Palkonen (Brussels) took part in the ERS first ever Satellite symposium, dedicated to where we are with diagnosis, treatment and care for severe  ...

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Patients are driving the future of Severe Asthma research through ERS SHARP
SHARP is a Clinical Research Collaboration promoted by the European Respiratory Society. It stands for Severe Heterogeneous Asthma Research Collaboration, Patient centred and it aims to facilitate stu ...

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The Swiss Pulmonary League launches 11 learning video clips for children with asthma in German, French and Italian
EFA Member, the Swiss Pulmonary League, has launched eleven learning video clips to help children with asthma manage better their condition. It complements traditional education and helps affected chi ...

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PRESS RELEASE: World Asthma Day 2018
Life is possible for patients with severe asthma Provided that they have accurate diagnosis Brussels, 1st May 2018 – WORLD ASTHMA DAY – Today European asthma patients are joining voices under the  ...

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Some patients with asthma are affected… SEVERELY!
In March we travelled to the UK and kicked-off our new project “Severely, Asthma!”, a video series that explores the different issues impacting the life of severe asthma patients. Severe asthma is sub ...

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EU Summit on airways diseases, air pollution and mobile health
Digital tools are already part of our daily life, whether they are mobile applications or connected machines. In health, digital tools can play a key role in allowing guided self-management, leading t ...

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MyAirCoach will be presented at the most influential 2018 digital health conference
MyAirCoach is almost a reality! The consortium will participate at HIMSS & HEALTH 2.0 conference in Spain next May 27-29, the most influencial eHealth at EU level that will help expose this soluti ...

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Asthma Society of Ireland phone line helped 70% of those under 50 to avoid missing school or work as a result of their asthma
EFA Member the Asthma Society of Ireland FREE Adviceline service has showed extensive positive impacts for service users. The recent partnership research showed that 70% of service users aged 50 years ...

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Take the survey: does your lung disease affect family planning and pregnancy?
The European Respiratory Society (ERS) and the Thoracic Society of Australia and New Zealand (TSANZ) are looking for information to understand how people with a lung condition are currently cared for  ...

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What's new - Clinical trials

In March we travelled to the UK and kicked-off our new project “Severely, Asthma!”, a video series that explores the different issues impacting the life of severe asthma patients. Severe asthma is sub ...

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EFA's Roberta Savli participated on the 25th of January in the Stakeholder Forum meeting of the BBMRI-ERIC. The meeting served to identify the priorities of action and to organize and agree on the wor ...

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Latest research - Clinical trials

EFA organised the final event of AirPROM, an EU funded project that during five years has pulled out the best knowledge of lung research in Europe to come up with a virtual model of the human lungs. E ...

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On the 9th of September, the Chair of the EFA COPD Working Group, Michael Wilken, represented COPD patients’ views on the IMI GetReal COPD case study workshop held in Frankfurt, Germany. Launched in ...

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Key Facts

4,000 clinical trials
are authorised each year in the European Economic Area (EEA)

61% of clinical trials
are sponsored by the pharmaceutical industry

39% of clinical trials
are sponsored by non-commercial sponsors, mainly academia