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    Because breathing is taken for granted, we work for better recognition of chronic respiratory diseases

Patient Materials section

We are collecting patient education materials from our membership all over Europe.

This activity is framed under EFA's Patient Education Working Group, integrated by European patient experts advocates in health literacy, patient rights and ehealth.

The existing materials gatehered through the Working Group will be classified in this section to promote their use and dissemination among patients, practicioners and companies.

For more information please contact isabel.proano@efanet.org   

Health Technology Assessment (HTA) in the spotlight in the European Parliament
In July, the European Parliament committee for Internal Market and Consumer Protection (IMCO) adopted its opinion on a report done by the Environment, Public Health and Food Safety Committee (ENVI) ...

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You too can Define your Asthma! A worldwide campaign
The Global Allergy and Asthma Patient Platform (GAAPP) of which we are Board Member has launched “Define Your  Asthma”, an educational campaign to “provide knowledge, confidence and impetus for a ...

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We want a future cooperation on HTA with patients at the center
On the 5thof June, we attended “What future for EU cooperation on HTA?” organised by the European Parliament Interest Group on Access to HealthCare, in cooperation with the Patient Access Partnership  ...

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Happy Anniversary Public Health!
EFA congratulates 25 years old European Public Health Alliance EPHA with the message that prevention is better than cure! We took part in their celebration of the journey and impact that EPHA has ha ...

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EFA at ERS Presidential Summit
The president of the European Respiratory Society (ERS) Mina Gaga hosted in her home country a summit to "redesign the future of healthcare in respiratory diseases". EFA was represented by Susanna  ...

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ENSP International Conference on Tobacco Control: new tobacco products, new evidence, need for stricter regulations
On the 14-16thJune, EFA Isabel Proaño participated at the European Network for Smoking and Tobacco Prevention (ENSP) International Conference on Tobacco Control hosted in Madrid. As partners of the  ...

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Myaircoach in MedTech week
For the 4th time, national associations and companies active on medical devices organised from 4-8 June activities across Europe to promote the value of life-changing technologies. This year MedTech ...

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IMI and its 10 years of medical innovation, the example of U-BIOPRED
On June 27th we were 400 participants to celebrate an outstanding achievement on medical research. In the last ten years, the Innovative Medicine Initiative has done more than 100 European projects an ...

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EU Health Commissioner invited us to present our views on HTA
On May 15th we were amongst the 8 patient, consumer and public health associations invited by the EU Commissioner on Health and Food Safety Vytenis Andriukaitis to present our views on the proposed ...

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We presented our Atopic Eczema Score of Emotional Consequences at the EAACI Congress
Every year we are active participants in the most important gathering from the allergologists community, the annual European Academy of Allergy and Clinical Immunology (EAACI) Congress celebrated i ...

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Suggestions from EMA Digital Health topic group
As official members of the European Medicines Agency Patients’ and Consumers’ Working Party (PCWP), we are also very active in several of the agency’s topic groups to ensure that the regulatory work d ...

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Medical Technology and Health Workshop EPF-MedTech on HTA
*EPF Credits* On Thursday 24th May we participated in a workshop on Health Technology Assessment (HTA) and Medical Technologies organized by MedTech and the European Patients Forum (EPF). HTA i ...

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Do you know how community care can improve patients' access to care?
This 25th May, we took part in a workshop organized by MedTech and the European Patients Forum (EPF) to explore how community care can ensure equal and broad access to medical technologies for patient ...

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Check the air quality in your city! WHO publishes the biggest ambient air pollution database
This May 2018, the World Health Organisation has updated the ambient air quality database, which now covers 4,300 cities in 108 countries. These data are the world’s most comprehensive database on amb ...

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MyAirCoach presented at HIMSS Europe and Health 2.0 conference
Technology nowadays allows patients to be surrounded with actionable data and knowledge. Sensors and trackers represent the core of the latest innovations to bring a support to us for living a heal ...

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Good diagnosis Or How to live well with severe asthma
The National Conference of the Romanian Society of Clinical Allergology and Immunology took place in Sinaia between the 17th and the 19th of May. As part of the conference, EFA Director Susanna Pal ...

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Chronic disease alliance calls for EU’s attention and money on health
On May 16th EFA Isabel Proaño participated in the official launch of the European Chronic Disease Alliance manifesto, called “Europe’s health deserves the EU’s attention: Investing in chronic disease  ...

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How to use your inhaler?
EFA Member the Spanish Foundation of Allergic and Airways Diseases Patients’ Association (FENAER), launched in May a playful explanatory video for children to learn to use their inhaler properly. It i ...

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The Manifesto on Influenza Vaccination at the core of the vaccination week
Last 24th of April, EFA, together with the six other organisations, launched the European Union Manifesto on Influenza Vaccination. The Manifesto, which was launched online in March, is now open for s ...

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ERS severe asthma satellite
EFA’s president Mikaela Odemyr (Stockholm) and Susanna Palkonen (Brussels) took part in the ERS first ever Satellite symposium, dedicated to where we are with diagnosis, treatment and care for severe  ...

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