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EFA response to EMA consultation on allergen product development in low-sized populations
The European Medicines Agency (EMA) launched a public consultation on the basis of a concept paper for a ‘Guideline for allergen products development in moderate to low-sized study populations’. The ...

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EFA Response to EMA Public Consultation on Patient Registries
The European Medicines Agency (EMA) launched a public consultation on the basis of a discussion paper focusing on the “use of patient disease registries for regulatory purposes – methodological and op ...

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EFA response to WHO invitation for public comment: Global Action Plan for Healthy Lives and Well-being
EFA provided input in the call for comments organised by the World Health Organisation (WHO), regarding strengthening collaboration among multilateral health organisations to accelerate country progre ...

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Medical Devices Regulation - Guidance on graphical symbols
The Medical Devices Regulation (2017/745 EU) entered into force in 2017 with rules being applicable after a transitional period ending in spring 2020. The new regulation contains a series of important ...

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EFA at EFPIA Annual Conference
EFA Director Susanna Palkonen attended the annual networking event of the European Federation of Pharmaceutical Industries Associations (EFPIA). The event was hosted by the Finnish EU Presidency. Ec ...

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EFA in the EU Chemicals Policy 2030 conference
EFA was present in the conference on EU chemicals policy 2030, organised by the European Chemicals Agency (ECHA) in Brussels on 27-28 June. On the 1st day, EFA joined the session on ‘Improving the reg ...

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EPSCO Council adopts tougher rules for Persistent Organic Pollutants (POPs)
On 13th June, the Council adopted stricter rules on the so-called Persistent Organic Pollutants (POPs), a list of chemical substances which are dangerous for both the human health and the environment. ...

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United Nations: Tobacco Control as Human Rights and Ministerial meeting on sustainable development
In light of the 41st session of the United Nations (UN) Human Rights Council which took place from June 14th to July 12th in Geneva, Switzerland, the Secretariat of the World Health Organisation (WHO) ...

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EFA meets patient group in Georgia
During the last five years, the EFA Capacity Building project has provided our members with tools to fill gaps in recognition and funding, but also helped to strengthen our network of patient organisa ...

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First electronic health records of patients exchanged between EU countries
From late June, first health records of patients are exchanged in the EU thanks to the cross-border electronic health services. As of now, doctors in Luxembourg will be able to receive digital patient ...

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Being prepared for holidays and festivals with allergy, asthma and eczema
Summer is for holidays. To make them as relaxing as possible, EFA members Allergy UK and Asthma-Allergy Denmark have collected tips on how to prepare for holidays and travelling with allergies, asthma ...

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SAVE THE DATE: World Atopic Eczema Day 14th September
On September 14th, EFA together with Global Skin we are marking the 2nd World Atopic Eczema Day with the theme BENEATH THE SURFACE to raise awareness and understanding of this allergic skin disease. A ...

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Allergy included for the first time in the International Classification of Diseases
The 72nd WHO World Health Assembly (WHA) held in Geneva late May adopted a revision of the International Classification of Diseases (ICD) that includes for the first time in history allergy as a disea ...

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Evaluation of the EU Environmental Action Programme: indoor and outdoor air quality failing
On May 15, the European Commission released its evaluation of the 7th Environmental Action Programme (EAP), which entered into force in 2014 and runs until 2020. This programme is crucial for the heal ...

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EFA at the EU Green Week 2019
The implementation of environmental legislation was also the main topic of this year’s EU Green Week, which took place in several cities across Europe between 13 and 17 May. EFA participated in three  ...

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Finnish EU Presidency Programme: Health insights
From 1st of July onwards, Finland will lead the European Council’s work for six months. The Scandinavian country plans to focus on the Economy of Wellbeing – an umbrella topic that encompasses policie ...

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All together to #BeatAirPollution on World Environment Day
On June 5th, the United Nations Environment Programme (UNEP) organised the World Environment Day. Established already in the early 1970s, the action day has become a global action opportunity, with mo ...

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EFA atopic eczema scientific publications
Our study ITCHING FOR LIFE – Quality of Life and costs for people with severe atopic eczema in Europe continues to be to date the largest survey conducted in Europe on quality of life, with 1,189 seve ...

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Apply to participate in the IMI pool of patient experts
The Innovative Medicine Initiative (IMI) is a public-private partnership between the European Union and the European pharmaceutical industry. It is working to improve health by speeding up the develop ...

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FFAAIR celebrates its Annual Congress
In May 2019, EFA Member Fédération Française des Associations et Amicales de malades insuffisants ou handicapés Respiratoires (FFAIR) held its Annual Congress in Bayonne, France. During the congress,  ...

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