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    Putting you at the centre of all decisions affecting your health

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    30% of the European population lives with allergies, asthma and COPD

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    Because breathing is taken for granted, we work for better recognition of chronic respiratory diseases

EFA at the Patient Access Partnership conference on the Future of Health
On 11 and 12 July, EFA was proud to contribute to the high-level conference of Patient Access Partnership (PACT) on ‘The Future of Health: Advancing the UN 2030 Sustainable Development Agenda in Europ ...

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EFA Response to EMA Public Consultation on Patient Registries
The European Medicines Agency (EMA) launched a public consultation on the basis of a discussion paper focusing on the “use of patient disease registries for regulatory purposes – methodological and op ...

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EFA response to WHO invitation for public comment: Global Action Plan for Healthy Lives and Well-being
EFA provided input in the call for comments organised by the World Health Organisation (WHO), regarding strengthening collaboration among multilateral health organisations to accelerate country progre ...

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Medical Devices Regulation - Guidance on graphical symbols
The Medical Devices Regulation (2017/745 EU) entered into force in 2017 with rules being applicable after a transitional period ending in spring 2020. The new regulation contains a series of important ...

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EFA at EFPIA Annual Conference
EFA Director Susanna Palkonen attended the annual networking event of the European Federation of Pharmaceutical Industries Associations (EFPIA). The event was hosted by the Finnish EU Presidency. Ec ...

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EFA in the EU Chemicals Policy 2030 conference
EFA was present in the conference on EU chemicals policy 2030, organised by the European Chemicals Agency (ECHA) in Brussels on 27-28 June. On the 1st day, EFA joined the session on ‘Improving the reg ...

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EPSCO Council adopts tougher rules for Persistent Organic Pollutants (POPs)
On 13th June, the Council adopted stricter rules on the so-called Persistent Organic Pollutants (POPs), a list of chemical substances which are dangerous for both the human health and the environment. ...

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United Nations: Tobacco Control as Human Rights and Ministerial meeting on sustainable development
In light of the 41st session of the United Nations (UN) Human Rights Council which took place from June 14th to July 12th in Geneva, Switzerland, the Secretariat of the World Health Organisation (WHO) ...

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EFA meets patient group in Georgia
During the last five years, the EFA Capacity Building project has provided our members with tools to fill gaps in recognition and funding, but also helped to strengthen our network of patient organisa ...

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First electronic health records of patients exchanged between EU countries
From late June, first health records of patients are exchanged in the EU thanks to the cross-border electronic health services. As of now, doctors in Luxembourg will be able to receive digital patient ...

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EFA at first ever online congress of allergic and respiratory patients in Spain
The Spanish Federation of Allergy and Airways Diseases Patients’ Associations (FENAER) inaugurated on the 8th of July in Madrid, Spain, the first Online Congress of Allergic and Respiratory Patients.  ...

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World No Tobacco Day and new respiratory patients data
On May 31st we celebrated Word No Tobacco Day with a focus on “tobacco and lung health”. At EFA we emphasised the negative effects of tobacco and smoking disseminating new data from asthma and COPD pa ...

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New EU rules on tobacco distribution
The European Commission Directorate General on Internal Market, Industry, Entrepreneurship and SMEs (DG Grow) has introduced a draft act amending the Act of 24 January 1977 on the ‘protection of  ...

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Evaluation of the EU Environmental Action Programme: indoor and outdoor air quality failing
On May 15, the European Commission released its evaluation of the 7th Environmental Action Programme (EAP), which entered into force in 2014 and runs until 2020. This programme is crucial for the heal ...

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EFA at the EU Green Week 2019
The implementation of environmental legislation was also the main topic of this year’s EU Green Week, which took place in several cities across Europe between 13 and 17 May. EFA participated in three  ...

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Finnish EU Presidency Programme: Health insights
From 1st of July onwards, Finland will lead the European Council’s work for six months. The Scandinavian country plans to focus on the Economy of Wellbeing – an umbrella topic that encompasses policie ...

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All together to #BeatAirPollution on World Environment Day
On June 5th, the United Nations Environment Programme (UNEP) organised the World Environment Day. Established already in the early 1970s, the action day has become a global action opportunity, with mo ...

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Apply to participate in the IMI pool of patient experts
The Innovative Medicine Initiative (IMI) is a public-private partnership between the European Union and the European pharmaceutical industry. It is working to improve health by speeding up the develop ...

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FFAAIR celebrates its Annual Congress
In May 2019, EFA Member Fédération Française des Associations et Amicales de malades insuffisants ou handicapés Respiratoires (FFAIR) held its Annual Congress in Bayonne, France. During the congress,  ...

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Swedish Heart & Lung Association Congress
By the end of May, EFA member Riksförbundet HjärtLung held its annual congress. Congratulations to President Inger Ros for her re-election!

Latest research - COPD

The European Respiratory Society (ERS) and the Thoracic Society of Australia and New Zealand (TSANZ) are looking for information to understand how people with a lung condition are currently cared for  ...

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During 2017 we will promote physical exercise to improve the quality of life of patients living with COPD. The first videos have already been realised by our friends and patient advocates Günther Hirs ...

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