• Medicine 1

    When patients are involved, medical research results become meaningful solutions

  • Medicine 2

    We provide patient input to the latest research for chronic diseases

  • Medicine 3

    Improving patient knowledge and involvement in clinical trials

EFA joins the leadership of PACT
PACT is an awarded innovative and inclusive ‘pact’ for fair access for patients, led by the EPF and the Bulgarian Patient Platform. Susanna joined the partners assembly in Brussels in December. The As ...

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Advocacy to increase EU research investment at the High-Level Conference on EU Research and Innovation
In March 2000, the European Union stated the ambitious goal of becoming the most competitive and dynamic knowledge based economy in the world, by 2010. To achieve it, the EU has gone through several r ...

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New study on the health costs of diesel pollution
On November 27, we represented patients with allergy and airways diseases in roundtable at the launch of the report “Health impacts and the health costs of diesel emissions in the EU”, Paying to Breat ...

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Stakeholders efforts to put health in the EU elections debate
Following the #EU4Health campaign, led by EPHA and EPF, on November 29 th the European Federation of Pharmaceutical Industries Associations (EFPIA) organised an EU Health Summit to discuss with health ...

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Feedback from the ‘European Patient Innovation Summit’
Which digital technologies have the greatest potential to empower patients? What actions can patient organisations take? These two questions were at the core of the European Patient Innovation Summit  ...

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In memoriam, Günther Hirsch, COPD advocate
Mr. Günther Hirsch passed away in peace in November 2018. As a chronic obstructive pulmonary disease (COPD) patient he was engaged in the advocacy work of the Austrian Lungen Union, an EFA Member, wer ...

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Lecture Day at World COPD Day in Prague
On 23 rd November a lecture Day on World COPD Day has been organized in Prague offering 14 interesting lectures to participants. The program was primarily meant for doctors and nurses, but it was also ...

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WHO first global air pollution conference
This October, the World Health Organisation held the first global air pollution conference. With 7 million people dying from air pollution each year, including 600 000 children, putting COPD, asthma a ...

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Capacity Building webinars
As announced in our October newsletter, our Capacity Building project is up and running with a new format to allow all our members to participate and benefit from it. We started the webinar series a ...

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It’s Vaccination Season!
Autumn is passing and winter coming, are you thinking about whether to get the vaccination against influenza, also known as the flu? And what about the pneumococcal vaccination against pneumonia? Thes ...

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The EU Health policy platform: a health meeting point
On the 12th November 2018 EFA Director of Policy and Communications Isabel Proaño participated in the EU Health Policy Platform (HPP) Annual Stakeholder Meeting. The HPP is a European Commission forum ...

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ERS-ENSP event: “H2020 funding for Tobacco Control: Scaling up for the prevention of lung diseases in the EU "
On 18th October the European Respiratory Society (ERS) and the European Network for Smoking and Tobacco Prevention (ENSP) organised an event on “H2020 funding for Tobacco Control: Scaling up for the p ...

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Recommendations for Personalized Medicine from the European PRECeDI project
On 7th of November we attended the final conference in Brussels of the EU-funded research project Personalized PREvention of Chronic DIseases (PRECeDI). The project aims to promote knowledge transfer  ...

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EFA re-newed as EMA eligible organisation
Following an annual assessment, the European Medicines Agency (EMA), the European Union agency for the evaluation of medicinal products, confirmed the continued compliance of EFA with the criteria req ...

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We discussed Digital Health workshop at the Committee of the Regions
On 25th October 2018, we were invited as speaker in the “Digital Health for all” workshop, organised by the Regional Ministry of Health of Andalusia (Andalusia Reference Site) in collaboration with th ...

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The European Patients Forum's manifesto is launched!
During a launch event on 9th October, the European Patients’ Forum launched a Manifesto calling on the political leaders of the EU, Members of the European Parliament and the future Commission, to ens ...

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HEAL’s Annual General Meeting
In October 17-18, EFA Director of Policy and Strategy Isabel Proaño participated in the Annual General Assembly of the Health and Environment Alliance (HEAL) to share best practices and move forward.  ...

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FENAER launches a shock-plan on tobacco, COPD and spirometry in Spain
In November, EFA Spanish Member FENAER launched an ambitious plan to improve diagnosis and reduce COPD deaths in Spain. The organisation has been presenting the plan to several local health ministries ...

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EFA becomes official NGO to WHO Europe
On September 20 the WHO Regional Committee for Europe adopted a decision in plenary to accredit 19 not for profit organisations, including EFA, into ‘regional non-state actors’. In other words, EFA is ...

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The involvement of patients in HTA becomes secondary for the European Parliament
On October 3, the European Parliament plenary adopted in the first reading the file on the proposal for a regulation of the European Parliament and of the Council on health technology assessment (HTA) ...

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What's new - Clinical trials

Last September 14th the atopic eczema patient community belonging to EFA’s Members marked the first ever European Atopic Eczema Awareness Day to inform and bring attention to this allergic disease  ...

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In July, our Director Susanna Palkonen chaired a meeting on behalf of the European Patients’ Forum and coordinated by the Association of Medical Research Charities UK (AMRC) to meet the Brexit taskfor ...

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Latest research - Clinical trials

EFA organised the final event of AirPROM, an EU funded project that during five years has pulled out the best knowledge of lung research in Europe to come up with a virtual model of the human lungs. E ...

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On the 9th of September, the Chair of the EFA COPD Working Group, Michael Wilken, represented COPD patients’ views on the IMI GetReal COPD case study workshop held in Frankfurt, Germany. Launched in ...

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Key Facts

4,000 clinical trials
are authorised each year in the European Economic Area (EEA)

61% of clinical trials
are sponsored by the pharmaceutical industry

39% of clinical trials
are sponsored by non-commercial sponsors, mainly academia