• Medicine 1

    When patients are involved, medical research results become meaningful solutions

  • Medicine 2

    We provide patient input to the latest research for chronic diseases

  • Medicine 3

    Improving patient knowledge and involvement in clinical trials

Irish patients will not breathe smoky coal anymore
On the 5th December, the Irish National Minister for Communications, Climate Action and Environment, Denis Naughten, announced a full Smoky Coal Ban for Ireland. Bituminous, or smoky, coal creates d ...

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Spanish respiratory patients can access online physiotherapy for free
EFA Member the Spanish FENAER has launched a website to support patients with pulmonary rehabilitation online and for free. The website can be opened in all devices and offers several videos, 3 minute ...

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On World COPD Day EFA COPDMoves into political spotlight
As representative of patients living with chronic obstructive pulmonary disease (COPD), we marked the World COPD Day on the November 15th with several publications, including a political video within  ...

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EFA among the few patients representatives at GARD
EFA participated in the global GARD (Global Alliance against Chronic Respiratory Diseases) meeting 2017 that took place in Brussels, Belgium the 9-11 November, represented by EFA Secretary of the Boar ...

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What’s the most relevant research on asthma and COPD this year? ERS respiratory update
On the 17th November EFA’s Isabel Proaño attended online the respiratory update organised by the European Respiratory Society in Stockholm, Sweden. The programme was of extreme interest for EFA’s work ...

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Longfonds launches a documentary to show the reality of COPD
EFA Dutch member Longsfonds launched a mini documentary to mark World COPD Day. In the film, Lia Breed explains her story. How she had to stop to stop working just before her retirement because she wa ...

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PRESS RELEASE: World COPD Day
Give COPD patients the chance to live healthier through exercise   Brussels, 15/11/2017 World COPD Day – Physical activity positively impacts our health and wellbeing. Under the theme The Many  ...

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EFA Patients at the leading respiratory (ERS) and dermatology (EADV) congresses
EFA Patients travelled in a delegation of five to the European Respiratory Congress to present our patients perspective on allergy, asthma and COPD to a public of more than 20,000 participants from in ...

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COPD already ranks as the second cause of death worldwide
Lancet’s Global Burden of Disease report 2017 has found that Chronic Obstructive Pulmonary Disease (COPD) is already the second highest killer all over the world, accounting for 5.36% of total deaths, ...

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New findings confirm reducing environmental risk factors could reduce Chronic Respiratory Disease
The World Health Organisation (WHO) has launched a new report that demonstrates that addressing environmental risks is essential to reduce and prevent non-communicable diseases (NCD). Among them, chro ...

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EU’s future: patients have a say
EFA has participated to the ongoing discussion on the future of the European Union, a debate set back in March with the European Commission White Paper on the Future of Europe. EFA provided a formal c ...

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Hungary, 5th European country adopting plain packaging of tobacco
Hungary has become the 5th country to implement plain packaging within the World Health Organisation (WHO) Framework Convention on Tobacco Control (FCTC) Scientific evidence shows that plain packagi ...

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New updates on U-BIOPRED, supported by EFA
The U-BIOPRED (Unbiased BIOmarkers in PREDiction of respiratory disease outcomes) outcomes, in which EFA contributed, have been summarised in an interview published by European Respiratory & Pulmo ...

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World COPD patients meet in Milan
EFA Director of Policy and Strategyr Roberta Savli participated at a Global conference on COPD representing EFA, its members and European COPD patients. The meeting took place in Milan on 13th -  ...

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Bulgarian patients organise a concert to inform about of air pollution
EFA member, the Association of Bulgarians with Bronchial Asthma, Allergy and COPD (ABBA), organised on 2nd September an acoustic concert in the cave "God's eyes" under the title "Better air for better ...

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“The word “I can’t” must not exist when you live with COPD”
Since the beginning of the year we have introduced you to COPD patients who help themselves through regular exercise in their own terms. People like us who one day get the heavy diagnosis of a tough,  ...

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Sign up and join the march for the more than 300 million people with Allergy and Asthma
You are still on time to join the 4,200 signatories of the Call to Action on Allergy and Asthma Sign now! http://www.callallergyasthma.eu/
Fossil fuel subsidies cost around €330 billion annually on airways diseases
A new report from the Health and Environment Alliance (HEAL), of which EFA is a member, shows that  every  year, air pollution from mostly fossil fuel combustion cuts short the lives of an e ...

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New tobacco cessation guidelines
Tobacco remains the most significant cause of premature death in the EU, responsible for almost 700,000 deaths every year. The European Union and its Member States have adopted different tobacco con ...

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EFA at the Spanish respiratory research network, CIBERES
On June 30th, EFA Ambassador to the South and Board Secretary Carlos Nunes participated in the annual open days of CIBERES, the Spanish Biomedical Research Network Center on Respiratory Diseases. Cibe ...

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What's new - Clinical trials

In August we sent our comments to the European Commission open consultation on the summary of results of clinical trials for laypersons. This consultation follows the new clinical trials regulation  ...

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Our continuous input into the information, evaluation and safety and development policies of medicines in Europe is an achievement that we celebrate, especially after the renewal of EFA membership to  ...

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Latest research - Clinical trials

EFA organised the final event of AirPROM, an EU funded project that during five years has pulled out the best knowledge of lung research in Europe to come up with a virtual model of the human lungs. E ...

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On the 9th of September, the Chair of the EFA COPD Working Group, Michael Wilken, represented COPD patients’ views on the IMI GetReal COPD case study workshop held in Frankfurt, Germany. Launched in ...

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Key Facts

4,000 clinical trials
are authorised each year in the European Economic Area (EEA)

61% of clinical trials
are sponsored by the pharmaceutical industry

39% of clinical trials
are sponsored by non-commercial sponsors, mainly academia