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    Putting you at the centre of all decisions affecting your health

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    30% of the European population lives with allergies, asthma and COPD

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    Because breathing is taken for granted, we work for better recognition of chronic respiratory diseases

Patient Materials section

We are collecting patient education materials from our membership all over Europe.

This activity is framed under EFA's Patient Education Working Group, integrated by European patient experts advocates in health literacy, patient rights and ehealth.

The existing materials gatehered through the Working Group will be classified in this section to promote their use and dissemination among patients, practicioners and companies.

For more information please contact isabel.proano@efanet.org   

EFA becomes official NGO to WHO Europe
On September 20 the WHO Regional Committee for Europe adopted a decision in plenary to accredit 19 not for profit organisations, including EFA, into ‘regional non-state actors’. In other words, EFA is ...

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The involvement of patients in HTA becomes secondary for the European Parliament
On October 3, the European Parliament plenary adopted in the first reading the file on the proposal for a regulation of the European Parliament and of the Council on health technology assessment (HTA) ...

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Personalised Medicine alliance discusses HTA at Parliament
On September 26, the European Alliance for Personalised Medicine (EAPM) organised a Roundtable in the European Parliament to discuss how to coordinate Health Technology Assessment between Member  ...

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European Commission report on cross-border healthcare Directive shows it helps clarify patients' rights
On 21 September, the European Commission published an implementation report on the directive on cross-border healthcare (2011/24/EU). The concept of the cross-border healthcare directive has the poten ...

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WHO - Life expectancy is on the rise in Europe but caveats for allergy and respiratory health remain
The newest European Health report by the World Health Organisation published on 12 September, shows that life we live longer in Europe. The European Health report is published every three years and is ...

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Hearing on vaccination programmes and health systems in Europe
In the light of the recent vaccine hesitancy trend, the European Commission Expert Panel on Effective Ways of Investing In Health is working on “vaccination programmes and health systems in Europe”. V ...

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The Human Biomonitoring in Europe, or how to assess our exposure to chemicals
On 28 September the Austrian EU Presidency organised in Vienna a major European conference on the health effects of environmental chemicals. The conference entitled "Human Biomonitoring in Europe -  ...

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Our health is not sufficiently protected from air pollution, says the EU Court of auditors
Every year, more than 400,000 premature deaths in the EU are caused by air pollution, resulting in significant human and economic costs. A new report from the European Court of Auditors published in ...

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Patient priorities at the International Congress of Aerobiology
From September 3-7, EFA Director of Operations and Projects travelled to Parma to speak at the International Congress of Aerobiology about the problems that respiratory allergy poses to Europeans. He  ...

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Subscribe to our free webinars to increase national patient capacity
The time for EFA’s yearly capacity building training has arrived! Do you have what it takes to be advocate for the patient needs but you are missing impact?  Do you feel you can improve this or t ...

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@EFA_Patients at the European Respiratory Society Congress
The European Respiratory Society (ERS) Congress took place this year in Paris from the 15-19 September, right after the EADV Congress. The ERS Congress is the biggest event worldwide in the respirator ...

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Respiratory physiotherapy videos now in Portuguese
EFA Spanish Member FENAER has launched a website to support patients with pulmonary rehabilitation online and for free. The website can be opened in all devices and offers several videos, 3 minutes lo ...

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SAVE THE DATE! The European Parliament Interest Group’s event on the barriers to research in chronic NCDs in Europe
Next 9th October 2018, the European Parliament Interest Group on Allergy and Asthma, is organising an event entitled “How to overcome the barriers to research in chronic NCDs in Europe? The case of al ...

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Should the EU revise the EU Ambient Air Quality Directives? Patients say YES!
The European Commission launched in May-July a process to gather information on the impact and added value of the EU Ambient Air Quality Directives from stakeholders. It is what has been fancily calle ...

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The 7th Environment Action Programme evaluated by allergy and respiratory patients
The European Commission launched a public consultation to evaluate the 7th Environment Action Programme (7th EAP), which is the strategic document that guides EU policy to reduce pollution in the air, ...

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Is the role of patients neglected in the prevention of Chronic Respiratory Disease? Our presentation at GARD
EFA Board Member, Hubert Nettel, had the honour to present in the opening of the 12th Global Alliance against Chronic Respiratory Diseases (GARD) General Meeting entitled “The Natural Step to Respirat ...

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HTA proposal approved by the European Parliament health committee leaves out some patients expectations
The proposal for a regulation on Health Technology Assessment (HTA) has been high on the agenda of the European Parliament during the last months. The Committee on the Environment, Public Health and F ...

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EU-UK patient group meets the European Commission to discuss Brexit
In July, our Director Susanna Palkonen chaired a meeting on behalf of the European Patients’ Forum and coordinated by the Association of Medical Research Charities UK (AMRC) to meet the Brexit taskfor ...

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We are members of the Digital Health group at EPF
The European Patients Forum (EPF) has recently launched a working group to guide and support its strategy on digital health with the aim of positioning the patient community as a driver of innovation  ...

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Health Technology Assessment (HTA) in the spotlight in the European Parliament
In July, the European Parliament committee for Internal Market and Consumer Protection (IMCO) adopted its opinion on a report done by the Environment, Public Health and Food Safety Committee (ENVI) ...

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