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    Putting you at the centre of all decisions affecting your health

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    30% of the European population lives with allergies, asthma and COPD

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    Because breathing is taken for granted, we work for better recognition of chronic respiratory diseases

Patient Materials section

We are collecting patient education materials from our membership all over Europe.

This activity is framed under EFA's Patient Education Working Group, integrated by European patient experts advocates in health literacy, patient rights and ehealth.

The existing materials gatehered through the Working Group will be classified in this section to promote their use and dissemination among patients, practicioners and companies.

For more information please contact isabel.proano@efanet.org   

EFA highlights the food labelling and nutrition needs of allergy and COPD patients at first EPF Nutrition task force
Last 23rd of March, EFA took part in the first EU patients’ task force on nutrition organised by the European Patients’ Forum. The kick-off of this discussion platform is of particular interest for EF ...

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EMA update on medicines for COPD and eczema
The European Medicines Agency Committee for Medical Products for Human Use (CHMP), responsible for human medicines, has granted a positive opinion on the medical products Riarify and Trydoni ...

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Take the survey: does your lung disease affect family planning and pregnancy?
The European Respiratory Society (ERS) and the Thoracic Society of Australia and New Zealand (TSANZ) are looking for information to understand how people with a lung condition are currently cared for  ...

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Swedish patients celebrate All Heart’s day
EFA president Mikaela Odemyr represented COPD patients at All Heart’s Day, in February 14th, an event  organised by EFA Swedish member the Heart and Lung association to raise awareness on cardiov ...

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COPD should be treated as a public health emergency, French patients claim
 EFA French member FFAAIR together with other patients and healthcare professionals’ organisations and with the support of a group of parliamentarians presented “Make COPD a public health emer ...

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Respiratory patients will walk the Road to Santiago: join the group!
FENAER member Alfa-1 Spain organises, in the last week of August 2018, the “Alfas en Camino 2018”, the inspiring exercising trail towards Santiago de Compostela, adapted for respiratory patients. &nbs ...

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Irish patients will not breathe smoky coal anymore
On the 5th December, the Irish National Minister for Communications, Climate Action and Environment, Denis Naughten, announced a full Smoky Coal Ban for Ireland. Bituminous, or smoky, coal creates d ...

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Spanish respiratory patients can access online physiotherapy for free
EFA Member the Spanish FENAER has launched a website to support patients with pulmonary rehabilitation online and for free. The website can be opened in all devices and offers several videos, 3 minute ...

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On World COPD Day EFA COPDMoves into political spotlight
As representative of patients living with chronic obstructive pulmonary disease (COPD), we marked the World COPD Day on the November 15th with several publications, including a political video within  ...

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EFA among the few patients representatives at GARD
EFA participated in the global GARD (Global Alliance against Chronic Respiratory Diseases) meeting 2017 that took place in Brussels, Belgium the 9-11 November, represented by EFA Secretary of the Boar ...

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What’s the most relevant research on asthma and COPD this year? ERS respiratory update
On the 17th November EFA’s Isabel Proaño attended online the respiratory update organised by the European Respiratory Society in Stockholm, Sweden. The programme was of extreme interest for EFA’s work ...

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Longfonds launches a documentary to show the reality of COPD
EFA Dutch member Longsfonds launched a mini documentary to mark World COPD Day. In the film, Lia Breed explains her story. How she had to stop to stop working just before her retirement because she wa ...

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PRESS RELEASE: World COPD Day
Give COPD patients the chance to live healthier through exercise   Brussels, 15/11/2017 World COPD Day – Physical activity positively impacts our health and wellbeing. Under the theme The Many  ...

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EFA Patients at the leading respiratory (ERS) and dermatology (EADV) congresses
EFA Patients travelled in a delegation of five to the European Respiratory Congress to present our patients perspective on allergy, asthma and COPD to a public of more than 20,000 participants from in ...

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COPD already ranks as the second cause of death worldwide
Lancet’s Global Burden of Disease report 2017 has found that Chronic Obstructive Pulmonary Disease (COPD) is already the second highest killer all over the world, accounting for 5.36% of total deaths, ...

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New findings confirm reducing environmental risk factors could reduce Chronic Respiratory Disease
The World Health Organisation (WHO) has launched a new report that demonstrates that addressing environmental risks is essential to reduce and prevent non-communicable diseases (NCD). Among them, chro ...

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EU’s future: patients have a say
EFA has participated to the ongoing discussion on the future of the European Union, a debate set back in March with the European Commission White Paper on the Future of Europe. EFA provided a formal c ...

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Hungary, 5th European country adopting plain packaging of tobacco
Hungary has become the 5th country to implement plain packaging within the World Health Organisation (WHO) Framework Convention on Tobacco Control (FCTC) Scientific evidence shows that plain packagi ...

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New updates on U-BIOPRED, supported by EFA
The U-BIOPRED (Unbiased BIOmarkers in PREDiction of respiratory disease outcomes) outcomes, in which EFA contributed, have been summarised in an interview published by European Respiratory & Pulmo ...

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World COPD patients meet in Milan
EFA Director of Policy and Strategyr Roberta Savli participated at a Global conference on COPD representing EFA, its members and European COPD patients. The meeting took place in Milan on 13th -  ...

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