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    Putting you at the centre of all decisions affecting your health

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    30% of the European population lives with allergies, asthma and COPD

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    Because breathing is taken for granted, we work for better recognition of chronic respiratory diseases

Patient Materials section

We are collecting patient education materials from our membership all over Europe.

This activity is framed under EFA's Patient Education Working Group, integrated by European patient experts advocates in health literacy, patient rights and ehealth.

The existing materials gatehered through the Working Group will be classified in this section to promote their use and dissemination among patients, practicioners and companies.

For more information please contact isabel.proano@efanet.org   

We spoke about adrenaline auto-injectors at the 2019 EAACI 2019 Congress
EFA participated in the European Academy of Allergy and Clinical Immunology (EAACI) Congress, celebrated in Lisbon from 1st to 5th June. The Congress is the biggest world allergy forum in the world, a ...

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EFA response to EMA consultation on information on lactose
The European Medicines Agency (EMA) launched a public consultation that discussed the ‘Information for the package leaflet regarding lactose used as an excipient in medicinal products for human use’.  ...

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Apply to participate in the IMI pool of patient experts
The Innovative Medicine Initiative (IMI) is a public-private partnership between the European Union and the European pharmaceutical industry. It is working to improve health by speeding up the develop ...

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EFA signs joint letter to Codex Alimentarius Commission on food allergen labelling
EFA has co-signed a joint letter addressed to the Codex Alimentarius Commission (CAC), the body responsible for all matters regarding the implementation of the Joint Food Standards Programme of the Fo ...

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Can people in Europe afford to pay for healthcare? New WHO Report
The World Health Organisation (WHO) has conducted the first systematically report to monitor healthcare related financial protection in Europe. It focuses on financial hardship and unmet needs for hea ...

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WHO publishes first guidelines on digital health interventions
Over the last years, digital tools and solutions have increased their presence within the health sector. Their added value is to be found in numerous aspects, including access to information, diagnosi ...

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European Parliament approves new rules to boost food safety and consumer trust
Two months after EU ministers agreed on the revision of the food law, last April the European Parliament endorsed revisions put forward by the European Commission for an updated EU General Food Law. T ...

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Join EFA webinar on patients’ data and research
The introduction of the General Data Protection Regulation in 2018 has risen concerns on the ownership and use of personal data. The use of personal data is necessary in medical research to enable new ...

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Increasing reporting of food allergen management problems in the Netherlands
EFA Member, Dutch Food Allergy Foundation, has started a campaign encouraging patients with food allergies and intolerances to report bad experiences within public establishments to the National Repor ...

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What it is like to live with food allergies in Italy
EFA Member, Foodallergy Italia, has conducted many activities around the EFA FOOD DETECTives project and the social media campaign #DetectiveFood. The project aims at collecting good and bad examples  ...

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EFA launches #ShowLeadership campaign
Living with allergies and airways diseases has become a daily burden for over 200 million people in Europe. The drastic increase of people living with allergy, asthma and COPD has overwhelmed the Euro ...

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EFA launches #DetectiveFood to denounce malpractice of allergen labelling
To mark World Allergy Week celebrated last 7-13 of April 2019, EFA together with its Members launched a social media campaign called #DetectiveFood. First EFA project specifically focused on food al ...

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WHO urges stronger action to reduce deaths from Non-Communicable diseases in Europe
On April 9th and 10th, the World Health Organisation (WHO) held a High-Level Conference on Non Communicable Diseases (NCDs) in Turkmenistan. The discussions were focused on national actions to reduce  ...

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Delivering patient value discussed at EU Parliament
To mark the 13th European Patients’ Rights Day, EFA attended the conference on ‘Delivering patient value throughout the healthcare system’ organised in the European Parliament by the Active Citizenshi ...

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EFSA launches new framework to evaluate the cocktail effects of chemicals in food
We are constantly exposed to chemicals in our daily life. It is in the cookies we eat, the cosmetics we use, and the clothes that we wear. Fortunately, most of them do not harm the majority of the pop ...

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Stichting Voedselallergie: Broadcast on food safety in hospitals
A survey co-organised by EFA Member Stichting Voedselallergie (Dutch Food Allergies Foundation) shows that hospitals are not always taking care of food allergies of their patients. EFA Board memb ...

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EFA continues to be the only patient organisation working with European Chemicals Agency
The European Chemicals Agency (ECHA) organised its annual Accredited Stakeholder Workshop on 21 March 2019 in Brussels to mainly discuss ECHA’s Strategic Plan 2019-2023 with official stakeholders, lik ...

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Rare diseases: A new platform to support better diagnosis and treatment
In light of the Rare Disease Day in February, the European Commission has launched a new online knowledge-sharing platform to support better diagnosis and treatment for more than 30 million Europeans  ...

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European Food Safety Authority discusses civil society concerns
The use and presence of pesticides, and their classification as endocrine disruptors where among the top food-related health concerns that civil society representatives discussed with European Safety  ...

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Quaterly Summary from EFA Working Groups
In December 2018 and January 2019 we organised follow-up calls with EFA Working Groups to discuss hot topics and share national experiences important for allergy and airways diseases patients. Food  ...

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