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    30% of the European population lives with allergies, asthma and COPD

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    Because breathing is taken for granted, we work for better recognition of chronic respiratory diseases

Patient Materials section

We are collecting patient education materials from our membership all over Europe.

This activity is framed under EFA's Patient Education Working Group, integrated by European patient experts advocates in health literacy, patient rights and ehealth.

The existing materials gatehered through the Working Group will be classified in this section to promote their use and dissemination among patients, practicioners and companies.

For more information please contact isabel.proano@efanet.org   

EFA response to EMA consultation on allergen product development in low-sized populations
The European Medicines Agency (EMA) launched a public consultation on the basis of a concept paper for a ‘Guideline for allergen products development in moderate to low-sized study populations’. The ...

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EFSA publishes guidance on the use of threshold of toxicological concern approach in food safety assessment
The European Food Safety Authority (EFSA) carried out a public consultation to receive input from the scientific community and all interested parties on the guidance on the use of the Threshold of Tox ...

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Medicines for rare diseases and children conference
On June 17th, the European Commission Directorate General for Health and Food Safety (DG SANTE) organised a conference on medicines for rare diseases and children. About 150 experts were present from  ...

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First electronic health records of patients exchanged between EU countries
From late June, first health records of patients are exchanged in the EU thanks to the cross-border electronic health services. As of now, doctors in Luxembourg will be able to receive digital patient ...

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Catering staff knows too little about food allergies
A new study on restaurant staff reveals low levels of food allergy knowledge and negative attitudes about serving people with food allergies. The study carried out in Germany conducted structured face ...

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Being prepared for holidays and festivals with allergy, asthma and eczema
Summer is for holidays. To make them as relaxing as possible, EFA members Allergy UK and Asthma-Allergy Denmark have collected tips on how to prepare for holidays and travelling with allergies, asthma ...

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We spoke about adrenaline auto-injectors at the 2019 EAACI 2019 Congress
EFA participated in the European Academy of Allergy and Clinical Immunology (EAACI) Congress, celebrated in Lisbon from 1st to 5th June. The Congress is the biggest world allergy forum in the world, a ...

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EFA response to EMA consultation on information on lactose
The European Medicines Agency (EMA) launched a public consultation that discussed the ‘Information for the package leaflet regarding lactose used as an excipient in medicinal products for human use’.  ...

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Apply to participate in the IMI pool of patient experts
The Innovative Medicine Initiative (IMI) is a public-private partnership between the European Union and the European pharmaceutical industry. It is working to improve health by speeding up the develop ...

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EFA signs joint letter to Codex Alimentarius Commission on food allergen labelling
EFA has co-signed a joint letter addressed to the Codex Alimentarius Commission (CAC), the body responsible for all matters regarding the implementation of the Joint Food Standards Programme of the Fo ...

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Can people in Europe afford to pay for healthcare? New WHO Report
The World Health Organisation (WHO) has conducted the first systematically report to monitor healthcare related financial protection in Europe. It focuses on financial hardship and unmet needs for hea ...

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WHO publishes first guidelines on digital health interventions
Over the last years, digital tools and solutions have increased their presence within the health sector. Their added value is to be found in numerous aspects, including access to information, diagnosi ...

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European Parliament approves new rules to boost food safety and consumer trust
Two months after EU ministers agreed on the revision of the food law, last April the European Parliament endorsed revisions put forward by the European Commission for an updated EU General Food Law. T ...

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Join EFA webinar on patients’ data and research
The introduction of the General Data Protection Regulation in 2018 has risen concerns on the ownership and use of personal data. The use of personal data is necessary in medical research to enable new ...

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Increasing reporting of food allergen management problems in the Netherlands
EFA Member, Dutch Food Allergy Foundation, has started a campaign encouraging patients with food allergies and intolerances to report bad experiences within public establishments to the National Repor ...

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What it is like to live with food allergies in Italy
EFA Member, Foodallergy Italia, has conducted many activities around the EFA FOOD DETECTives project and the social media campaign #DetectiveFood. The project aims at collecting good and bad examples  ...

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EFA launches #ShowLeadership campaign
Living with allergies and airways diseases has become a daily burden for over 200 million people in Europe. The drastic increase of people living with allergy, asthma and COPD has overwhelmed the Euro ...

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EFA launches #DetectiveFood to denounce malpractice of allergen labelling
To mark World Allergy Week celebrated last 7-13 of April 2019, EFA together with its Members launched a social media campaign called #DetectiveFood. First EFA project specifically focused on food al ...

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WHO urges stronger action to reduce deaths from Non-Communicable diseases in Europe
On April 9th and 10th, the World Health Organisation (WHO) held a High-Level Conference on Non Communicable Diseases (NCDs) in Turkmenistan. The discussions were focused on national actions to reduce  ...

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Delivering patient value discussed at EU Parliament
To mark the 13th European Patients’ Rights Day, EFA attended the conference on ‘Delivering patient value throughout the healthcare system’ organised in the European Parliament by the Active Citizenshi ...

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