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    Because breathing is taken for granted, we work for better recognition of chronic respiratory diseases

Patient Materials section

We are collecting patient education materials from our membership all over Europe.

This activity is framed under EFA's Patient Education Working Group, integrated by European patient experts advocates in health literacy, patient rights and ehealth.

The existing materials gatehered through the Working Group will be classified in this section to promote their use and dissemination among patients, practicioners and companies.

For more information please contact isabel.proano@efanet.org   

European Food Safety Authority discusses civil society concerns
The use and presence of pesticides, and their classification as endocrine disruptors where among the top food-related health concerns that civil society representatives discussed with European Safety  ...

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EFA calls for a European Air Quality strategy at the European Health Parliament
EFA was invited to bring the perspective of allergy and airways diseases patients to a debate on environment and human health at the 3rd Plenary of the European Health Parliament, an advocacy forum co ...

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EU digital prescriptions system kicks off in Finland and Estonia
We welcome the initiative giving patients the possibility to use digital prescriptions: prescriptions issued by a doctor at home can be issued when going to a pharmacist in another EU member state.  ...

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Environmental agency calls for action to protect Europeans from air pollution and noise
Better alignment of social and environment policies and improved local action is necessary to tackle environmental justice issues. These are the results of a report issued by the European Environment  ...

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New EFA publication: the impact of Atopic Eczema on daily life
Atopic eczema is one of the most common non-communicable inflammatory diseases. Still, its impact on patients’ lives is often underestimated and ignored. In 2018, we studied the impact severe atopic e ...

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Many obstacles remain to the involvement of patients in the ongoing EU HTA environment
On January 16th, EFA attended the annual meeting of the Health Technology Assessment Network Stakeholder Pool, hosted by the European Commission. During the meeting, participants discussed about how t ...

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Health Topics to be addressed by the Romanian Presidency
In January, Romania took over the EU Council Presidency for the first time since the country joined the EU in 2007. Until June 2018, Romania will ensure the follow up on key policies, such as the HTAo ...

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EFA joins the leadership of PACT
PACT is an awarded innovative and inclusive ‘pact’ for fair access for patients, led by the EPF and the Bulgarian Patient Platform. Susanna joined the partners assembly in Brussels in December. The As ...

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Stakeholders efforts to put health in the EU elections debate
Following the #EU4Health campaign, led by EPHA and EPF, on November 29 th the European Federation of Pharmaceutical Industries Associations (EFPIA) organised an EU Health Summit to discuss with health ...

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WHO first global air pollution conference
This October, the World Health Organisation held the first global air pollution conference. With 7 million people dying from air pollution each year, including 600 000 children, putting COPD, asthma a ...

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Capacity Building webinars
As announced in our October newsletter, our Capacity Building project is up and running with a new format to allow all our members to participate and benefit from it. We started the webinar series a ...

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It’s Vaccination Season!
Autumn is passing and winter coming, are you thinking about whether to get the vaccination against influenza, also known as the flu? And what about the pneumococcal vaccination against pneumonia? Thes ...

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The EU Health policy platform: a health meeting point
On the 12th November 2018 EFA Director of Policy and Communications Isabel Proaño participated in the EU Health Policy Platform (HPP) Annual Stakeholder Meeting. The HPP is a European Commission forum ...

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Healthier solutions for access to medicines
On 23d October 2018, the European Consumer Organisation (BEUC) organised an event entitled “Healthier solutions for access to medicines” that was meant to shed light on what needs to happen to develop ...

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Recommendations for Personalized Medicine from the European PRECeDI project
On 7th of November we attended the final conference in Brussels of the EU-funded research project Personalized PREvention of Chronic DIseases (PRECeDI). The project aims to promote knowledge transfer  ...

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We discussed Digital Health workshop at the Committee of the Regions
On 25th October 2018, we were invited as speaker in the “Digital Health for all” workshop, organised by the Regional Ministry of Health of Andalusia (Andalusia Reference Site) in collaboration with th ...

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The European Patients Forum's manifesto is launched!
During a launch event on 9th October, the European Patients’ Forum launched a Manifesto calling on the political leaders of the EU, Members of the European Parliament and the future Commission, to ens ...

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HEAL’s Annual General Meeting
In October 17-18, EFA Director of Policy and Strategy Isabel Proaño participated in the Annual General Assembly of the Health and Environment Alliance (HEAL) to share best practices and move forward.  ...

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FENAER launches a shock-plan on tobacco, COPD and spirometry in Spain
In November, EFA Spanish Member FENAER launched an ambitious plan to improve diagnosis and reduce COPD deaths in Spain. The organisation has been presenting the plan to several local health ministries ...

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EFA becomes official NGO to WHO Europe
On September 20 the WHO Regional Committee for Europe adopted a decision in plenary to accredit 19 not for profit organisations, including EFA, into ‘regional non-state actors’. In other words, EFA is ...

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