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    Because breathing is taken for granted, we work for better recognition of chronic respiratory diseases

Patient Materials section

We are collecting patient education materials from our membership all over Europe.

This activity is framed under EFA's Patient Education Working Group, integrated by European patient experts advocates in health literacy, patient rights and ehealth.

The existing materials gatehered through the Working Group will be classified in this section to promote their use and dissemination among patients, practicioners and companies.

For more information please contact isabel.proano@efanet.org   

Should the EU revise the EU Ambient Air Quality Directives? Patients say YES!
The European Commission launched in May-July a process to gather information on the impact and added value of the EU Ambient Air Quality Directives from stakeholders. It is what has been fancily calle ...

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The 7th Environment Action Programme evaluated by allergy and respiratory patients
The European Commission launched a public consultation to evaluate the 7th Environment Action Programme (7th EAP), which is the strategic document that guides EU policy to reduce pollution in the air, ...

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Is the role of patients neglected in the prevention of Chronic Respiratory Disease? Our presentation at GARD
EFA Board Member, Hubert Nettel, had the honour to present in the opening of the 12th Global Alliance against Chronic Respiratory Diseases (GARD) General Meeting entitled “The Natural Step to Respirat ...

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HTA proposal approved by the European Parliament health committee leaves out some patients expectations
The proposal for a regulation on Health Technology Assessment (HTA) has been high on the agenda of the European Parliament during the last months. The Committee on the Environment, Public Health and F ...

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EU-UK patient group meets the European Commission to discuss Brexit
In July, our Director Susanna Palkonen chaired a meeting on behalf of the European Patients’ Forum and coordinated by the Association of Medical Research Charities UK (AMRC) to meet the Brexit taskfor ...

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We are members of the Digital Health group at EPF
The European Patients Forum (EPF) has recently launched a working group to guide and support its strategy on digital health with the aim of positioning the patient community as a driver of innovation  ...

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Do you support atopic eczema patients? Put the filter on
To mark #AtopicEczemaDay we have launched a social media filter to raise awareness about a disease that goes beyond the skin. We want to catch people’s attention and force them look behind a skin that ...

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SAVE THE DATE: 1st European Atopic Eczema Awareness day programme
Next 14th September, we are marking the 1st awareness day around atopic eczema to bring attention to a very common disease touching 1 in 5 children and up to 3% of adults in Europe. Atopic eczema, als ...

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Health Technology Assessment (HTA) in the spotlight in the European Parliament
In July, the European Parliament committee for Internal Market and Consumer Protection (IMCO) adopted its opinion on a report done by the Environment, Public Health and Food Safety Committee (ENVI) ...

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We want a future cooperation on HTA with patients at the center
On the 5thof June, we attended “What future for EU cooperation on HTA?” organised by the European Parliament Interest Group on Access to HealthCare, in cooperation with the Patient Access Partnership  ...

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Happy Anniversary Public Health!
EFA congratulates 25 years old European Public Health Alliance EPHA with the message that prevention is better than cure! We took part in their celebration of the journey and impact that EPHA has ha ...

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EFA at ERS Presidential Summit
The president of the European Respiratory Society (ERS) Mina Gaga hosted in her home country a summit to "redesign the future of healthcare in respiratory diseases". EFA was represented by Susanna  ...

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ENSP International Conference on Tobacco Control: new tobacco products, new evidence, need for stricter regulations
On the 14-16thJune, EFA Isabel Proaño participated at the European Network for Smoking and Tobacco Prevention (ENSP) International Conference on Tobacco Control hosted in Madrid. As partners of the  ...

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IMI and its 10 years of medical innovation, the example of U-BIOPRED
On June 27th we were 400 participants to celebrate an outstanding achievement on medical research. In the last ten years, the Innovative Medicine Initiative has done more than 100 European projects an ...

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EU Health Commissioner invited us to present our views on HTA
On May 15th we were amongst the 8 patient, consumer and public health associations invited by the EU Commissioner on Health and Food Safety Vytenis Andriukaitis to present our views on the proposed ...

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We presented our Atopic Eczema Score of Emotional Consequences at the EAACI Congress
Every year we are active participants in the most important gathering from the allergologists community, the annual European Academy of Allergy and Clinical Immunology (EAACI) Congress celebrated i ...

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Medical Technology and Health Workshop EPF-MedTech on HTA
*EPF Credits* On Thursday 24th May we participated in a workshop on Health Technology Assessment (HTA) and Medical Technologies organized by MedTech and the European Patients Forum (EPF). HTA i ...

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Do you know how community care can improve patients' access to care?
This 25th May, we took part in a workshop organized by MedTech and the European Patients Forum (EPF) to explore how community care can ensure equal and broad access to medical technologies for patient ...

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Chronic disease alliance calls for EU’s attention and money on health
On May 16th EFA Isabel Proaño participated in the official launch of the European Chronic Disease Alliance manifesto, called “Europe’s health deserves the EU’s attention: Investing in chronic disease  ...

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 First European Alpha-1 Awareness Day
On the 25th of April, EFA’s Roberta Savli took part in an EU Roundtable on Alpha-1 Antitrypsin Deficiency (a genetic disorder that can cause serious lung or liver disease, including COPD), marking the ...

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