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    Putting you at the centre of all decisions affecting your health

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    30% of the European population lives with allergies, asthma and COPD

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    Because breathing is taken for granted, we work for better recognition of chronic respiratory diseases

Patient Materials section

We are collecting patient education materials from our membership all over Europe.

This activity is framed under EFA's Patient Education Working Group, integrated by European patient experts advocates in health literacy, patient rights and ehealth.

The existing materials gatehered through the Working Group will be classified in this section to promote their use and dissemination among patients, practicioners and companies.

For more information please contact isabel.proano@efanet.org   

EU Health Commissioner invited us to present our views on HTA
On May 15th we were amongst the 8 patient, consumer and public health associations invited by the EU Commissioner on Health and Food Safety Vytenis Andriukaitis to present our views on the proposed ...

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We presented our Atopic Eczema Score of Emotional Consequences at EAACI Congress
Every year we are active participants in the most important gathering from the allergologists community, the annual European Academy of Allergy and Clinical Immunology (EAACI) Congress celebrated i ...

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Medical Technology and Health Workshop EPF-MedTech on HTA
*EPF Credits* On Thursday 24th May we participated in a workshop on Health Technology Assessment (HTA) and Medical Technologies organized by MedTech and the European Patients Forum (EPF). HTA i ...

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Do you know how community care can improve patients' access to care?
This 25th May, we took part in a workshop organized by MedTech and the European Patients Forum (EPF) to explore how community care can ensure equal and broad access to medical technologies for patient ...

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Chronic disease alliance calls for EU’s attention and money on health
On May 16th EFA Isabel Proaño participated in the official launch of the European Chronic Disease Alliance manifesto, called “Europe’s health deserves the EU’s attention: Investing in chronic disease  ...

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 First European Alpha-1 Awareness Day
On the 25th of April, EFA’s Roberta Savli took part in an EU Roundtable on Alpha-1 Antitrypsin Deficiency (a genetic disorder that can cause serious lung or liver disease, including COPD), marking the ...

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Respiratory patients will walk the Road to Santiago: join the group!
FENAER member Alfa-1 Spain organises, in the last week of August 2018, the “Alfas en Camino 2018”, the inspiring exercising trail towards Santiago de Compostela, adapted for respiratory patients. &nbs ...

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EFA Patients at the leading respiratory (ERS) and dermatology (EADV) congresses
EFA Patients travelled in a delegation of five to the European Respiratory Congress to present our patients perspective on allergy, asthma and COPD to a public of more than 20,000 participants from in ...

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EFA joins the Global Charter for Lung Health and signs for an official recognition of a World Lung Day
In the frame of the publication of the Global Impact report, the Forum of International Respiratory Diseases launch a Global Charter for Lung Health and call on World Health Organisatio ...

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EFA Atopic Eczema project (ongoing)
Atopic eczema is one of the most common non-communicable inflammatory skin diseases, affecting 1-3% adults in the EU who suffer chronic or relapsing itching. Eczema can drive patients crazy, but what  ...

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Swiss new learning air quality platform for pupils of aged 13 to 16
French and German speaking Swiss pupils, can now explore the air they breathe though an online platform put developed by Swiss federal office of environment. EFA Member the Swiss LungenUnion has colla ...

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New website! Steps to take to fly with medical oxygen
Are you or someone you know going on a trip and need to have medical oxygen therapy on-board a plane? We are delighted to launch a new EFA website to guide people with COPD and any other respiratory p ...

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Moisturisers for eczema: they do work!
The dry and itchy skin in people with eczema makes it common sense to use a moisturiser. However, it wasn’t known if moisturisers really are beneficial and whether one moisturiser might be preferable  ...

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Respira turns 10!
EFA Member the Portuguese COPD patients association RESPIRA has celebrated its 10th anniversary in Lisbon on the 23rd February. During the meeting they presented RESPIRA’s growth and activities during ...

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First congress of allergy respiratory patients in Spain
On the occasion of World COPD Day EFA Spanish Member FENAER, organized the First Congress of Allergy and Respiratory Patients in Madrid. During the event, FENAER presented the outcome of their latest  ...

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Chronic diseases in Europe: the Commission is urged to act
EFA, the European Chronic Diseases Alliance (ECDA) and other public health organisations have sent an open letter to the European Commission urging them to act on chronic diseases. Chronic diseases  ...

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European Medicines Agency celebrates 10 years of collaboration with patients
Our continuous input into the information, evaluation and safety and development policies of medicines in Europe is an achievement that we celebrate, especially after the renewal of EFA membership to  ...

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New air quality legislation approved in Europe
A deal on the National Emissions Ceilings (NEC) Directive has been reached under the Dutch Presidency of the European Union between the Parliament, the European Commission and the Council of the EU.  ...

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Take part in the Commission public consultations for patient-friendly clinical trials
In the month of June, the European Commission has launched four new public consultations on clinical trials. The consultations are on risk proportionate approaches, on the summary of the clinical tria ...

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Norway closer to adopt plain tobacco packaging
Thanks to public calls from patient organisations like EFA Member the Norwegian Asthma and Allergy Foundation (NAAF), the Norweigian Minister of Health has sent to Parliament a proposal to adopt a new ...

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