- Medical Technology and Health Workshop EPF-MedTech on HTA
- *EPF Credits* On Thursday 24th May we participated in a workshop on Health Technology Assessment (HTA) and Medical Technologies organized by MedTech and the European Patients Forum (EPF). HTA i ...
- Do you know how community care can improve patients' access to care?
- This 25th May, we took part in a workshop organized by MedTech and the European Patients Forum (EPF) to explore how community care can ensure equal and broad access to medical technologies for patient ...
- Chronic disease alliance calls for EU’s attention and money on health
- On May 16th EFA Isabel Proaño participated in the official launch of the European Chronic Disease Alliance manifesto, called “Europe’s health deserves the EU’s attention: Investing in chronic disease ...
- First European Alpha-1 Awareness Day
- On the 25th of April, EFA’s Roberta Savli took part in an EU Roundtable on Alpha-1 Antitrypsin Deficiency (a genetic disorder that can cause serious lung or liver disease, including COPD), marking the ...
- Respiratory patients will walk the Road to Santiago: join the group!
- FENAER member Alfa-1 Spain organises, in the last week of August 2018, the “Alfas en Camino 2018”, the inspiring exercising trail towards Santiago de Compostela, adapted for respiratory patients. &nbs ...
- EFA Patients at the leading respiratory (ERS) and dermatology (EADV) congresses
- EFA Patients travelled in a delegation of five to the European Respiratory Congress to present our patients perspective on allergy, asthma and COPD to a public of more than 20,000 participants from in ...
- EFA joins the Global Charter for Lung Health and signs for an official recognition of a World Lung Day
- In the frame of the publication of the Global Impact report, the Forum of International Respiratory Diseases launch a Global Charter for Lung Health and call on World Health Organisatio ...
- EFA Atopic Eczema project (ongoing)
- Atopic eczema is one of the most common non-communicable inflammatory skin diseases, affecting 1-3% adults in the EU who suffer chronic or relapsing itching. Eczema can drive patients crazy, but what ...
- Swiss new learning air quality platform for pupils of aged 13 to 16
- French and German speaking Swiss pupils, can now explore the air they breathe though an online platform put developed by Swiss federal office of environment. EFA Member the Swiss LungenUnion has colla ...
- New website! Steps to take to fly with medical oxygen
- Are you or someone you know going on a trip and need to have medical oxygen therapy on-board a plane? We are delighted to launch a new EFA website to guide people with COPD and any other respiratory p ...
- Moisturisers for eczema: they do work!
- The dry and itchy skin in people with eczema makes it common sense to use a moisturiser. However, it wasn’t known if moisturisers really are beneficial and whether one moisturiser might be preferable ...
- Respira turns 10!
- EFA Member the Portuguese COPD patients association RESPIRA has celebrated its 10th anniversary in Lisbon on the 23rd February. During the meeting they presented RESPIRA’s growth and activities during ...
- First congress of allergy respiratory patients in Spain
- On the occasion of World COPD Day EFA Spanish Member FENAER, organized the First Congress of Allergy and Respiratory Patients in Madrid. During the event, FENAER presented the outcome of their latest ...
- Chronic diseases in Europe: the Commission is urged to act
- EFA, the European Chronic Diseases Alliance (ECDA) and other public health organisations have sent an open letter to the European Commission urging them to act on chronic diseases. Chronic diseases ...
- European Medicines Agency celebrates 10 years of collaboration with patients
- Our continuous input into the information, evaluation and safety and development policies of medicines in Europe is an achievement that we celebrate, especially after the renewal of EFA membership to ...
- New air quality legislation approved in Europe
- A deal on the National Emissions Ceilings (NEC) Directive has been reached under the Dutch Presidency of the European Union between the Parliament, the European Commission and the Council of the EU. ...
- Take part in the Commission public consultations for patient-friendly clinical trials
- In the month of June, the European Commission has launched four new public consultations on clinical trials. The consultations are on risk proportionate approaches, on the summary of the clinical tria ...
- Norway closer to adopt plain tobacco packaging
- Thanks to public calls from patient organisations like EFA Member the Norwegian Asthma and Allergy Foundation (NAAF), the Norweigian Minister of Health has sent to Parliament a proposal to adopt a new ...
- Building up an association for Georgian patients
- On the 31st of May EFA met with Dr Maia Rukhadze from Georgia, who is a leading allergologist working in Tbilisi. Dr Rukhadze, a patient herself, is confronted with a steep rise on the prevalence of a ...