• Medicine 1

    When patients are involved, medical research results become meaningful solutions

  • Medicine 2

    We provide patient input to the latest research for chronic diseases

  • Medicine 3

    Improving patient knowledge and involvement in clinical trials

Air pollution is everywhere, but in what form? – ERS Masterclass
Whilst the air we breathe has immediate effects on our health, the quality and control of the air depend on many factors, sometimes unknown to patients because too technical. We thank in advance the E ...

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Juncker replies to health community concerns about the future of the EU
Since before the summer, EFA together with other health non-for-profit stakeholders at European level, has been calling on the EU to do more on health as a response to the debate around the future of  ...

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Build Up Webinar: Health performance of Nearly Zero Energy Buildings
EFA continue to raise awareness on indoor air pollution and the need to improve Indoor Air quality (IAQ). This time, EFA's Roberta Savli explained ‘The importance of good IAQ and ventilation’ at the B ...

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New call for projects on health for Horizon 2020
 The European Commission is committed to guarantee better health for all, and therefore every two years the DG Research and Innovation provide funding opportunities for responding to Health, Demo ...

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On World COPD Day EFA COPDMoves into political spotlight
As representative of patients living with chronic obstructive pulmonary disease (COPD), we marked the World COPD Day on the November 15th with several publications, including a political video within  ...

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Meet&Greet the EU training - Empowering EFA members on Health Technology Assessment
In November we welcomed our Member representatives to a thematic Meet&Greet the EU training that this year focused on patients’ involvement on Health Technology Assessment. The meeting gathered 10 ...

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EFA calls for the right to good indoor air quality at REHVA conference
EFA Director of Strategy and Policy Roberta Savli participated on the 14th November at the “Delivering healthy & energy efficient building with Energy performance on Buildings Directive (EPBD)” su ...

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Europe beyond coal campaign at COP 23
According to a new health impact modelling, in 2015 the EU’s coal fleet alone was responsible for an estimated 19,500 premature death, 10,000 cases of chronic bronchitis in adults and 458,000 asthma a ...

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Amsterdam will be the European city for the evaluation of medicines
The European Medicines Agency (EMA) will move from London to Amsterdam (The Netherlands) by March 2019. The EMA is the EU agency in charge of medicines evaluation and safety monitoring.  The relo ...

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Patients’ empowerment in the spotlight at the European Parliament
The Politico’s Spotlight: “Prevention and patient empowerment: who, when and how?” that took place at the European Parliament on the 20th November focused on how to improve patients’ empower ...

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Indoor Air Quality vaguely covered in the revision of the Energy Performance of Buildings directive
The ITRE committee of the European Parliament (Industry, Energy and Research) voted last 11th of October not to include binding provisions to improve the quality of the air in indoor spaces. The ITRE  ...

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Timid health activities planned for 2018 by the European Commission
The European Commission (EC) adopted on the 24th of October the Work Programme 2018, which sets up the EC’s priorities for next year activities. Unfortunately, health appeared not to be an immediate c ...

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The EU Public Health programme evaluation
The EU Health programme was subject of mid-term evaluation during the 20th European Health Forum Gastein that took place the 4th-6th of October. During the evaluation, Martin Seychell, Deputy Direc ...

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We are far from the harmonisation of allergen labelling in the EU
“Allergen labelling is a complex issue to approach within the European Union”, concludes the report on “Harmonisation of Approaches for informing EU Allergen labelling legislation” published by the Eu ...

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New report on the effective ways to invest in health
Access to healthcare is as important as healthcare itself. The Expert Panel on Effective Ways of Investing in Health’s, formed by the European and international health care expert community stablished ...

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Digital Health becomes a priority for the European Medicines Agency
In October the European Medicines Agency launched a new topic group on digital health that will provide insights and recommendations to the agency on how to tackle the digital dimension of medicines a ...

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EFA brings the patients perspective to the European Chemical Agency meeting for the first time
EFA participated for the first time to the European Chemical Agency’s (ECHA) communicator’s network meeting on the 19th October, as a civil society representative affected by the daily use of chemical ...

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What if asthma disappears with a virus? CURE, the project consortium in which EFA participates
Current treatments allow many asthma patients to control their disease. However, medicine is not yet capable of proposing a cure for asthma. Despite the many ground-breaking discoveries that have impr ...

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The challenges of self-managing diseases at PRO-STEP conference
It is widely recognized that self-management of chronic diseases is key to ensure improved quality of life for the patients. However, it is still difficult to picture integrated approaches that put pa ...

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EFA Patients at the leading respiratory (ERS) and dermatology (EADV) congresses
EFA Patients travelled in a delegation of five to the European Respiratory Congress to present our patients perspective on allergy, asthma and COPD to a public of more than 20,000 participants from in ...

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What's new - Clinical trials

In August we sent our comments to the European Commission open consultation on the summary of results of clinical trials for laypersons. This consultation follows the new clinical trials regulation  ...

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Our continuous input into the information, evaluation and safety and development policies of medicines in Europe is an achievement that we celebrate, especially after the renewal of EFA membership to  ...

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Latest research - Clinical trials

EFA organised the final event of AirPROM, an EU funded project that during five years has pulled out the best knowledge of lung research in Europe to come up with a virtual model of the human lungs. E ...

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On the 9th of September, the Chair of the EFA COPD Working Group, Michael Wilken, represented COPD patients’ views on the IMI GetReal COPD case study workshop held in Frankfurt, Germany. Launched in ...

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Key Facts

4,000 clinical trials
are authorised each year in the European Economic Area (EEA)

61% of clinical trials
are sponsored by the pharmaceutical industry

39% of clinical trials
are sponsored by non-commercial sponsors, mainly academia