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The European Commission advances on “may contain” allergen labelling
EFA brought to a European Commission workshop on precautionary labelling the patients perspective to abolish “may contain” mentions. With 17 million Europeans affected by food allergies, allergen info ...

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European Medicines Agency celebrates 10 years of collaboration with patients
Our continuous input into the information, evaluation and safety and development policies of medicines in Europe is an achievement that we celebrate, especially after the renewal of EFA membership to  ...

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EU conclusions to make more balanced pharmaceutical systems
On the 17th of June, the Council of the European Union issued conclusions on strengthening the balance in the pharmaceutical systems in the EU and its Member States. The Council recognises the importa ...

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EFA statement on value and pricing of innovative medicines
EFA shares the European Patients’ Forum (EPF) view that health is a fundamental right for everyone and therefore medicines, which allow for this right to be fully enjoyed by all people, should not be  ...

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Treat the person, not the disease – Outcomes of the Personalised Medicine Conference
Personalised medicine is seen as part of a wider shift from disease-centred to person-centred healthcare, from one-size-fits-all, to individualized treatment and prevention. “To realise this shift, pa ...

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EFA calls for more and better public funding for patients groups
On the 30th of June, the Committee on Budget of the European Parliament voted an own-initiative report on public funding for non-profit organisations. EFA, the European Patients’ Forum (EPF) and other ...

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How to invest on health to improve patient access to care?
With 18 million patients declaring unmet needs on healthcare access (3.6% of the EU population), the European Commission Expert Panel on Effective Ways of Investing in Health, an independent commissio ...

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European Commission warns about health impact of e-cigarettes
Tobacco remains the most significant cause of premature death in the EU, responsible for almost 700,000 deaths every year. The EU Tobacco Products Directive introduced new provisions regarding health  ...

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European Parliament fights illicit trade of tobacco products
In the EU, tobacco continues to be the most significant cause of premature deaths responsible for nearly 700,000 deaths every year. One week after the World No Tobacco Day, the European Parliament rat ...

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New air quality legislation approved in Europe
A deal on the National Emissions Ceilings (NEC) Directive has been reached under the Dutch Presidency of the European Union between the Parliament, the European Commission and the Council of the EU.  ...

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Take part in the Commission public consultations for patient-friendly clinical trials
In the month of June, the European Commission has launched four new public consultations on clinical trials. The consultations are on risk proportionate approaches, on the summary of the clinical tria ...

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eHealth Week: technology for a better life
The Dutch Ministry of Health together with the European Commission and HIMSS Europe organised from the 8th-10th of June the eHealth Week 2016 and EFA’s Giuseppe De Carlo took part. The event gathered  ...

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More investment for prevention – Conclusions of European Health Parliament
On the 29th June, we participated in the European Health Parliament (EHP) closing session to bring the perspective of allergy, asthma and COPD patients. The European Health Parliament is a platform, ...

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Welcome to Slovakia, new EU Presidency!
On the 1st of July, Slovakia took over The Netherlands in the rotatory Presidency of the Council of the European Union. For six months, the country will set the EU priorities and lead the discussions. ...

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How are asthma patients involved in science? Dominique’s testimony
“Our dream is to have a system that better supports us." Dominique Hamerlijnck, an asthma patient from the Netherlands, volunteer at EFA Member Longfonds, has been interviewed by MedTechEurope to expl ...

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AirPROM brings a promising scanning tool for respiratory patients
EFA organised the final event of AirPROM, an EU funded project that during five years has pulled out the best knowledge of lung research in Europe to come up with a virtual model of the human lungs. E ...

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EU adopts new rules for medical devices – Patients will have better information on devices
On the 25th of May 2016, the Netherlands Presidency of the Council of the European Union and representatives of the European Parliament agreed new rules for evaluation and market access of medical dev ...

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European mHealth guidelines (almost) ready
The working group established this year by the European Commission is rapidly developing the guidelines for assessing the validity and reliability of mobile health applications. Following last face to ...

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Guidelines to assess quality of care include patient outcomes
At the end of April, the EC expert group on health systems performance assessment (HSPA) composed of European countries health authorities and international organisations, published its first report:  ...

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MyAirCoach, the parents’ perspective
EFA’s latest report HEY YA! identifies mHealth solutions as key tools for supporting young people with asthma in adhering to their treatment. This view is also shared by the members of the Advisory Pa ...

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