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Patient Materials section

We are collecting patient education materials from our membership all over Europe.

This activity is framed under EFA's Patient Education Working Group, integrated by European patient experts advocates in health literacy, patient rights and ehealth.

The existing materials gatehered through the Working Group will be classified in this section to promote their use and dissemination among patients, practicioners and companies.

For more information please contact isabel.proano@efanet.org   

European Atopic Eczema Day
Last September 14th the atopic eczema patient community belonging to EFA’s Members marked the first ever European Atopic Eczema Awareness Day to inform and bring attention to this allergic disease  ...

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New President for the food allergy patients in France
AFPRAL, the French Association for the Prevention of Allergies, has a new elected president, Pascale Couratier, replacing exiting President Véronique Olivier. Pascale has been working for AFPRAL for m ...

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EUROPEAN REPORT: Itching for life - Quality of Life and costs for people with severe atopic eczema in Europe
EFA's 2018 European report Itching for Life: Quality of Life and costs for people living with severe atopic eczema in Europe uncovers the reality of atopic eczema, a chronic inflammatory skin dis ...

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FFAAIR brings the patient perspective and needs to major respiratory congresses in France
2018 has started with a bunch of important events devoted to respiratory diseases in France, and EFA Member FFAAIR has been an active member in many of them: the Franchophone Lung Society Congress cel ...

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COPD should be treated as a public health emergency, French patients claim
 EFA French member FFAAIR together with other patients and healthcare professionals’ organisations and with the support of a group of parliamentarians presented “Make COPD a public health emer ...

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Join French allergy patients to get access to desensitisation treatments
EFA member AFPRAL (in French, l’Association Française pour la Prévention des Allergies) launched in January a campaign defending the reimbursement for allergy desensitisation treatments. French heal ...

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EFA and FFAAIR work together to build capacity
EFA met with French member FFAAIR (French Federation of people with respiratory diseases) on the 15th November in Paris. The objective of this reencounter was to follow-up with the Capacity Building s ...

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Severe food allergy campaign in France
EFA’s Member the French Association for the Prevention of Allergies has launched a new campaign to raise awareness about the severity of food allergy. A press conference on the campaing will be organi ...

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Comic on COPD diagnosis and treatement
Material: A comic explaining how is COPD diagnosed and treated Original name: La BPCO, Broncho Pneumopathie Chronique Obstructive Author: French Federation of Friends of Lung and Respiratory  ...

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Launch of the Asthma Museum, a multilingual website
An initiative launched in France, originally in Russian and translated into English. That is the online Asthma Museum, a website put together by Liliya Belenko, Chair of EFA’s Patient Education Workin ...

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Comic on asthma diagnosis and treatment
Material: A comic explaining how is asthma diagnosed and treated Original name: Asthme: Depistage et Prise en Charge Author: French Federation of Friends of Lung and Respiratory Disabled Pati ...

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First steps in harmonising COPD Care across Europe
Our 2014 report “Harmonizing Prevention and Other Measures for COPD Patients across Europe” revealed varying levels of COPD care across Europe. Following on from this research, and with the help of EF ...

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Plain Packaging Developments Spreading throughout Europe
France is the latest country to introduce plain cigarette packaging from 2016. Cigarettes in France will be sold in plain packaging under a law that was finally passed in the French parliament in Dece ...

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Developments in Tobacco Control
On the 6th of November, EFA Senior EU Policy Advisor Roberta Savli participated in a meeting with the Directorate-General for Health and Food Safety (SG SANTE) and several other non-profit organisatio ...

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Emergency anaphylasis, a French patient-led campaign
Last June EFA Member the French Assocaition for Allergy Prevention (AFPRAL) launched a major awareness campaign to improve knowledge on how to perform lifesaving care in case of anaphylactic shock. Th ...

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FFAAIR Celebrates Annual Congress
EFA Member FFAAIR (Fédération Française des Associations et Amicales de malades, Insuffisants ou handicapés Respiratoires) met on 5-7 June in Grenoble to celebrate its 27th Annual General Meeting. Mor ...

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EFA Members news - March 2015
EFA Board meeting was hosted by the Asthma Society of Ireland: Thank you! EFA Board had their meeting in preparation of our upcoming Annual General Meeting (AGM) at the offices of the Asthma Soci ...

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EFA Members news (December 2014)
Irish patients ask for stronger smoky coal legislation EFA Member Asthma Society of Ireland organized an event to urge the Irish government to adopt a smoky coal ban to ensure clean air for all. Ac ...

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Minimum Standards of Care for COPD Patients in Europe
EFA is excited to release its second book concerning COPD in Europe, the EFA Book on Minimum Standards of Care for COPD patients in Europe, which was produced as a result of the EFA COPD Project. The  ...

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Member News - May 2013
Finland’s position on TPD in favour of strengthening provision The Finnish Allergy and Asthma Federation succeeded in stirring the Finnish government into adopting a general position on the Tobacco Pr ...

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