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Chronic disease alliance calls for EU’s attention and money on health
On May 16th EFA Isabel Proaño participated in the official launch of the European Chronic Disease Alliance manifesto, called “Europe’s health deserves the EU’s attention: Investing in chronic disease  ...

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How to use your inhaler?
EFA Member the Spanish Foundation of Allergic and Airways Diseases Patients’ Association (FENAER), launched in May a playful explanatory video for children to learn to use their inhaler properly. It i ...

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Italian patients celebrate the Food Allergy Awareness Week
  EFA Member Food Allergy Italia participated in the Food Allergy Awareness Week celebrated in May. Patient associations mobilise people online from the 13th to the 19th of May to show  ...

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Privacy Policy
Last updated: May 24, 2018  EFA PRIVACY POLICY In order to achieve the best engagement with our EFA Patients community, our partners, supportive audience and people who can change the lives o ...

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We welcomed a new Member and a new Board Member
On April 16-17, we celebrated our Annual General Meeting in Lisbon, Portugal, were EFA Members approved our annual 2017 report, accounts, budget and 2018 workplan. We exchanged on members’ best practi ...

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EFA leaders meeting on personalised medicine, data protection and sharing, real world evidence
The next morning day, Tuesday 17th, we welcomed six guest speakers who are the top experts on their specialty in a session that explored the future of personalised medicine and clinical data sharing.  ...

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Europe aims to have a 1 million genomics database by 2022
Health sometimes is not only linked to health ministries but to trade. Last 10th April, the European Commission Single Market directorate, celebrated the European Digital Day adopting several initiati ...

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The Manifesto on Influenza Vaccination at the core of the vaccination week
Last 24th of April, EFA, together with the six other organisations, launched the European Union Manifesto on Influenza Vaccination. The Manifesto, which was launched online in March, is now open for s ...

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Our vision for the EU is healthier
Last 19th of April, EFA together with other 14 organisations published a joint statement on the future of health in the EU, ahead of the Employment, Social Policy, Health and Consumer Affairs Council  ...

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ERS severe asthma satellite
EFA’s president Mikaela Odemyr (Stockholm) and Susanna Palkonen (Brussels) took part in the ERS first ever Satellite symposium, dedicated to where we are with diagnosis, treatment and care for severe  ...

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We presented the preliminary results of the biggest-ever atopic eczema survey for patients in Utrecht
Atopic Eczema is a very common inflammatory skin disease for which the predominant symptom is ITCHING. It is often underestimated but the signs and symptoms have a huge impact on patients’ lives. Thos ...

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Patients are driving the future of Severe Asthma research through ERS SHARP
SHARP is a Clinical Research Collaboration promoted by the European Respiratory Society. It stands for Severe Heterogeneous Asthma Research Collaboration, Patient centred and it aims to facilitate stu ...

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The Swiss Pulmonary League launches 11 learning video clips for children with asthma in German, French and Italian
EFA Member, the Swiss Pulmonary League, has launched eleven learning video clips to help children with asthma manage better their condition. It complements traditional education and helps affected chi ...

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Online chat launched for allergy and asthma patients in Sweden
EFA's Member, the Asthma and Allergy Association of Sweden, has a web service called AllergiSmart, targeting people who have or are close to someone with asthma, allergy or other type of hypersensitiv ...

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 First European Alpha-1 Awareness Day
On the 25th of April, EFA’s Roberta Savli took part in an EU Roundtable on Alpha-1 Antitrypsin Deficiency (a genetic disorder that can cause serious lung or liver disease, including COPD), marking the ...

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Campaign on travelling with allergies in the UK
This year the World Allergy Week took place from the 23d of April to the 29th of April, with many patient initiatives to raise awareness about allergies. EFA Member Allergy UK focused on the topic o ...

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PRESS RELEASE: World Asthma Day 2018
Life is possible for patients with severe asthma Provided that they have accurate diagnosis Brussels, 1st May 2018 – WORLD ASTHMA DAY – Today European asthma patients are joining voices under the  ...

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Some patients with asthma are affected… SEVERELY!
In March we travelled to the UK and kicked-off our new project “Severely, Asthma!”, a video series that explores the different issues impacting the life of severe asthma patients. Severe asthma is sub ...

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EU Summit on airways diseases, air pollution and mobile health
Digital tools are already part of our daily life, whether they are mobile applications or connected machines. In health, digital tools can play a key role in allowing guided self-management, leading t ...

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EFA supports the European Association of Hospital Pharmacists statement
Last month EFA supported the European Statements of Hospital Pharmacy, the joint objectives formulated by the European Association of Hospital Pharmacists (EAHP) following a 18-month review process. W ...

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