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EFA Projects Round-up

Molenbeek Air Pollution Measuring Station 1

EFA COPD Project – Minimum Standards for COPD Care for Europe!

In May, EFA office finalised the new questionnaire outlining the guidelines for minimum standardisation of care for COPD patients in Europe. The questionnaire was sent to all EFA members representing COPD patients who are kindly asked to complete the survey for final evaluation.

Our partners ERS, Almirall, Boehringer Ingelheim, Chiesi and Novartis can support EFA members on national level in case they need help finding relevant references to answer all questions in the questionnaire.

If you know our partners’ national contacts, feel free to contact them directly. If not, please do not hesitate to ask EFA Project and Fundraising Officer Antje Fink-Wagner for our partners’ national contact details.

 

New free Allergy Track app launched

Allergy Track is a new mobile app which helps people suffering from allergy to stay on track with their allergic and respiratory symptoms during critical periods and helps measuring the impact of their allergy. It has been developed by Stallergenes with voluntary input from the European Federation of Allergy and Airways Diseases Patients Associations (EFA), which received no profit for its role. This mobile app follows the evolution of allergic disease and enables patients to:

  • report an allergic episode to evaluate symptoms’ intensity and frequency
  • measure the impact of their allergy on their activities
  • consult their diary  to check the evolution of their condition
  • receive alerts when allergy season begins
  • find tips to avoid or minimize exposure to respiratory allergens

The application can be downloaded from the App Store and Google Play.

 

Results of the AirPROM AGM published

Main outcomes, discoveries and future objectives of the AirPROM projects discussed at its Annual General Meeting in April in Barcelona were now published. The AGM brought together people from different professional backgrounds including scientists, doctors, IT experts, mathematicians and patient representatives. The main aims of the meeting were:

  • to update members on progress within each group working on different parts of the project, known as ‘work packages’
  • to deepen the integration and collaboration among all work packages (WPs)
  • to discuss current issues and how to resolve them
  • to identify future objectives

AirPROM has entered in its 3rd year and has already achieved many objectives, and made some interesting discoveries. These and other key results will be confirmed and presented through academic publications and knowledge sharing platforms, such as the partner project eTRIKS.

The main challenge faced by the researchers continues to be integrating models and making them work in practice. The focus of the project now is to integrate the WPs, develop reliable computer models and turn them into useful tools for clinicians and patients, which can lead to personalised treatment of patients.

For more information check the projects website.

 

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