EFA/ECC event to mark the 2013 World COPD Day

  • david
  • Thursday, November 28, 2013
  • Seminar Venue 2 - Residence Palace - Ipc

European Federation of Allergy and Airways Diseases Patients Associations and the The European COPD Coalition

 

Under the auspices of the

The EU Lithuanian presidency

 

Invite you to celebrate:

 

World COPD Day 2013:

 

What role for diseases and patients in shaping Horizon 2020?

 

A COPD case study of patient involvement

 

World COPD Day: it’s not too late…. Or is it?

 

Residence Palace, Brussels

Thursday 28 November 2013

 

 

8.30 -10.00 Welcome coffee, registration and spirometryJoin us before the start of the conference for a free spirometry test: get your lung capacity assesses with a simple test. It does not take more than 10 minutes.
10.00 – 11.00 Is Horizon 2020 fit to accommodate disease specific research? Is it too late to make it fit for disease purpose? A Member of the European Commission Directorate for Research will open the discussions by presenting the Health part of Horizon 2020, the EU research funding programme.Political leaders will then share their perspectives on the programme, to answer the questions in the title of the session and highlight the added value of patient involvement in research projects, prior to opening the floor to discussions.
11.00 – 11.30 Coffee break and free lung testingRespiratory healthcare professionals will be on-site to offer you a free lung test
11.30 – 12.30 What is the best care for COPD and how can research improve standards of care for COPD? During this session, we will raise awareness of current research deficiencies in the field of COPD and in care; we will inform stakeholders of patient needs through revealing results of EFA’s survey presented in a patient-driven booklet on minimum standards of care for COPD patients in Europe and encourage prompt actions for changes in COPD care and research. Discussions from the perspectives of patients, primary care and research will together highlight the importance of national standards for COPD care.
12.30 – 13.30 Lunch break and free lung testing
13.30 – 14.30 Patients working with academia and policy makers to inform ResearchThe final session of the day will be focusing on the issue of how patient involvement has occurred in EU research and research policymaking as well as how it can improve in the future so patients can influence topics which may directly affect their quality of life thus enabling research based on needs.
14.30 – 15.30 Spirometry

 

 

Venue : Residence Palace: Rue de la Loi, 155 – 1040 (across the European Commission Charlemagne building).

 

This conference is organized by ECC and EFA. ECC receives unrestricted funding from pharmaceutical companies www.copdcoalition.eu/members and EFA funding for this event is through our sustainable funding partners Air Liquide, Almirall, Boehringer Ingelheim, Chiesi & Novartis www.efanet.org/funding-partners.

 

The event is to mark World COPD Day, which is an annual awareness-raising event organized and sponsored by the Global Initiative for Chronic Obstructive Lung Disease (GOLD). For more information please visit www.goldcopd.org/wcd-home.html

 

The event has been already added to the calendar of the Lithuanian presidency of the Council of the European Union.

Click here to see the Pdf version of the programme, including further information and the speakers.

To register, please click here

Efa in meetings

EFA has been busy racing around over the last few weeks (literally!). We participated in the the ELF Lung Run, hosted a stand at the ERS World Village in Vienna, took part in the EMA Patient and Consumer working party, attended a ‘patient think-tank’, received training in health technology and participated in a meeting on paediatric medicines.

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