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The European Pulmonary Hipertension Assocation has launched a call to action to improve Organ Donation and Transplantation across the EU. Organ transplantation is vital for the treatment and quality of life of patients of all ages - including children - living with a wide variety of conditions, such as the ones affecting the liver, kidneys, heart, lungs, pancreas, small bowel and eyes. In many cases, organ transplantation is the only treatment option remaining - and a matter of survival. This is the case, for example, in pulmonary arterial hypertension (PAH), a rare and life-threatening lung/heart condition. While the EU is taking a number of positive steps to address this situation - by means of an Action Plan, funding of projects and a Directive on standards of quality and safety of human organs - large differences in practices and results exist across the EU. The demand for organs still exceeds the number of available organs in all EU Member States. Moreover, the demand for organs is increasing faster than organ donation rates.

The Pulmonary Hypertension Association Europe is taking the lead in a campaign to improve organ donation and transplantation across the EU, in cooperation with other patient associations including EFA, as this issue is crucial in a number of conditions other than PAH, including many rare ones.

PHA Europe’s members, for their part, have committed to promoting this Call to Action and to advocating for better awareness, availability, and access to organ transplantation on a wide scale and mapping the current state of play of the field of heart/lung transplantation in their respective countries.

Show you care, join the call to improve lung donation and transplantation.