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Member News

Electronic food handbook from Norway

As part of the efforts to keep up to date with the technological development, our Norwegian member Norges Astma- og Allergiforbund (NAAF) has launched the Allergy Phrasebook as application to your smartphone.

The application is ideal for people who have food allergies and are travelling. The app allows you to communicate your allergies to restaurant staff or shop assistants.
See the app on Google Play >> https://play.google.com/store/apps/details?id=no.naaf.allergytranslation

The Allergy Phrasebook allows you to translate phrases, dishes and similar associated with a variety of food allergies. You can then select the phrase or word relevant to your allergy and it will show up in the chosen language. The Allergy Phrasebook makes it easy for you or the person you are talking to, to switch between different phrases or words.
The Allergy Phrasebook is free, with Norwegian and English as the default languages. In addition, you can purchase languages ​​like German, Spanish, French, Italian, Greek or Arabic.

The allergies covered in the app are:
• Fish
• Egg
• Wheat
• Nuts
• Shellfish
• Milk

The Allergy Phrasebook will also be available for Windows Phones in the near future.
The app is developed by the Asthma and Allergy Association with support from the Extra Foundation Rehabilitation and Health.

 

Implementing the National Asthma Programme in Ireland could reduce the €501m annual cost of asthma related illness to State

  • 1.4 million Work days are missed each year due to asthma related illnesses, costing the economy approximately €194.6 million in lost earnings.
  • Parents of children with asthma lose €67.5 million in earnings due to absence from work
  • Total production losses due to asthma are estimated at €262.1 million per year.
  • Around one person a week dies in Ireland from asthma and 90% of these deaths are preventable.
  • HSE National Asthma Programme aims to reduce asthma deaths by 90% over 10 years

Asthma Society of Ireland today (27th of February) launched The Case for Change: Implementing the National Clinical Programme for Asthma.

The Health Service Executive’s National Asthma Programme (NAP) has a vision that “every person with asthma should reach their maximum health and quality of life potential through the prevention, early detection and effective treatment of asthma”. In their report launched today, the Asthma Society outlines how implementing the NAP will not only save lives, but will reduce costs to the State and pressure on the health service.

The report estimates that asthma related illnesses cost the State €501.2million per annum, €262.1million of which is the loss in productivity from asthma related absences.

The Case for Change proposes an initial investment of €2.5million in 2014 for the first phase of the Programme, which would result in reduced pressure on secondary health services, fewer asthma related deaths, better control of asthma symptoms and a significantly better quality of life for the 470,000 people affected by asthma in Ireland.

The Asthma Society is the voice of people with asthma in Ireland and firmly believes that empowering patients to play a key role in their own asthma management is central to their health and wellbeing. The Case for Change outlines how enrolling patients in a structured asthma programme can drastically improve their health.

Drawing on experience abroad, the report outlines the successes achieved in Finland and Australia following the implementation of similar models of care.

Read the full article here.

 

Allergy UK Launches One-Day Event for Allergy Sufferers

Allergy UK is excited to be launching its first Annual Conference on Saturday the 26th of April 2014. The event, which will be held within St Thomas’ Hospital, London is focused on improving the experience of allergy sufferers who are going through the different stages of their allergic journey.

World renowned allergy expert, Professor Peter Howarth, will talk about all the recent and current research projects that will help manage allergies that can appear from birth through “The Allergic March” and at any time later in life. The day will include the practical tools and techniques that really make a difference to those who regularly seek our help. The conference will address those all-to-common problems such as how to gain an initial diagnosis through the challenges the National Health Service can present and how to get the correct diagnosis and treatment.

To read more click here.

To see the programme and all the information about the event click here.

 

News from FENAER

FENAER has denounced the disinterest in the Spanish Ministry of Health in improving the quality of life for its citizens with rare diseases, including those who find themselves with respiratory conditions like idiopathic pulmonary fibrosis and cystic fibrosis. In Spain, new medications that would help these patients were blocked, while in other parts of Europe these medications are working optimally. FENAER interprets this signal from its government as a desire of its Ministry of Health to only govern for healthy citizens, despite them being in smaller numbers by the day due to environmental contamination, malnutrition and other lifestyle problems resulting from unemployment. For more information (in Spanish) please follow the link:

http://www.elglobal.net/noticias-medicamento/2014-02-07/industria-farmaceutica/las-politicas-de-austeridad-ponen-en-riesgo-la-autorizacion-de-huerfanos/pagina.aspx?idart=813711&utm_source=mail&utm_medium=newsletter&utm_campaign=elglobal.

In addition, FENAER has also participated in NEUMOMADRID’s with patient associations for respiratory diseases on Tuesday the 18th of February. The agenda included updates from the communications director of NEUMOMADRID, the patient associations present and concerning the XIX NEUMOMADRID Congress. The attendees also discussed joint actions for upcoming dates to commemorate different respiratory diseases for 2014 while adopting a series of measures to plan for the XIX NEUMOMADRID Congress, which will take place on the 3rd and 4th of April 2014. FENAER itself offered to coordinate data collection, consensus and commitment to the medical scientist society of NEUMOMADRID for necessary for conducting the congress.

Lastly, the President of FENAER, Marivy Palomares, was interviewed by a journalist from a leading newspaper for healthcare in Spain, Redacción Médica, where she described FENAER’s mission and objectives as well as the role of patients in the Spanish healthcare system. She stated that the greatest worry at the present is “to improve the quality of life of the patient with different activities like teaching the correct use of inhalers, as an example, so that the patient obtains the maximum benefit from the treatments which are available.” She outlined various projects ongoing in the Federation, its position on anti-tobacco law and other future goals in Spanish healthcare.

 

News from our members in Finland

South Karelia day-care centers as pilots:  Nature children’s everyday life

The Association of Kindergartens, the national allergy programme demographic information campaign, as well as the South Karelia Allergy and Environment Institute will collaborate in early childhood education with the theme of “Close to Nature and Your Health!” The project aims to increase children’s relationship with nature and promote their health.

It is based on new evidence that proves that strong relationship with nature reinforces immune systems of children. All kinds of activities in nature help to reduce the burden for individuals and the society of the so-called ‘welfare’ and to improve the quality of life.

There are two pilot day care centers in 2014 in Lappeenranta, Finland.

During the spring also a nationwide survey of 3 700 Finnish daycare centers will be carried out. The pilot and survey together collect demographic information in a campaign to support the health-based approach to early childhood education as a guide.

If all goes as expected, day care centers in Lappeenranta would be only the beginning. The allergy programme aims to support early childhood education across Finland from 2016-18.

 

The Allergy Program is in full swing

The national allergy program 2008-2018 is intended for public education and raising awareness of allergy. The initiators are the Ministry of Health and Social Affairs along with the National Public Health Institute. In order to reduce the burden of allergies, as well as reduce the cost of care, a new strategy is needed.

The allergy health of the population is strengthened by shifting from symptom relief to prevention. Resilience can be improved, for instance, by reducing unnecessary allergy avoidance among patients.

The allergy programme is related to Population Communication Project which started in 2011. It is conducted by the Allergy and Asthma Federation, Pulmonary Association and the Skin Diseases Association. The project’s target groups are children, young people and their families.

The aim is to educate citizens about ways by which they can overcome persistent living concepts and practices that restrict many allergy patients from living uncompromised lives. The project does this by encouraging families living in urban environments to strengthen their relationship with nature and thus improve their immune systems.

The main platform for the project is www.allergiaterveys.fi

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