EFA highlights patient involvement in Systems Medicine
EFA’s Susanna Palkonen spoke at the very first conference of the European Association of System’s Medicine about our experience in participating in...
EFA re-elected for HEAL Executive Committee
The Health and Environment alliance (HEAL) Annual General Assembly was held on the 20th of October to take stock of the year and plan for 2017. The AGA...
EFA brings the patient perspective to QED - mobile health conference
Ageing population is nowadays one of the main European challenges which will bring important budget pressures, especially on the healthcare system. Mobile...
Launch of smart citizen air quality meter for Belgium
On 18th October 2016 Citizens Action Brussels organised a round table discussion about the measurement of air quality in several Belgian cities.
During...
HTA: what’s next for European cooperation?
The European Commission and EunetHTA organised a forum on Health Technology Assessment on the 21st of October 2016, in Brussels.
During the Forum,...
myAirCoach was presented at EASYM conference
Involving patients in research is essential to maximize the impact of research studies results. This is even truer if the research is aimed at developing...
eTRIKS Play Decide
Data collected during research study contain important information about diseases and treatments and their impacts on patients’ life and therefore must...
EFA Meet and greet the EU– Apply now!
As every year as part of our capacity building project, EFA is organising the “EFA Meet and Greet the EU Institutional Training”, which this year fits...
New film to encourage carrying anaphylaxis medication
Following a youth survey which identified that many teenagers and young adults were not carrying their emergency medication for anaphylaxis – UK Charity...
First French national respiratory days
EFA Member FFAAIR organized for the first time the National Respiratory Days in the Chateau Monchat in Lyon, France.
The organisation prepared two days...
National conference for indoor air quality in Norway
The Norwegian Asthma and Allergy Association has hosted the national conference for indoor air quality, Thursday, 27th of October.
This year’s main...
Our Málaga-London Declaration is translated into 19 languages
Our Stop Asthma campaign, built around the Malaga-London Declaration on Asthma Research Investment, was officially launched at the ERS Congress 2016 in...
Patients are paramount at medical congresses
We were among the more than 20.000 participants that traveled to London from the 3rd till the 7th of September for the European Society Respiratory Congress....
Adherence and young patients with asthma at ERS, EMA and EHFG, and now in French German, Spanish
In September we published the translations into French, German and Spanish of our HEY YA report on young patients with asthma that we presented at the...
Society’s expectations for EU health research discussed
Patients expect that health research arises from real needs of patients with real diseases and the society as a whole that public health issues are served....
Control exposure to allergens to minimise food allergy reactions?
EFA EU Policy Adviser Daniela Morghenti participated at the workshop “How far can we control the severity of food allergenic reactions by controlling...
1st Conference on Patient Access in Eastern Europe
The Patient Access Partnership (PACT) held its first Regional Conference entitled “Cooperation within the region: a way to improve access to quality...
Allergenicity assessment of genetically modified plants: our perspective
Genetically modified (GM) plants used for food and to feed can only be marketed in Europe through a preliminary authorisation following a scientific assessment...
mHealth experts closer to draft guidelines for mHealth data reliability
The European Commission working group on mHealth continues working towards the development of guidelines for the assessment of the validity and reliability...
EMA Patients and Consumers Working Party Meeting
EFA participated in the European Medicines Agency Patients and Consumers Working Party meeting on the 21st September were eligible organisations were to...