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Patient Materials section

We are collecting patient education materials from our membership all over Europe.

This activity is framed under EFA's Patient Education Working Group, integrated by European patient experts advocates in health literacy, patient rights and ehealth.

The existing materials gatehered through the Working Group will be classified in this section to promote their use and dissemination among patients, practicioners and companies.

For more information please contact isabel.proano@efanet.org   

Material: A comic explaining how is COPD diagnosed and treated

Original name: La BPCO, Broncho Pneumopathie Chronique Obstructive

Author: French Federation of Friends of Lung and Respiratory Disabled Patients’ Associations (FFAAIR)

Language: French

Website: http://bpco.ffaair.org/ 

Tags: Category: Patient Education
Country: France
Disease area: COPD
Theme: Healthcare, Tobacco and smoking

Activity: The Allergy family support project is a three yeart project to support families with allergic children manage their everyday lives. The project has created the Allergy Family Days and the Parent Groups to create points of contact and facilitate exchange of knowledge and experiences.

The Allergy Family Days for Families provides families with children with severe allergies to meet other families in the same situation, gain knowledge and exchange experiences during a long weekend at the Swedish Asthma and Allergy Association allergy-free facility Södergården. The weekend is led by medical and educational teams.

The Parent Groups offer parents who have children with asthma, allergies or other hypersensitivity a local forum where they can meet other allergy parents to support and learn from each other.

Original name: Allergifamiljestödsprojektet

Author: Swedish Allergy and Asthma Association

Language: Swedish

Websitehttp://astmaoallergiforbundet.se/ 

Tags: Category: Patient Education
Country: Sweden
Disease area: Allergy
Theme: Healthcare

Activity: The Asthma school is an 8 day camp to provide participants who have asthma and allergies with an opportunity for physical activity and to improve their knowledge of their illness, all in a positive environment and under expert guidance. The camp takes place in Idre in the north of Sweden. In the mornings the children go crosscountry skiing with their parents and after lunch they go downhill skiing. In the late afternoons and evenings the children and parents attend different classes about asthma and allergies.

The asthma course teaches camp participants about their disease and howto take care of themselves properly in order to feel as healthy as possible. Spending time with people who have similar
disorders creates a spirit of fellowship which goes a long way to improving the participants’ quality of life. 

Original name: Astmaskola I Idre

Author: Swedish Allergy and Asthma Association

Language: Swedish

Websitehttp://astmaoallergiforbundet.se/ 

astmaskola I Idre
Tags: Category: Patient Education
Country: Sweden
Disease area: Asthma,Allergy
Theme: Healthcare

MaterialDo you what COPD is? is a booklet that describes and defines chronic obstructive pulmonary disease, its causes, symptoms and treatments. It explain how patients can improve their quality of life through physical exercise, quitting smoking or adopting a convenient diet. It also shows how to deal with fast uncontrolled developments of the disease and urgent situations.

Original name: Sabe o que é a DPOC?

Author: Portuguese Association of People with COPD and Other Chronic Respiratory Conditions

Language: Portuguese

Websitewww.respira.pt 

astmaskola I Idre
Tags: Category: Patient Education
Country: Portugal
Disease area: COPD
Theme: Healthcare

Material: Protect yourself in winter time is a booklet that provides information regarding the protections that CODP patientes should take  during winter time. It explains the importance of an adequate hygiene and nourishment, the physical exercises and the type of clothes patients should use. It also underlines the importance of vaccination as a prevention weapon to avoid increased of the disease.

Original name: Proteja-se para o Inverno

Author: Portuguese Association of People with COPD and Other Chronic Respiratory Conditions

Language: Portuguese

Websitewww.respira.pt 

astmaskola I Idre
Tags: Category: Patient Education
Country: Portugal
Disease area: COPD
Theme: Healthcare

Material: Pneumonia is a booklet that explains the causes, symptoms and treatment of pneumonia and its incidence in Portugal. 

Original name: A pneumonia

Author: Portuguese Association of People with COPD and Other Chronic Respiratory Conditions

Language: Portuguese

Websitewww.respira.pt 

astmaskola I Idre
Tags: Category: Patient Education
Country: Portugal
Disease area: Asthma,Allergy,COPD,Other diseases
Theme: Healthcare

Material: The booklet explains the basics of inhalers, their conception, the different types and why and how they should be used to obtain the best results and efficiency.

Original name: Inaladores: utilize correctamente

Author: Portuguese Association of People with COPD and Other Chronic Respiratory Conditions

Language: Portuguese

Websitewww.respira.pt 

astmaskola I Idre
Tags: Category: Patient Education
Country: Portugal
Disease area: Asthma,COPD
Theme: Healthcare

Material: This series of asthma videos explain what is lung disease and how asthma works. It explores how to deal with the disease and accept it and gives advice on how to continue a normal life, with specific tips on saving energy for cooking or showering.

Original name:Asma video series

Author: Dutch Lung Association

Language: Dutch

Websitehttps://www.longfonds.nl/ 

astmaskola I Idre
Tags: Category: Patient Education
Country: Netherlands
Disease area: Asthma,Other diseases
Theme: Healthcare

Material: This series of asthma videos explain what is lung disease and how COPD works. It explores how to deal with the disease, especially in the case of exacerbations, how to exercise, or live with lung transplants. Some videos advice on how to continue a normal life, with specific tips on saving energy for cooking or showering. 

Original name:COPD video series

Author: Dutch Lung Association

Language: Dutch

Websitehttps://www.longfonds.nl/ 

astmaskola I Idre
Tags: Category: Patient Education
Country: Netherlands
Disease area: COPD
Theme: Healthcare

Material: This series of lung research videos explain some of the elements of that are being studied now. There are videos about growth factors when repairing damaged lungs and how to get stem cells back to work. There are also videos that show the latest findings on stopping long asthma attacks, new insights on why children have asthma and how to prevent the development of the disease in infants. 

Original name:Longonderzoek

Author: Dutch Lung Association

Language: Dutch

Websitehttps://www.longfonds.nl/ 

astmaskola I Idre
Tags: Category: Patient Education
Country: Netherlands
Disease area: Asthma,COPD,Other diseases
Theme: Healthcare

Material: This video series looks into lung disease, from chronic disease such as asthma or COPD, to momentaneous conditions like pneumonia, bronchitis or pleurities.

Original name:Wat gebeurt er in je longen bij...

Author: Dutch Lung Association

Language: Dutch

Websitehttps://www.longfonds.nl/ 

astmaskola I Idre
Tags: Category: Patient Education
Country: Netherlands
Disease area: Asthma,Allergy,COPD,Other diseases
Theme: Healthcare

Material: This presentation inform patients about the diversity of chemicals we use in everyday life. The presentation explores those materials that are more suitable for allergic people.

Original name:Sadzīves ķīmija – kas mums būtu par to jāzina

Author: Latvian Asthma and Allergy Association

Language: Latvian

Website: www.astmaalergija.lv

astmaskola I Idre
Tags: Category: Patient Education
Country: Latvia
Disease area: Asthma,Allergy
Theme: Chemicals

Material: This presentation informs asthma patients about the physical activities that are recommended to them. It is important to ensure that asthma is well-controlled with medication and carefully choose the right sport, taking into account the most important thing: breathing exercises. 

Original name:Fiziskās aktivitātes astmas pacientiem

Author: Latvian Asthma and Allergy Association

Language: Latvian

Website: www.astmaalergija.lv

astmaskola I Idre
Tags: Category: Patient Education
Country: Latvia
Disease area: Asthma
Theme: Healthcare

Material: The video provides a set of exercises to ensure healthy lungs. There are nine exercises that can help loosen and expel secretions, stretch the thorax, strengthen muscles which relate to breathing. The exercises are adressed to people suffering from chronic diseases such as asthma.

Original name:Vingrojumi plaušu veselībai

Author: Latvian Asthma and Allergy Association

Language: Latvian

Website: www.astmaalergija.lv

astmaskola I Idre
Tags: Category: Patient Education
Country: Latvia
Disease area: Asthma,Allergy,COPD,Other diseases
Theme: Healthcare

Material: Chef card This chef card can help food allergy patients inform staff working in the food sector about their dietary needs. The allergic person can crop and customize the card according to their allergies. This will enable employees involved in receiving orders, kitchen chefs or managers have at their disposal brief but essential written guidelines on allergens.

Original name:Chef e allergeni card

Author: Food Allergy Italia

Language: Italian and English

Website: http://www.foodallergyitalia.org/ 

astmaskola I Idre
Tags: Category: Patient Education
Country: Italy
Disease area: Food allergy
Theme: Food labelling

Material: People with food allergy, especially if they are at risk of anaphylactic reaction, need to maintain a very high safety level when eating outside. A personalised food allergy and anaphylaxis action plan is a precaution to take to facilitate the stay outside the house of the people suffering from food allergy. 

Original name: Allergia alimentare ed anafilassi: programma di intervento in caso di emergenza / Food allergy and anaphylasis action plan in case of emergency

Author: Food Allergy Italia

Language: Italian and English

Website: http://www.foodallergyitalia.org/ 

astmaskola I Idre
Tags: Category: Patient Education
Country: Italy
Disease area: Food allergy
Theme: Food labelling

Material: Parents and school must work together to develop a relationship of mutual trust that allows children / teens with food allergies receive the care and attention needed. Thanks to the food allergy action plan, the school agrees with the parents and the child's doctor how to address his/her food allergies and to act when there is an emergency.

Original name: Allergia alimentare ed anafilassi: programma di intervento in caso di emergenza a scuola / Food allergy and anaphylasis action plan in case of emergency at school

Author: Food Allergy Italia

Language: Italian and English

Website: http://www.foodallergyitalia.org/ 

astmaskola I Idre

Material: A guide for school professionals on what it is like to live with food allergies and the precuations to take. 

Original name: Vivere con allergia alimentare

Author: Food Allergy Italia

Language: Italian 

Website: http://www.foodallergyitalia.org/ 

astmaskola I Idre
Tags: Category: Patient Education
Country: Italy
Disease area: Food allergy
Theme: Healthcare

Material: Travelling with food allergies demands a well planned stay, especially if patients plan to go abroad as language barriers can be an important obstacle to be overcome. Thanks to the check list, patients can prepare their trip in advance without leaving important things behind.

Original name: Check list da fare prima di partire

Author: Food Allergy Italia

Language: Italian 

Website: http://www.foodallergyitalia.org/ 

astmaskola I Idre
Tags: Category: Patient Education
Country: Italy
Disease area: Food allergy
Theme: Healthcare

Material: This fiche provides all the numbers needed in case of anaphylaxis. It also explains how to administer adrenaline and how to make the phone call effectively and quick.

Original name: Promemoria telefonata

Author: Food Allergy Italia

Language: Italian 

Website: http://www.foodallergyitalia.org/ 

astmaskola I Idre
Tags: Category: Patient Education
Country: Italy
Disease area: Food allergy
Theme: Healthcare