Presentations

For all of the events EFA attends, presents or hosts there are always a variety of PowerPoint presentations available afterwards to the public. Many contain concise synopses of EFA positions, while others outline actions for current and upcoming projects or present the latest information on specific disease areas. All presentations from EFA which contain content for the public are accessible by clicking the links below:

 

EFA training for patient experts on allergy, asthma and COPD on getting involved with the European Medicines Agency (EMA) – February 18, 2014

Isabelle Moulon, Head of Patients and Healthcare Professionals Department, EMA secretariat – Introduction to the European Medicines Agency

Isabelle Moulon, Head of Patients and Healthcare Professionals Department, EMA secretariat – How to involve patients in EMA activities and training tools available

Susanna Palkonen, EFA Director – How to fill in the administrative forms at EMA

Lina Buzermaniene, EFA Board Member – Being involved in reviewing information to patients

Breda Flood, EFA President – Being involved in evaluation of medicines: the case of Scientific Advisory Group meetings

EFA-ECC Event “What role for diseases and patients in shaping Horizon 2020? A COPD case study of patient involvement: Residence Palace, Brussels – November 28, 2013

Grigorij Kogan, DG Research and Innovation, European Commission – COPD in FP7 Funding of Health Research and Research Priority Setting for Health in Horizon 2020
Mike Galsworthy, University College London – Past problems and future opportunities: Horizon 2020 and the health sciences
Sylvia Hartl, Otto Wagner hospital in Vienna – The State of Play in COPD Care in Europe – An EFA Survey
Isabel Saraiva, RESPIRA & Michael Wilken, Patientenliga Atemwegserkrankungen – Patient Driven Minimum Standards of Care for Europe
Rupert Jones, IPCRG – COPD standards of care recommended by physicians and the role of research in improving them
Pim de Boer, Longfonds – Patient as partner in research: role of patients and requirements of scientists
Nathalie Seigneuret, Innovative Medicines Platform – Innovative Medicines Initiative as a public-private partnership moving COPD research forward
Karin Kadenbach, Member of European Parliament – The Real World Burden of Chronic Obstructive Pulmonary Disease (COPD)

EFA “Meet and Greet the European Union Institutions 2013” Training

Roberta Savli, EFA EU Policy Officer – Health Policy in the EU & EFA Advocacy Priorities
David Brennan, EFA Membership & Programme Officer – Functioning of the EU
Susanna Palkonen, EFA Executive Officer – The Role of Stakeholders in Brussels
Laurène Souchet, EPF – Working With Stakeholders
Scott Brockett, DG ENV of the European Commission – The Review of the EU Air Policy

EFA Networking Day: Rome, Italy – June 1, 2013

Member Presentations

Allergy UK, Jim Bennett & Lindsay MacManus - The Allergy UK Nurses Appeal
ANIXI, Marianella Salapatas – Events
Asthma Society of Ireland, Sharon Cosgrove – 2012 – 2013 Highlights
Astma-Allergi Danmark, Betina Hjorth – New Apps for Smartphones
FENAER, Marivy Palomares – Food Allergy in Children and COPD Patient Pulmonary Rehabilitation
FENAER, Marivy Palomares – Development of a Health 2.0 Educational Programme for Food Allergy (CESA Project)
Finnish Asthma and Allergy Federation, Ilkka Repo & Niki Alanko – News From Finland
Norwegian Asthma and Allergy Federation, Trond Solvang – COPD Patients on the Move
Norwegian Asthma and Allergy Federation, Anne-Elisabeth Eriksrud – A Collaborative Approach to Improving Indoor Air Quality in Schools and Child Care Centres
Patientenliga Atemswegserkrankung e.V., Antje Fink-Wagner – Activities Update
Polish Federation of Asthma, Allergy and COPD Patients’ Organisations, Artur Badyda – 2012 Outcomes and Warsaw Study on the Influence of Traffic Related Air-Pollutants on the Health Status of Inhabitants
RESPIRA, Isabel Saraiva – Presentation of RESPIRA
Swedish Heart and Lung Association, Lars Edborg – Lung Month

Programme Presentations

David Brennan, EFA Membership and Programme Officer – EFA Members Area Tutorial 
Walter Atzori, European Patients’ Forum (EPF) Senior Programme Officer – Funding opportunities for Patient Organisations

EFA Annual General Meeting: Rome, Italy – May 30, 2013

Susanna Palkonen, EFA Executive Officer - Activity Report 2012
David Brennan, EFA Membership & Programme Officer - EFA Membership Strategy
Roberta Savli, EFA EU Policy Officer - Meet & Greet 2013
Per-Åke Wecksell, EFA Board Secretary and Allergy Awareness Project Board Representative - Presentation of the Finnish Allergy Programme Training 2012

HealthVent Project guidelines presented at the European Parliament – February 20, 2013

Jacques Remacle - HealthVent and IAQ under 2nd EU Environnement & Health Action Plan
Pawel Wargocki - Background and Context
Paolo Carrer - Health evidence supporting guidelines for Europe
Eduardo de Oliveira Fernandes - Holistic Approach and Application Strategies
Marie-Louise Luther -  Patients’ perspective on the need for IAQ
Panel led by Otto Hänninen - Impacts on ambient air policies:
-Stylianos Kephalopoulos
-Michal Krzyzanowski
-Anne Stauffer
Panel led by Francis Allard – Impacts on energy policies:
-Victor Leal
-Servando Alvarez
*Download here the PDF file containing all the presentations.

EFA “May Contain/Contains” Food Allergy Event: European Parliament – September 19, 2012

Susanna Palkonen – Introduction: expectations from patients
Antonella Muraro, MD, PhD – What is food allergy and how common is it?
Djoeke Kunnen – Living and challenging food allergy
Alexandra Nikolakopoulou – The new EU Regulation on the provision of food information to consumers and its differences compared to previous legislation
Silvia Valtueña Martínez – EFSA’s risk assessment in relation to food allergens
Chun-Han Chan & Stephen Pugh – Allergy information for non pre-packed food: the case of the UK
Hanna Magdalena Spangenberg – Case study: innovative ways to provide information
Marianne Jarl (presented by Per-Åke Wecksell) – The project “Great, an Allergic Customer!” for restaurants and catering
Bo Nilsson – The Swedish food sector guidelines 2005
Roberta Savli – The patient perspective
Giorgio Salerni  - Special case-study on cross-contamination: the use of latex during the preparation of products and the risk of allergic reactions

EFA Annual General Meeting: Dublin, Ireland – May 11, 2012

AGM Annual Report 2011
EFA Finances 2011 – 2012
EFA Workplan 2012
EFA Oxygen Project 2012

EFA Networking Day: Dublin, Ireland – May 12, 2012

EFA Training Programme on EU policy and institutions:  EU Institutions “Meet and Greet” Feedback
Channels for EU Funding Available to EFA Members – The Basics

Liliya Gentet – International Asthma Museum
Rosanna Franchi – COPD and Co-Morbidities
Helle Grøttum - Cooperation with REMA

EFA Respiratory Allegy Project 2012
EFA COPD Project 2012

EFA Allergy Awareness Project Launch Event:  European Parliament – November 22, 2011

Erkka Valovirta – EFA Book on Respiratory Allergies and Call for Action
Bolesław Samoliński - The Polish Presidency priority on respiratory allergies
Torsten Zuberbier – EU Surveillance Network
Pascal Demoly & Moises Calderon – European Academy of Allergists and Clinical Immunology (EAACI)
Francesco Blasi – European Respiratory Soceity (ERS)
Jean Bousquet – Allergic Rhinitis and its Impact on Asthma (ARIA)
Dermot Ryan – International Primary Care Respiratory Group (IPCRG)

Presentations from EFA Participation in External Events

Roberta Savli, Vulnerable groups’ right to be protected from second-hand smoke – European Conference on Tobacco or Health (ECToH) (26/03/2014)

David Brennan, Patient involvement in practice: lessons from the EU project U-BIOPRED – Careum Congress 2014 – 2nd ENOPE Conference (17 – 18/03/2014)

Roberta Savli, Tobacco Products Directive: current situation & next steps - ENSP Extraordinary General Assembly and Networking Meeting (04 – 06/11/2013)

Roberta Savli, EFA contribution to the EU Tobacco Products Directive – EPF Regional Advocacy Forum (28/10/2013)

Roberta Savli, Pollen monitoring: the way to limit the epidemic of allergy in Europe – ATOPICA Stakeholders Workshop (22/10/2013)

Roberta Savli, Poor indoor air quality: a public health problem – Emissions and Odours from Materials (17/10/2013)

Susanna Palkonen, Allergen and Intolerance Labelling – FIC and Food labelling 2013 (19/06/2013)

Roberta Savli, Empowering the most vulnerable groups – How can you fight against air pollution? – Green Week (05/06/2013)

Roberta Savli, Health aspects of indoor air quality – EVIA AGM (21/05/2013)

EPF Dissemination of EMA Information

EAACI Congress 2012 (Geneva)

Breda Flood – Patient expectations from the EU health priorities
Per-Åke Wecksell- Primary Care – Primary Position: the patient organisation perspective

Applying open innovation to bring personalized medicine to new disease areas workshop 2013

Breda Flood – A personalised approach to severe asthma (2013)

Presentations from EFA Partners

Engaging with Patient Opinion Leaders

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