EMA HCWP/PCWP meeting

Projects

EFA Patients’ Digital Prize for asthma and COPD digital care innovators

EFA granted a reward to digital health technologies that benefit and centre asthma and COPD patients through their design, accessibility and efficacy. A prestigious jury assessed the pillars for a successful tool, as well as the ways in which innovators have included digital collaboration and co-creation approaches between patients, healthcare providers and solutions developers at the core of their work.

Atopic Eczema Consensus Europe

EFA is running a project to fill the awareness gap and develop a Consensus among the burden of Atopic Eczema/Dermatitis for Patients.

3TR

3TR is an IMI funded project studying the molecular pathways and mechanisms linked to response and non-response to therapy in different immune-mediated, allergic and inflammatory diseases, including asthma and COPD.

Find out more!

Campaigns

#KeepBreathing

The time is now for a lung health policy that helps Europe to Keep Breathing.

Learn more

World Atopic Eczema Day

Every year on September 14th, EFA and the global community mark World Atopic Eczema Day, an opportunity to rise awareness about atopic eczema and improve understanding about the challenges it poses for people living with it.

Join the movement!

Endorse the Breathe Vision for 2030

The Breathe Vision for 2030 outlines shared aims by respiratory partners to increase attention towards respiratory health, while also supporting the general awareness and understanding of lung disease in society.

Show your support to the Breathe Vision for 2030!

Take Action

#ShowLeadership

#ShowLeadership is a pan-European campaign encouraging policymakers, stakeholders and individuals to take action to improve the situation of allergy, asthma and COPD patients in Europe. Only together, change is possible

Take action!

Severely Asthma

Severely, ASTHMA! is a video series portraying six severe asthma patients and their families throughout Europe, each bringing a unique insight on diagnosis, care, social and family life, participating in research and living with air pollution.

Watch now!

Publications

EFA launches “A vision for EU action on lung health 2024-2029” together with the European Lung Health Group

EFA and The European Lung Health Group call on EU policymakers to address lung health in a new publication. #KeepBreathing: A vision for EU action on lung health 2024-2029

European Consensus Report 2022: The Burden of Atopic Eczema

Following one year of in-depth discussions around the reality of Atopic Dermatitis/Eczema (AD/E), the Atopic Eczema Consensus Committee launched their consensus on the struggle of AD/E patients in Europe: ‘The Burden of Atopic Eczema / Dermatitis - European Consensus Report 2022’.

Read the report

EFA launches AboutAsthma.org website to help asthma patients in Europe

EFA and the Global Allergy and Airways Patients Platform (GAAPP) launched an educational website on asthma for patients and carers – AboutAsthma.org. The website serves as a comprehensive patient guide to asthma and provides science-based information and tips to patients and carers across five areas: asthma symptoms, attacks, care, life with asthma and help.

Learn more

Improving lung health through the future European Health Data Space

The European Lung Health Group launched its policy briefing on “Improving lung health through the future European Health Data Space (EDHS)”. The brief highlights the opportunities the EDHS brings for patients with lung disease and healthcare providers, with concrete demands to make these benefits a reality.

Download the policy briefing

Annual Report 2021

Our Annual Report 2021 celebrates 30 years since EFA started and looks back on our work throughout 2021.

Read the report online

On the 26th of November, Jelena Malinina, EFA EU Policy and Membership Officer took part in the European Medicines Agency (EMA) Human Scientific Committees' Working Party with Patients’ and Consumers’ Organisations (PCWP) meeting with all eligible organisations.

The meeting discussed patients and consumers involvement in EMA activities in 2015 and also presented a work plan for 2016. Patient representatives presented EU Patient/Professional-led training for patients, and the patient involvement in national agencies was discussed. We will keep you updated on the progress of activity in 2016.

For more information visit the website