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EFA will participate this September in two leading respiratory and dermatology conferences, where we will expose our projects and bring our patients perspective to those fields.  From the 9 to 13 September, we assist to the European Respiratory Society Congress in Milan and from 13 to 17, we will be in in Geneva, Switzerland, at the European Academy of Dermatology and Venereology (EADV) International Conference.

We are  back from holidays, and our desire to continue improving patients’ lives can’t wait. This month, we are going to the European Respiratory Society Congress 2017 in Milan (Italy) 9 to 13 September. The Congress features the latest advancements in clinical management and the forefront research , the best researche on respiratory diseases prevention and treatment.

See our agenda and main highlights for both Congresses. We will be very happy to meet you if you pass by our stand at the World Village!

 

Day
Activities/Meetings
Time
Venue
Speakers (yes/no)
Saturday 9 - Monday 11  EFA projects - hot desk  8:30 -17:30  World Village  Yes
Saturday 9  Patients Organisations' Network   10:00 - 17:30  Yellow (North)  Yes, EFA Projects Manager, Giuseppe de Carlo
Saturday 9  ERS Primary Care Conference  11:30 – 13:00  Black (North), ERS Conference Centre  Yes, EFA president Mikaela Odemyr
Sunday 10  ELF advocacy group  10:30 – 11:30  (under registration)  Yes, EFA Projects Manager, Giuseppe de Carlo
Sunday 10  Digital Health Symposium - myAirCoach   14:45 – 16:45  Beige (South)  No
Sunday 10  ELF Patient Organisation Conference   13:00 – 14:30  (under registration)  No
Sunday 10  ELF Patient Organisation Conference  14:30 – 15:30  (under registration)  No
Tuesday 12  World Village - COPD Move presentation  13:00 – 13:30  World Village  Yes, EFA Projects Manager, Giuseppe de Carlo
Wednesday 13  COPD Global conference  Full day  External to ERS - Hilton Double Tree No

 

Mikaela Odemyr, EFA’s president, will give the patients perspective during the primary care conference day.

EFA will also represent COPD patients by exposing our new Exercise Tutorial for COPD patients video, included in our COPDMove project project in our stand and under an official presentation  ‘Changing the perception of COPD: COPD MOVE! Lungs with no strings attached at the World Village. The MyAirCoach project will be featured  in a symposium on digital health were. You can check the whole ERS programme here.

We are also excited to assist to  the European Academy of Dermatology and Venereology (EADV) International Conference in Geneva, (Switzerland), from 13 – 17 September 2017.  We will introduce EFA and promote our new and flagship project on Atopic Eczema that has just started. Before summer we had a meeting with EADV's office in Brussels and look forward to a close and long standing partnership.

EFA is one of the patient representatives of this year congress, which main topic focuses on “Clinical immunology: The new immunotherapies“. Different sessions of different formats will cover the important fields in dermatology and venereology, such as allergic, autoimmune and autoinflammatory diseases, immunodeficiencies, as well as the immunotherapies of infectious and malignant diseases.

EFA’s new project in this field , through the development of the first European survey to assess the life of patients with severe atopic eczema.

The aim is to raise awareness about a disease that has for long been dismissed as a superficial skin disease and to highlight the burden of the disease, the quality of life and the psycho social and economic implications AE has on the lives of patients and their families.

With this survey that will be conducted in 9 EU countries, we hope to fill that gap in Europe, help to  patients with their disease and the lay public, physicians and the healthcare community to better understand atopic eczema and its’ impact on the lives of patients who suffer from this socially isolating disease.

 

 

Day

Activities/Meetings

Time

Venue

Speaker yes/no

Saturday 9, Sunday 10 and Monday 11

EFA projects exposed on oir hot desk

8:30 -17:30

World Village

yes

Saturday 9

Patients Organisation Network

10:00 - 17:30

Yellow (North)

YES

Saturday 9

ERS Primary Care

11:30 – 13:00

Black (North), ERS Conference Centre

YES

                     

Saturday 9

Novartis Open Dialogue

14:00

External to ERS -UNA Hotel Scandinavia, vie Fauché, 15

NO

Sunday 10

ELF advocacy group

10:30 – 11:30

TBC

YES

Sunday 10

Digital Health Symposium

14:45 – 16:45

Beige (South)

NO

Sunday 10

ELF Patient Organisation Conference

13:00 – 14:30

TBC

 

Sunday 10

ELF Patient Organisation Conference

14:30 – 15:30

TBC

 

Monday 11

GSK Medical Education on Salford Lund Study for Patients organizations

9:00 – 10:00

External to ERS - Milan Melia Hotel

NO

Tuesday 12

COPD Move presentation

13:00 – 13:30

World Village

YES

Wednesday 13 – Thursday 14

COPD Global conference

Full day

External to ERS - Hilton Double Tree

YES

 

Tags: Category: News
Country: Europe
Theme: Healthcare, Medicines