EFA’s primary aim is to make the voice of allergy, asthma and COPD patients heard in Europe.
Allergic and respiratory diseases are still complex conditions for healthcare professionals: no cure has been found yet, and the mechanisms triggering those diseases are not fully understood. At EFA we believe synergies between patients and researchers are key to succeed understanding, treating and preventing these diseases in a more effective way.
Responding to patient needs through our own projects
There are still important areas affecting patients that have not yet been addressed by the European research agenda. At EFA we allocate our resources in order to build patient-led projects that help us move towards achieving EFA’s mission and vision.
These projects run in parallel to our work with policy development at European level and feed our policy priorites with new data. Our projects address a wide scope of patient needs like the harmonization of care for COPD patients, the tools needed to improve asthma control for adolescents or the need to raise awareness about allergy to increase the number of allergologist. In 2017, through our COPD Move Project, we are collecting COPD patients testimonies to produce materials to change the perception of COPD Patients.
We unstintingly involve EFA’s member associations at national level in our project activities. The outcomes of our projects are always embedded in our advocacy as they bring patient evidence to support our cause. In most of the cases they go through an implementation face on the ground or a collection of best practices and information from our members.
Representing patients in EU funded projects
For the past 20 years EFA has advocated for the inclusion of the patient perspective in projects funded by the European Institutions and for ensuring patient needs and expectations are the target for research. At EU level, we partner in several innovative research projects like AirPROM, U-BIOPRED, MeDALL, EARIP and MyAirCoach where we ensure that real life considerations impacting patients are taken into account. We also collaborate with numerous health-related projects where patient views are crucial for the outcomes. In this sense, we are advisors in ATOPICA, eTRICKS and SINPHONIE amongst others.
At the moment, allergy, asthma and COPD patients can have their say and guide research outcomes on several EU funded projects. At EFA, we believe that close collaboration between patients, healthcare professionals and researchers that work to find solutions for patients is essential to producing meaningful research outcomes. Patients’ involvement throughout the whole research cycle, from the setting of the research agenda to the final use and evaluation of the findings does add value and ensure impactful results.