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HTA proposal approved by the European Parliament health committee leaves out some patients expectations
The proposal for a regulation on Health Technology Assessment (HTA) has been high on the agenda of the European Parliament during the last months. The Committee on the Environment, Public Health and F ...

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We are members of the Digital Health group at EPF
The European Patients Forum (EPF) has recently launched a working group to guide and support its strategy on digital health with the aim of positioning the patient community as a driver of innovation  ...

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New President for the food allergy patients in France
AFPRAL, the French Association for the Prevention of Allergies, has a new elected president, Pascale Couratier, replacing exiting President Véronique Olivier. Pascale has been working for AFPRAL for m ...

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Do you support atopic eczema patients? Put the filter on
To mark #AtopicEczemaDay we have launched a social media filter to raise awareness about a disease that goes beyond the skin. We want to catch people’s attention and force them look behind a skin that ...

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EUROPEAN REPORT: Itching for life - Quality of Life and costs for people with severe atopic eczema in Europe
EFA's 2018 European report Itching for Life: Quality of Life and costs for people living with severe atopic eczema in Europe uncovers the reality of atopic eczema, a chronic inflammatory skin dis ...

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PRESS RELEASE: 1st European Atopic Eczema Awareness Day
On the 1st European Atopic Eczema Awareness Day New patients report uncovers the reality of severe atopic eczema in Europe [Press release avaiable in 9 European languages below] PARIS, 14/09/201 ...

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SAVE THE DATE: 1st European Atopic Eczema Awareness day programme
Next 14th September, we are marking the 1st awareness day around atopic eczema to bring attention to a very common disease touching 1 in 5 children and up to 3% of adults in Europe. Atopic eczema, als ...

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Health Technology Assessment (HTA) in the spotlight in the European Parliament
In July, the European Parliament committee for Internal Market and Consumer Protection (IMCO) adopted its opinion on a report done by the Environment, Public Health and Food Safety Committee (ENVI) ...

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You too can Define your Asthma! A worldwide campaign
The Global Allergy and Asthma Patient Platform (GAAPP) of which we are Board Member has launched “Define Your  Asthma”, an educational campaign to “provide knowledge, confidence and impetus for a ...

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We want a future cooperation on HTA with patients at the center
On the 5thof June, we attended “What future for EU cooperation on HTA?” organised by the European Parliament Interest Group on Access to HealthCare, in cooperation with the Patient Access Partnership  ...

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Happy Anniversary Public Health!
EFA congratulates 25 years old European Public Health Alliance EPHA with the message that prevention is better than cure! We took part in their celebration of the journey and impact that EPHA has ha ...

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EFA at ERS Presidential Summit
The president of the European Respiratory Society (ERS) Mina Gaga hosted in her home country a summit to "redesign the future of healthcare in respiratory diseases". EFA was represented by Susanna  ...

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Myaircoach in MedTech week
For the 4th time, national associations and companies active on medical devices organised from 4-8 June activities across Europe to promote the value of life-changing technologies. This year MedTech ...

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IMI and its 10 years of medical innovation, the example of U-BIOPRED
On June 27th we were 400 participants to celebrate an outstanding achievement on medical research. In the last ten years, the Innovative Medicine Initiative has done more than 100 European projects an ...

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AEPNAA Summer Camp 2018 for children with food and latex allergies
From June the 23rd to July the 1st , AEPNAA organised  their annual Summer Camp, aiming towards children with food and latex allergies. During this week, children between 6 and 16 years ...

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EU Health Commissioner invited us to present our views on HTA
On May 15th we were amongst the 8 patient, consumer and public health associations invited by the EU Commissioner on Health and Food Safety Vytenis Andriukaitis to present our views on the proposed ...

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We presented our Atopic Eczema Score of Emotional Consequences at the EAACI Congress
Every year we are active participants in the most important gathering from the allergologists community, the annual European Academy of Allergy and Clinical Immunology (EAACI) Congress celebrated i ...

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Suggestions from EMA Digital Health topic group
As official members of the European Medicines Agency Patients’ and Consumers’ Working Party (PCWP), we are also very active in several of the agency’s topic groups to ensure that the regulatory work d ...

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Medical Technology and Health Workshop EPF-MedTech on HTA
*EPF Credits* On Thursday 24th May we participated in a workshop on Health Technology Assessment (HTA) and Medical Technologies organized by MedTech and the European Patients Forum (EPF). HTA i ...

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Do you know how community care can improve patients' access to care?
This 25th May, we took part in a workshop organized by MedTech and the European Patients Forum (EPF) to explore how community care can ensure equal and broad access to medical technologies for patient ...

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