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Chronic disease alliance calls for EU’s attention and money on health
On May 16th EFA Isabel Proaño participated in the official launch of the European Chronic Disease Alliance manifesto, called “Europe’s health deserves the EU’s attention: Investing in chronic disease  ...

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Patients Access Partnership partners assembly
On the 5th of February, EFA Director of Policy and Strategy Roberta Savli took part in Patients Access Partnership (PACT) Partners Assembly, representing patients with asthma, allergy and COPD. The fu ...

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UK patients not getting their basic asthma care
EFA member Asthma UK published in February their biggest Annual Asthma survey up to date: 7,000 patients responded on their daily difficulties because of asthma. The survey included this year new ques ...

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Lung Cancer Europe becomes EPF Associate Member
During the last European Patients Forum Annual General Meeting, held on April 25th, our good friends and colleagues Lung Cancer Europe (LuCE) were welcomed as an associate Member. LuCE represents lung ...

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New website! Steps to take to fly with medical oxygen
Are you or someone you know going on a trip and need to have medical oxygen therapy on-board a plane? We are delighted to launch a new EFA website to guide people with COPD and any other respiratory p ...

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Universal Health Coverage for all! An EPF campaign
The European Patients Forum has launched a public campaign on access to healthcare. The campaign was launched in a public event at the European Parliament on February 27th  “How to Achieve Univer ...

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Our response to the European Commission HTA consultation
The European Commission has launched a consultation on strengthening EU cooperation on Health Technology Assessment (HTA), a specialty to measure the added value of a new health technology in comparis ...

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Added-value of patient organisations – EPF survey
EFA Director Susanna Palkonen is actively participating at EPF Working Group on sustainability of patient organisations, which drafted a survey to demonstrate the contribution of patient organisations ...

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Chronic diseases in Europe: the Commission is urged to act
EFA, the European Chronic Diseases Alliance (ECDA) and other public health organisations have sent an open letter to the European Commission urging them to act on chronic diseases. Chronic diseases  ...

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EU conclusions to make more balanced pharmaceutical systems
On the 17th of June, the Council of the European Union issued conclusions on strengthening the balance in the pharmaceutical systems in the EU and its Member States. The Council recognises the importa ...

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EFA statement on value and pricing of innovative medicines
EFA shares the European Patients’ Forum (EPF) view that health is a fundamental right for everyone and therefore medicines, which allow for this right to be fully enjoyed by all people, should not be  ...

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EFA calls for more and better public funding for patients groups
On the 30th of June, the Committee on Budget of the European Parliament voted an own-initiative report on public funding for non-profit organisations. EFA, the European Patients’ Forum (EPF) and other ...

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How to invest on health to improve patient access to care?
With 18 million patients declaring unmet needs on healthcare access (3.6% of the EU population), the European Commission Expert Panel on Effective Ways of Investing in Health, an independent commissio ...

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More investment for prevention – Conclusions of European Health Parliament
On the 29th June, we participated in the European Health Parliament (EHP) closing session to bring the perspective of allergy, asthma and COPD patients. The European Health Parliament is a platform, ...

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EFA Capacity building 2016
For the third consecutive year, the EFA Capacity Building Project is about to start with the aim of leveraging members’ capacity to be involved in our projects and run their own projects and organizat ...

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Guide for lung disease patients cope with oxygen treatment at home
Material: Guide for lung disease patients cope with oxygen treatment at home Original name: Opas kotihappihoidosta Author: The Organisation for Respiratory Health in Finland Language: Finnish  ...

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Last chance to apply for EFA’s Capacity Building Project
For the third consecutive year, EFA has launched its Capacity Building Project aimed to leverage members capacity to be involved in our projects and run their own projects and organization in an effec ...

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Need for increased investment in health
European population in good health is value in itself and also one of the prerequisite for the EU’s economic growth, which is one of the main goal of the Europe 2020 strategy. Although health is a pre ...

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First steps in harmonising COPD Care across Europe
Our 2014 report “Harmonizing Prevention and Other Measures for COPD Patients across Europe” revealed varying levels of COPD care across Europe. Following on from this research, and with the help of EF ...

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Recommendations for Equal Treatment of patients in education and employment
People with chronic and long term conditions face a variety of obstacles, including stigma and discrimination, at school or at work. These issues can potentially affect a large share of the population ...

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