- Stichting Voedselallergie: Broadcast on food safety in hospitals
- A survey co-organised by EFA Member Stichting Voedselallergie (Dutch Food Allergies Foundation) shows that hospitals are not always taking care of food allergies of their patients. EFA Board memb ...
- EFA continues to be the only patient organisation working with European Chemicals Agency
- The European Chemicals Agency (ECHA) organised its annual Accredited Stakeholder Workshop on 21 March 2019 in Brussels to mainly discuss ECHA’s Strategic Plan 2019-2023 with official stakeholders, lik ...
- Rare diseases: A new platform to support better diagnosis and treatment
- In light of the Rare Disease Day in February, the European Commission has launched a new online knowledge-sharing platform to support better diagnosis and treatment for more than 30 million Europeans ...
- European Food Safety Authority discusses civil society concerns
- The use and presence of pesticides, and their classification as endocrine disruptors where among the top food-related health concerns that civil society representatives discussed with European Safety ...
- Quaterly Summary from EFA Working Groups
- In December 2018 and January 2019 we organised follow-up calls with EFA Working Groups to discuss hot topics and share national experiences important for allergy and airways diseases patients. Food ...
- Health Topics to be addressed by the Romanian Presidency
- In January, Romania took over the EU Council Presidency for the first time since the country joined the EU in 2007. Until June 2018, Romania will ensure the follow up on key policies, such as the HTAo ...
- EFA Plans for 2019
- Welcome to a powerful 2019! This year, we will have exciting new projects and events coming up! The EFA Annual General Meeting will take place in March just before the European Elections in May. In ...
- Advocacy to increase EU research investment at the High-Level Conference on EU Research and Innovation
- In March 2000, the European Union stated the ambitious goal of becoming the most competitive and dynamic knowledge based economy in the world, by 2010. To achieve it, the EU has gone through several r ...
- Stakeholders efforts to put health in the EU elections debate
- Following the #EU4Health campaign, led by EPHA and EPF, on November 29 th the European Federation of Pharmaceutical Industries Associations (EFPIA) organised an EU Health Summit to discuss with health ...
- WHO first global air pollution conference
- This October, the World Health Organisation held the first global air pollution conference. With 7 million people dying from air pollution each year, including 600 000 children, putting COPD, asthma a ...
- Capacity Building webinars
- As announced in our October newsletter, our Capacity Building project is up and running with a new format to allow all our members to participate and benefit from it. We started the webinar series a ...
- Recommendations for Personalized Medicine from the European PRECeDI project
- On 7th of November we attended the final conference in Brussels of the EU-funded research project Personalized PREvention of Chronic DIseases (PRECeDI). The project aims to promote knowledge transfer ...
- EFA re-newed as EMA eligible organisation
- Following an annual assessment, the European Medicines Agency (EMA), the European Union agency for the evaluation of medicinal products, confirmed the continued compliance of EFA with the criteria req ...
- We discussed Digital Health workshop at the Committee of the Regions
- On 25th October 2018, we were invited as speaker in the “Digital Health for all” workshop, organised by the Regional Ministry of Health of Andalusia (Andalusia Reference Site) in collaboration with th ...
- Food allergies were on the spotlight in Brussels at the International Symposium on Food Allergens
- On 18th October 2018 took place an International Symposium on Food Allergens: regulation, management and detection. The symposium was set in Brussels and organised by the CER Groupe, a research centre ...
- The European Patients Forum's manifesto is launched!
- During a launch event on 9th October, the European Patients’ Forum launched a Manifesto calling on the political leaders of the EU, Members of the European Parliament and the future Commission, to ens ...
- EFA becomes official NGO to WHO Europe
- On September 20 the WHO Regional Committee for Europe adopted a decision in plenary to accredit 19 not for profit organisations, including EFA, into ‘regional non-state actors’. In other words, EFA is ...
- Horizon Europe must deliver on citizens’ priorities: the case of allergy and asthma
- The European Parliament Interest Group on Allergy and Asthma held a policy meeting on October 9 to overcome the barriers to research in NCDs in Europe. Key opinion leaders in clinical research from th ...
- European Atopic Eczema Day
- Last September 14th the atopic eczema patient community belonging to EFA’s Members marked the first ever European Atopic Eczema Awareness Day to inform and bring attention to this allergic disease ...
- The involvement of patients in HTA becomes secondary for the European Parliament
- On October 3, the European Parliament plenary adopted in the first reading the file on the proposal for a regulation of the European Parliament and of the Council on health technology assessment (HTA) ...