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EFA Response to EMA Public Consultation on Patient Registries
The European Medicines Agency (EMA) launched a public consultation on the basis of a discussion paper focusing on the “use of patient disease registries for regulatory purposes – methodological and op ...

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EFA response to WHO invitation for public comment: Global Action Plan for Healthy Lives and Well-being
EFA provided input in the call for comments organised by the World Health Organisation (WHO), regarding strengthening collaboration among multilateral health organisations to accelerate country progre ...

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Medical Devices Regulation - Guidance on graphical symbols
The Medical Devices Regulation (2017/745 EU) entered into force in 2017 with rules being applicable after a transitional period ending in spring 2020. The new regulation contains a series of important ...

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Medicines for rare diseases and children conference
On June 17th, the European Commission Directorate General for Health and Food Safety (DG SANTE) organised a conference on medicines for rare diseases and children. About 150 experts were present from  ...

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EFA in the EU Chemicals Policy 2030 conference
EFA was present in the conference on EU chemicals policy 2030, organised by the European Chemicals Agency (ECHA) in Brussels on 27-28 June. On the 1st day, EFA joined the session on ‘Improving the reg ...

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United Nations: Tobacco Control as Human Rights and Ministerial meeting on sustainable development
In light of the 41st session of the United Nations (UN) Human Rights Council which took place from June 14th to July 12th in Geneva, Switzerland, the Secretariat of the World Health Organisation (WHO) ...

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First electronic health records of patients exchanged between EU countries
From late June, first health records of patients are exchanged in the EU thanks to the cross-border electronic health services. As of now, doctors in Luxembourg will be able to receive digital patient ...

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Being prepared for holidays and festivals with allergy, asthma and eczema
Summer is for holidays. To make them as relaxing as possible, EFA members Allergy UK and Asthma-Allergy Denmark have collected tips on how to prepare for holidays and travelling with allergies, asthma ...

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SAVE THE DATE: World Atopic Eczema Day 14th September
On September 14th, EFA together with Global Skin we are marking the 2nd World Atopic Eczema Day with the theme BENEATH THE SURFACE to raise awareness and understanding of this allergic skin disease. A ...

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Push for an EU strategic framework to prevent non-communicable diseases
The European Chronic Disease Alliance (ECDA), the European Public Health Alliance (EPHA) and the Non-communicable Disease Alliance (NCD) have   developed the paper “Towards an EU-Strategic F ...

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Finnish EU Presidency Programme: Health insights
From 1st of July onwards, Finland will lead the European Council’s work for six months. The Scandinavian country plans to focus on the Economy of Wellbeing – an umbrella topic that encompasses policie ...

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EFA atopic eczema scientific publications
Our study ITCHING FOR LIFE – Quality of Life and costs for people with severe atopic eczema in Europe continues to be to date the largest survey conducted in Europe on quality of life, with 1,189 seve ...

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Apply to participate in the IMI pool of patient experts
The Innovative Medicine Initiative (IMI) is a public-private partnership between the European Union and the European pharmaceutical industry. It is working to improve health by speeding up the develop ...

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French Eczema Association celebrates Eczema Day
On June 1st, EFA French Member, Association Française de l'Eczéma celebrated the national Eczema Day with a conference in Paris.
Can people in Europe afford to pay for healthcare? New WHO Report
The World Health Organisation (WHO) has conducted the first systematically report to monitor healthcare related financial protection in Europe. It focuses on financial hardship and unmet needs for hea ...

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WHO publishes first guidelines on digital health interventions
Over the last years, digital tools and solutions have increased their presence within the health sector. Their added value is to be found in numerous aspects, including access to information, diagnosi ...

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EU leaders discuss Future of Europe in Sibiu: our health struggles to be a priority
On May 9th, the EU prime ministers and presidents convened in Sibiu (Romania) to discuss the Future of Europe. The purpose of the meeting was the renewal of the leaders’ commitment to the EU, as well  ...

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EFA joins academics in calling for EU health research in action for equality in health
EU health research has made significant strides in better knowledge on prevention and care related topics, but how can research actually promote equality in health. The third forum of the Horizon 2020 ...

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Europeans have positive attitudes towards vaccination, Eurobarometer shows
In March 2019, the European Commission Directorate General for Health and Food Safety (DG SANTE) conducted a study on Europeans’ attitudes towards vaccination. The results of this Special Eurobaromete ...

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Join EFA webinar on patients’ data and research
The introduction of the General Data Protection Regulation in 2018 has risen concerns on the ownership and use of personal data. The use of personal data is necessary in medical research to enable new ...

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