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CONNECARE – personalized connected care for complex chronic patients
Seven out of 10 hospital beds across Europe are occupied by people with chronic long-term conditions. The EU funded CONNECARE project aims at developing, deploying and evaluating a novel smart, adapti ...

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International awareness days – great opportunities for patient groups
International awareness days are an opportunity to educate the general public on specific issues. Especially for patient organisations, it is a great possibility to mobilise political will and resourc ...

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CURE project shows good mid-term results
Despite great advances in research, unfortunately, there is still no cure for asthma. The CURE project, funded by the EU, is looking at possible innovative solutions, such as bacteriophages, a type of ...

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Survey on the use of lay language summaries in paediatric clinical trials
The European Forum of Good Clinical Practices (EFGCP) in collaboration with the European Federation of Pharmaceutical Industries and Association (EFPIA) are working together to understand what is the  ...

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Join us on the 2nd World Atopic Eczema Day on September 14th
On September 14th, EFA, together with Global Skin, is marking World Atopic Eczema Day. With the day’s theme BENEATH THE SURFACE we raise awareness and understanding of this allergic skin disease. We i ...

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EFA at the Patient Access Partnership conference on the Future of Health
On 11 and 12 July, EFA was proud to contribute to the high-level conference of Patient Access Partnership (PACT) on ‘The Future of Health: Advancing the UN 2030 Sustainable Development Agenda in Europ ...

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Save the Date: World Atopic Eczema Day 14th September
On September 14th, EFA together with Global Skin we are marking the 2nd World Atopic Eczema Day with the theme BENEATH THE SURFACE to raise awareness and understanding of this allergic skin disease. A ...

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EFA response to EMA consultation on allergen product development in low-sized populations
The European Medicines Agency (EMA) launched a public consultation on the basis of a concept paper for a ‘Guideline for allergen products development in moderate to low-sized study populations’. The ...

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EFA Response to EMA Public Consultation on Patient Registries
The European Medicines Agency (EMA) launched a public consultation on the basis of a discussion paper focusing on the “use of patient disease registries for regulatory purposes – methodological and op ...

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EFA response to WHO invitation for public comment: Global Action Plan for Healthy Lives and Well-being
EFA provided input in the call for comments organised by the World Health Organisation (WHO), regarding strengthening collaboration among multilateral health organisations to accelerate country progre ...

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Medical Devices Regulation - Guidance on graphical symbols
The Medical Devices Regulation (2017/745 EU) entered into force in 2017 with rules being applicable after a transitional period ending in spring 2020. The new regulation contains a series of important ...

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EFSA publishes guidance on the use of threshold of toxicological concern approach in food safety assessment
The European Food Safety Authority (EFSA) carried out a public consultation to receive input from the scientific community and all interested parties on the guidance on the use of the Threshold of Tox ...

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EFA at EFPIA Annual Conference
EFA Director Susanna Palkonen attended the annual networking event of the European Federation of Pharmaceutical Industries Associations (EFPIA). The event was hosted by the Finnish EU Presidency. Ec ...

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Medicines for rare diseases and children conference
On June 17th, the European Commission Directorate General for Health and Food Safety (DG SANTE) organised a conference on medicines for rare diseases and children. About 150 experts were present from  ...

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EFA in the EU Chemicals Policy 2030 conference
EFA was present in the conference on EU chemicals policy 2030, organised by the European Chemicals Agency (ECHA) in Brussels on 27-28 June. On the 1st day, EFA joined the session on ‘Improving the reg ...

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EPSCO Council adopts tougher rules for Persistent Organic Pollutants (POPs)
On 13th June, the Council adopted stricter rules on the so-called Persistent Organic Pollutants (POPs), a list of chemical substances which are dangerous for both the human health and the environment. ...

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United Nations: Tobacco Control as Human Rights and Ministerial meeting on sustainable development
In light of the 41st session of the United Nations (UN) Human Rights Council which took place from June 14th to July 12th in Geneva, Switzerland, the Secretariat of the World Health Organisation (WHO) ...

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MyAirCoach presented at key medicines conference
On Friday 14th June, EFA was invited to speak at the Annual Medicines Europe and International Generic and Biosimilar Medicines Association Conference in Warsaw, Poland. The conference focussed on ‘ho ...

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First electronic health records of patients exchanged between EU countries
From late June, first health records of patients are exchanged in the EU thanks to the cross-border electronic health services. As of now, doctors in Luxembourg will be able to receive digital patient ...

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SAVE THE DATE: World Atopic Eczema Day 14th September
On September 14th, EFA together with Global Skin we are marking the 2nd World Atopic Eczema Day with the theme BENEATH THE SURFACE to raise awareness and understanding of this allergic skin disease. A ...

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