Slides:
"All people always emphasize how tolerant they are, but if they are close to me, for example sitting in the same restaurant, they try to look the other way or even sit in another place."
Atopic eczema patient from Spain
"You can improve the quality of life with a good treatment, eczema is unfortunately not curable, but you can feel very well having a well-treating doctor and you can look optimistically into the future."
Atopic eczema patient from Germany
Slides:
"This disease is a hard time, especially in summer, everything hurts, itches and you scratch until you bleed. Without support of the family and doctors, it would be very difficult to deal with atopic eczema."
Severe atopic eczema patient from Germany
"There are many people who are suffering silently, the general public doesn't know what it means to have eczema."
Atopic eczema patient from Sweden
Slides:
"You can improve the quality of life with a good treatment. Eczema is unfortunately not curable, but you can feel very well having a well-treating doctor and you can look optimistically into the future."
Atopic eczema patient from Germany
"Talking about atopic eczema is already a first step towards liberation, because we need to talk about it, encourage each other."
Atopic eczema patient from Spain

When people open their heart and homes to show what really means to live with a chronic skin disease like atopic eczema, you can get back a reality punch.

 

Atopic eczema is much more than a skin disease, it affects the whole body of the patients, their life and energy to face life. The Atopical Lives exhibition features people touched by atopic eczema across ages, portraying for the first time the similarities and differences among patients in five European countries.

 

We thank wholeheartedly the thirteen people who appear in these pictures. To see them is to see oneself, and patients receive the most powerful message: you are not alone. Thanks to Lurdes R. Basolí, for her sensitivity and her talented eye to capture the beauty of life.

 

Finally, thanks to our sustainable funding partners Sanofi Genzyme and Regeneron whose un-restricted grants have made possible this Atopical Lives photo exhibition and video piece.

 

The EFA Team

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Contact

EFA - European Federation of Allergy and Airways Diseases Patients' Associations

35 Rue du Congrès, 1000 Brussels, Belgium

E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Tel.: +32 (0)2 227 2712 - Fax: +32 (0)2 218 3141

www.efanet.org/campaigns/atopical-lives

EU Transparency Register Id. Num.: 28473847513-94

 

Credits

Lurdes R. Basolí - Photography and video

Workship Studio - Web design

Joao Veríssimo - Coding

EFA - Project direction

Copyright © EFA - Atopical Lives Project

Eczma stories

Can’t explain the full story in 500 words. However I’ve had it as small as I can remember. Then it came back to beat me badly in 2014 when I was at Dance College in London. I was LIVING the DREAM of DREAMS. I couldn’t believe I was there. It took me though. In 2015 December I had to give it all up. I’m still battling. I’m still trialling new methods & medications. It’s the biggest hardest journey ever. It’s horrible. It’s harsh. It’s lonely. There NEEDS & MUST be more awareness.

Fay, 25, United Kingdom

I've lived with atopic eczema since I was a toddler. My life is non stop itching and scratching, my face and arms flare up from the warm water in the morning. It's made a lot of things difficult. I'm constantly needing to upgrade my skincare, and it costs a fortune. I have scars from scratching in my sleep, I'm always self conscious about it. However, it has gotten better. Quite a bit better. With a lot of care, things have changed.

Dean, 18, Great Britain

Living with eczema means itching constantly, and scratching in response, and then drawing blood, and trying to hide that. Living with eczema means being told you'll "never be cured" and being prescribed all manner of potions and lotions, none of which work. It means waking in the night in agony, bleeding over sheets and clothes, paying for any treatment that might work regardless of the cost, and scalding yourself in the shower to try to find peace. Living with eczema doesn't get enough credit.

Victoria, 20, United Kingdom

I would like if skin care products were paid by the health insurance, the increased need for them is already a burden, I of course have an increased need for care. More causes-treatment should be explored on the patient as such.

Dirk, 52, Germany

I scratch myself and it means complications, I cannot swim and do sports. I need to spend more money on clothes and cannot have tight clothes nor fully covering shoes. Work clothes can be a problem, the ability to adapt them. I am worried when I am looking for a job because you cannot wash your hands as often as may be needed. The employment service needs to understand that I cannot search for all jobs. >>

Anna, 20, Sweden

The medical world is sometimes so difficult, they do not cooperate. I really had to urge the dermatologist to look further. He did not want to. Eventually, I went to an allergologist and it turned out to become better with dietary adjustment. It’s important to work together and to look beyond.

Eva, 33, Netherlands

In acute conditions, it puts a lot of strain on me, both mentally and physically, and it also puts a strain on finances, healthy living is expensive and eczema limits many things I can eat, and manythings are expensive and you have to be able to afford it.

Michaela, 28, Germany

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Dear visitor,

 

Please remind that all photographs on the Atopical Lives website are in printing quality for non-commercial purposes only and require indication of copyright “© 2018, Lurdes R. Basolí / EFA Atopical Lives Project”.

 

Please remember to comply with the mandatory attribution and make sure to read the terms of use below:

 

Terms of Use

The www.efanet.org site and its original content are owned by EFA – European Federation of Allergies and Airways Diseases Patients’ Associations – and are protected by European copyright and intellectual property and proprietary rights laws. Your access to download and use of the pictures in www.efanet.org/campaigns/atopical is conditional on your acceptance of and compliance with the following terms of use:
 
1. Downloading the pictures does not grant any property rights but permission for use only. This permission can be revoked by EFA ex nunc at any time without a need for justification.
2. Downloading, distributing and publishing the pictures, in digital or printed form, is allowed for non-commercial use only. You are not allowed to license, sell, rent, lease, disclose, exhibit or otherwise commercially exploit the pictures.
3. No photograph will be retouched, cropped or transformed in any way. The original format of the images will be preserved.
4. Publishing the pictures in digital or printed form requires indication of copyright “© 2018, Lurdes R. Basolí / EFA Atopical Lives Project”
5. The pictures may be published in blogs and both online and print newspapers, journals and magazines when indicating copyright.
6. The pictures may be used for publication in digital and printed form only when being contextualized with atopic eczema.
7. Any use of the pictures without previously downloading them directly from www.efanet.org/campaigns/atopical is bound to the terms of use stated above. Any misuse will be pursued and has legal consequences. This is a legal contract. By downloading the picture you agree to be bound by these terms.

 

Download Image

Dear visitor,

 

Please remind that all photographs on the Atopical Lives website are in printing quality for non-commercial purposes only and require indication of copyright “© 2018, Lurdes R. Basolí / EFA Atopical Lives Project”.

 

Please remember to comply with the mandatory attribution and make sure to read the terms of use below:

 

Terms of Use

The www.efanet.org site and its original content are owned by EFA – European Federation of Allergies and Airways Diseases Patients’ Associations – and are protected by European copyright and intellectual property and proprietary rights laws. Your access to download and use of the pictures in www.efanet.org/campaigns/atopical is conditional on your acceptance of and compliance with the following terms of use:
 
1. Downloading the pictures does not grant any property rights but permission for use only. This permission can be revoked by EFA ex nunc at any time without a need for justification.
2. Downloading, distributing and publishing the pictures, in digital or printed form, is allowed for non-commercial use only. You are not allowed to license, sell, rent, lease, disclose, exhibit or otherwise commercially exploit the pictures.
3. No photograph will be retouched, cropped or transformed in any way. The original format of the images will be preserved.
4. Publishing the pictures in digital or printed form requires indication of copyright “© 2018, Lurdes R. Basolí / EFA Atopical Lives Project”
5. The pictures may be published in blogs and both online and print newspapers, journals and magazines when indicating copyright.
6. The pictures may be used for publication in digital and printed form only when being contextualized with atopic eczema.
7. Any use of the pictures without previously downloading them directly from www.efanet.org/campaigns/atopical is bound to the terms of use stated above. Any misuse will be pursued and has legal consequences. This is a legal contract. By downloading the picture you agree to be bound by these terms.
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