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Patients’ views on the Medical Devices Regulation
On the 22nd of February, Senior EU Policy Advisor Roberta Savli met with the assistant of Mrs Wilmot MEP (rapporteur of the medical devices regulation in the European Parliament) together with the Eur ...

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Patient Toolbox launched by EUPATI
On Wednesday 27th of January the European Patient's Academy on Therapeuric Innovation (EUPATI) launched it's new Educational Toolbox. The online toolbox contains patient-friendly, ready-to-use  ...

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Product Recall: Allergy Immunotherapy Products (APSIs)
On 2nd December the French Health Authority, l’Agence Nationale de Sécurité du Médicament et des produits de santé (ANSM), announced its decision to temporarily suspend all medicinal products produced ...

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New webpage on medication errors from EMA
In accordance with EU pharmacovigilance legislation, patients have the opportunity not only to report any side effects of medicines, but also on any medication errors they experience. If you are a p ...

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EMA updates on the publication of clinical data and risk minimisation measures
On return from the summer break we participated in the European Medicines Agency (EMA) joint meeting between Patients and Consumers (PCWP) and Healthcare Professional Organisations (HCPWP). At the m ...

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IMI GetReal COPD case study
On the 9th of September, the Chair of the EFA COPD Working Group, Michael Wilken, represented COPD patients’ views on the IMI GetReal COPD case study workshop held in Frankfurt, Germany. Launched in ...

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Patients - Industry Dialogue
On the 22nd of September, the 10th Patients-MedTech Dialogue was held in Brussels.  The event was jointly organised by the European Patients' Forum (EPF) and MedTech Europe. Patients and ind ...

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EU pharmaceutical regulation celebrates 50 years
2015 marks the 50th anniversary of the adoption of the first law on the authorisation of pharmaceuticals at EU level.  This law set the basis for some of the key principles that are still valid t ...

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EU pharmacovigilance is still too complex
The new pharmacovigilance legislation, which came into effect in July 2012, was the biggest change to the regulation of human medicines in the European Union since 1995. On the 15th Septembe ...

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EMA recommends more education materials on the use of adrenaline auto-injectors
The European Medicines Agency (EMA) has recommended several measures to ensure that patients and carers use adrenaline auto-injectors successfully. Among the measures, EMA suggests introducting more e ...

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Information on herbal medicines will now be accessible to patients
From now on the European Medicines Agency (EMA) will systematically publish summaries of the recommendations of its Committee on Herbal Medicinal Products (HMPC) on the medicinal uses of a herbal ...

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European Union launches new logo for selling medicines online
As from 1 July 2015, all online pharmacies or online shop selling medicines in the EU must display a new logo to show they are operating legally. The was introduced through the Falsified Medicines Dir ...

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Patients’ input in research: the soonest and the deepest, the better
The involvement of patients in research projects is often limited to the participation in clinical trials or other forms of research where patients provide samples. To overcome this common limitation, ...

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Patient Access to Innovative Therapies - EAPM Conference
On the 2nd and 3rd June EFA representative Breda Flood participated at the European Alliance for Personalised Medicine (EAPM) Presidency Conference 'Smaller Members And Regions Together ...

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Medicines initiative opens the way for more patient involvement
IMI (Innovative Medicines Initiative) is Europe's largest public-private initiative seeking to speed up the development of better and safer medicines for patients. This year’s IMI forum counted on m ...

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Save the Date: MeDALL Results Symposium
We are pleased to announce on behalf of the MeDALL Consortium the celebration of the event “Are Europeans developing more allergies? – From research to policies”, an event at the European Parliam ...

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EU Policy update (April 2015)
Launch of Interest Group on Allergy and Asthma: EFA/EAACI REPORT The European Parliament Interest Group on Allergy and Asthma was launched on the 25th of March. The event was co-hosted by the Inte ...

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EU Policy update (March 2015)
March was full of novelties! WHO published a report on the access to new medicines in Europe and the EEA published the State of the Environment linking environmental policies to our health. The Commis ...

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EFA in events (March 2015)
Much new evidence of interest for allergy, asthma and COPD patients was published in March. We attended the launch of the EMA 20th years anniversary, the Roadmap for sustainable care, the EEA State of ...

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Press Release: EP Interest Group on Allergy and Asthma
Launch of new European Parliament Interest Group on Allergy and Asthma Brussels, 25 March, 2015 – Members of the European Parliament (MEPs), patients, doctors have joined forces in an Interest Group ...

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