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    Putting you at the centre of all decisions affecting your health

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    30% of the European population lives with allergies, asthma and COPD

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    Because breathing is taken for granted, we work for better recognition of chronic respiratory diseases

EU-UK patient group meets the European Commission to discuss Brexit
In July, our Director Susanna Palkonen chaired a meeting on behalf of the European Patients’ Forum and coordinated by the Association of Medical Research Charities UK (AMRC) to meet the Brexit taskfor ...

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EUROPEAN REPORT: Itching for life - Quality of Life and costs for people with severe atopic eczema in Europe
EFA's 2018 European report Itching for Life: Quality of Life and costs for people living with severe atopic eczema in Europe uncovers the reality of atopic eczema, a chronic inflammatory skin dis ...

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PRESS RELEASE: 1st European Atopic Eczema Awareness Day
On the 1st European Atopic Eczema Awareness Day New patients report uncovers the reality of severe atopic eczema in Europe [Press release avaiable in 9 European languages below] PARIS, 14/09/201 ...

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Suggestions from EMA Digital Health topic group
As official members of the European Medicines Agency Patients’ and Consumers’ Working Party (PCWP), we are also very active in several of the agency’s topic groups to ensure that the regulatory work d ...

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Medical Technology and Health Workshop EPF-MedTech on HTA
*EPF Credits* On Thursday 24th May we participated in a workshop on Health Technology Assessment (HTA) and Medical Technologies organized by MedTech and the European Patients Forum (EPF). HTA i ...

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We welcomed a new Member and a new Board Member
On April 16-17, we celebrated our Annual General Meeting in Lisbon, Portugal, were EFA Members approved our annual 2017 report, accounts, budget and 2018 workplan. We exchanged on members’ best practi ...

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EFA leaders meeting on personalised medicine, data protection and sharing, real world evidence
The next morning day, Tuesday 17th, we welcomed six guest speakers who are the top experts on their specialty in a session that explored the future of personalised medicine and clinical data sharing.  ...

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Our vision for the EU is healthier
Last 19th of April, EFA together with other 14 organisations published a joint statement on the future of health in the EU, ahead of the Employment, Social Policy, Health and Consumer Affairs Council  ...

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ERS severe asthma satellite
EFA’s president Mikaela Odemyr (Stockholm) and Susanna Palkonen (Brussels) took part in the ERS first ever Satellite symposium, dedicated to where we are with diagnosis, treatment and care for severe  ...

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We presented the preliminary results of the biggest-ever atopic eczema survey for patients in Utrecht
Atopic Eczema is a very common inflammatory skin disease for which the predominant symptom is ITCHING. It is often underestimated but the signs and symptoms have a huge impact on patients’ lives. Thos ...

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Patients are driving the future of Severe Asthma research through ERS SHARP
SHARP is a Clinical Research Collaboration promoted by the European Respiratory Society. It stands for Severe Heterogeneous Asthma Research Collaboration, Patient centred and it aims to facilitate stu ...

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 First European Alpha-1 Awareness Day
On the 25th of April, EFA’s Roberta Savli took part in an EU Roundtable on Alpha-1 Antitrypsin Deficiency (a genetic disorder that can cause serious lung or liver disease, including COPD), marking the ...

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PRESS RELEASE: World Asthma Day 2018
Life is possible for patients with severe asthma Provided that they have accurate diagnosis Brussels, 1st May 2018 – WORLD ASTHMA DAY – Today European asthma patients are joining voices under the  ...

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Some patients with asthma are affected… SEVERELY!
In March we travelled to the UK and kicked-off our new project “Severely, Asthma!”, a video series that explores the different issues impacting the life of severe asthma patients. Severe asthma is sub ...

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EMA update on medicines for COPD and eczema
The European Medicines Agency Committee for Medical Products for Human Use (CHMP), responsible for human medicines, has granted a positive opinion on the medical products Riarify and Trydoni ...

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Sign the EU Manifesto on Influenza Vaccination
On March 12, EFA launched a 10-point Manifesto calling the EU for more action to increase seasonal influenza vaccination coverage rates in Europe. Influenza is annually responsible for 650 thousand de ...

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Take the survey: does your lung disease affect family planning and pregnancy?
The European Respiratory Society (ERS) and the Thoracic Society of Australia and New Zealand (TSANZ) are looking for information to understand how people with a lung condition are currently cared for  ...

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EFA launches Atopic Eczema working group
The needs and lives of patients living with atopic eczema are very specific sometimes, that is why at EFA we are happy to announce the launch of a  working group on Atopic Eczema. The working gro ...

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WHO encourages European action on air pollution to protect health
On the 13th of February, EFA Director of Policy and Strategy Roberta Savli participated in a briefing organised by our partner Health and Environment Alliance (HEAL) together with the World Health Org ...

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Good Indoor Air Quality is possible if industry believes on it
EFA Director of Policy and Strategy Roberta Savli attended the VSK exhibition in Utrecht on the 7th of February, an event that brings together experts from the heating, plumbing, climate control and r ...

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Latest research - COPD

The European Respiratory Society (ERS) and the Thoracic Society of Australia and New Zealand (TSANZ) are looking for information to understand how people with a lung condition are currently cared for  ...

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During 2017 we will promote physical exercise to improve the quality of life of patients living with COPD. The first videos have already been realised by our friends and patient advocates Günther Hirs ...

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