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hackAIR, when patients will measure air quality
How can we raise public awareness on air quality while at the same time engaging citizens in air quality monitoring and observations? The hackAIR project is developing a platform that will enable this ...

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Scientific Panel for Health meets Commissioners for Health and Research
Our Director Susanna Palkonen is the patient representative of the EU Research Programme H2020 Panel for Health , charged to prepare a vision and address hurdles for EU funded health research. In ...

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EFA selected as a European Commission HTA stakeholder and new EFA Task Force
We are delighted about the European Commission confirmation that EFA is a suitable stakeholder to become member of the Health Technology Assessment pool network.  The HTA Stakeholder Pool will be ...

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Our response to the Commission consultation on excise duties applied to manufactured tobacco
EFA has replied, in partnership with ENSP, to the European Commission public consultation on excise duties applied to manufactured tobacco. From our patients’ perspective, tobacco harms our health. Gi ...

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Universal Health Coverage for all! An EPF campaign
The European Patients Forum has launched a public campaign on access to healthcare. The campaign was launched in a public event at the European Parliament on February 27th  “How to Achieve Univer ...

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myAirCoach will be featured at CeBIT
myAirCoach consortium will meet in Brussels for the second year technical review with the European Commission that will be held on the 7th of March. The meeting represents an opportunity to assess t ...

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The first EP event of the year put the focus on health: Act. Believe. Care.
Chronic respiratory diseases need public policy solutions at European level to respond to increasing disease prevalence, unmet treatment needs, high cost of hospitalisations, work and school sick-leav ...

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Our response to the European Commission HTA consultation
The European Commission has launched a consultation on strengthening EU cooperation on Health Technology Assessment (HTA), a specialty to measure the added value of a new health technology in comparis ...

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IMI looks into what patients bring to medicines
The Innovative Medicines Initiative launched in December its 10th call for proposals under IMI 2. We especially welcome one of the topics of this call: “Patient Perspectives in medicines lifecycle”. T ...

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PRESS RELEASE: Smartphones could improve young people’s health literacy and adherence
2016 European Health Forum Gastein (Austria) – Asthma is the most common chronic disease in childhood. Today, 30 million European children and adults below the age of 45 years old have asthma and 15,0 ...

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More research into earlier diagnosis – Our response to H2020 consultation
During the summer, EFA had the chance to provide feedback on the development of the work programme 2018-2020 of Horizon 2020 (the European Union’s Research and Innovation Framework Programme) in respo ...

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Simplified clinical trials results to inform patients – Our response to the EC consultation
In August we sent our comments to the European Commission open consultation on the summary of results of clinical trials for laypersons. This consultation follows the new clinical trials regulation  ...

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New consultation on the security of tobacco products – Open!
EFA, in partnership with ENSP, is planning to reply to the open consultation with the purpose to collect inputs for implementing an EU system traceability and security features, as required under Arti ...

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Added-value of patient organisations – EPF survey
EFA Director Susanna Palkonen is actively participating at EPF Working Group on sustainability of patient organisations, which drafted a survey to demonstrate the contribution of patient organisations ...

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Health and environment associations mobilized against TTIP once again
In July, more than 60 non-profit associations sent a letter to the President of the European Parliament Martin Schulz arguing that the European Commission is failing to comply with Parliament’s 2015 R ...

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Vote for myAirCoach to win the EC Innovation Radar Prize
The European Commission has listed the myAirCoach device as one of the high potential innovations in EU-funded research and innovation projects for the Innovation Radar Prize 2016. myAirCoach partne ...

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New treatment to reduce asthma severity – Promising AirPROM study
The University of Leicester has led a ground-breaking study, funded by Novartis Pharmaceuticals, National Institute for Health Research (NIHR) and EU-funded project AirPROM, on a new drug that may in  ...

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AirPROM legacy – Check out the booklet
The AirPROM project ended in May 2016, with a public event organised by EFA at the European Parliament, hosted by MEP David Borrelli. However the work does not finish when a project ends, especially w ...

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U-BIOPRED's role on patient involvement
The Innovative Medicines Initiative (IMI) has published an interview with Professor Peter Sterk, coordinator of U-BIOPRED, one of the first projects launched by the IMI in 2009. According to Sterk,  ...

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Chronic diseases in Europe: the Commission is urged to act
EFA, the European Chronic Diseases Alliance (ECDA) and other public health organisations have sent an open letter to the European Commission urging them to act on chronic diseases. Chronic diseases  ...

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